Hello!
I’m 47 and was on HRT for 8 months because of mood changes and sleep disturbances & anxiety (estrogen patch & progesterone tablets - then switched to evorel sequi because of water retention).
I stopped in June because I forgot to take them when I went away and I’d also been diagnosed with a thickened endometrial wall (11mm)
Since September, I’ve had acute pelvic & back pain mid cycle (4 days) and during period (5 days). It feels like my womb is being dragged out of my body and it’s completely dehabilitating.
December - the pain got a lot worse and felt like Labour pains - January it’s been pretty constant - pre cycle pain was a 10 in my pain scale and only codeine or oromorph could relax my pain - I couldn’t empty my bowls, wee normally, wear a tampon because of what felt like inflammation and acute pain.
I’ve had endless pain now for 15 days. Post bleeding ending (31st Jan), I was finally able to pooh normally and wee, but the pain is just not going away. If I get up and walk around, it becomes angony after half an hour.
I’m also off my food and feel sick (VERY out of character for me).
Im also unable to work, which is putting the family under extreme pressure. The kids have seen me in agony and on very strong pain killers and have said they’re worried I’m going to die 😢
My partner is very stressed, obviously.
I’ve had another ultrasound, that’s shows 11mm endometrial wall again (I think they’re not so concerned about this now). The MRI result came back yesterday and it showed nothing obvious.
So what could be causing such acute pain? (It’s still much worse mid & during my cycle) and what the hell can I do about it?
I’ve got a consultant gynaecologist appointment on 26th February. It feels like a long time to wait in extreme pain, unable to walk, work or take care of the family.
I’ve been to the GP 4 times and hospital twice (A&E & women’s unit, referred by my GP yesterday). But everyone keeps kicking me out with more opiates.
I’m desperate to end this pain and get back to active life.
Does the MRI mean it’s iunlikely to be anything sinister? Therefore they’ve assessed it as chronic condition - so have to wait on painkillers?
I’m frightened of getting addicted and I don’t like the state they put me in around the children.
Could this literally be my version of menopause?
Or coming off HRT too quickly? (I did gradiate a bit, but nurse said to stop as thick endometrial wall).
I’m so desperate, I’m thinking of getting a hysterectomy privately without paying for diagnosis investigations. It could all take years on the NHS here and I’d rather get in debt and earn it back when I’m strong again.
Any advice really appreciated.
I’m usually fit and well. Slightly overweight.
I’d normally exercise, but it hurts too much atm.
Thanks
Sarah