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Author Topic: Terrible timing. Hrt and new family breast cancer  (Read 1574 times)

Kelly909

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Terrible timing. Hrt and new family breast cancer
« on: August 21, 2019, 10:38:53 PM »

Hi. I'm a total newbie here and would really appreciate your help.
After months of tests (and a few years of symptoms) I've had it confirmed I'm in early menopause at 42. I've been given Evorel 50 patches and Ustrogen tablets + a pessary thing.
I started the patches last Thursday and on the Saturday found out my mum has oestrogen fed breast cancer. I can't get even a phone appointment with my doctor for 2 weeks and I'm due to start the Ustrogen before that.
I can't decide whether to ditch the lot now and have a rethink. It's really overwhelming.
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Dotty

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #1 on: August 22, 2019, 05:43:28 AM »

Guidance now about taking hrt with a family history of Breast cancer depends on the age of the lady with breast cancer. How old is your mum? X
« Last Edit: August 22, 2019, 10:02:11 AM by Dotty »
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CLKD

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #2 on: August 22, 2019, 06:56:35 AM »

I would stop.  Maybe you could go along to your Mum's GP/Consultant for a chat?  There are blood tests to see if there is a specific gene.  How far into treatment is your Mum?

 :foryou:
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Jari

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #3 on: August 22, 2019, 07:46:55 AM »

Hi Kelly, sorry for your Mum's news.
I also have estrogen receptive BC family history and absolutely do not take hrt. My gp point blank refused, because of the increased risk.

Have your periods stopped yet? If so, how long ago did they come to an end? X
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Kelly909

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #4 on: August 23, 2019, 02:06:30 AM »

Thanks all for taking the time to reply.

(Dotty) my mum is 66.

(CLKD) She's having a lumpectomy in 3 weeks and found out last week after a routine scan. They're removing lymph glands too.

(Jari) All GPS seem to be really different in this (which I find massively unreassuring). Interesting yours refused. I do still have periods.

I feel I might have to try a different approach for my systems. Although how to stop flashes is a mystery. Thanks again for kindness
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pepperminty

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #5 on: August 23, 2019, 05:30:39 AM »

https://www.menopausedoctor.co.uk/menopause/breast-cancer-hrt

Hi Kelly909,

try having a look at Miss Newson's website? See the link.  Also there is a book called Estrogen matters written by a breast cancer specialist, I believe his wife had it? Anyway it is a a personal descision , and should be made after reading and being informed about the facts etc. Sorry about your mum. You should do what feels right and comfortable for you.

Peppermintyx
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AgathaC

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #6 on: August 23, 2019, 05:42:31 AM »

Oh gosh. You poor thing. Horrible timing, yes. First of all, hope your mum is okay. What a shock for you all. Second, you must make the right decision for you and there is a lot of (very recent actually) literature suggesting it would be okay for you to continue. Having said all that, and only because you've asked for help/opinions (all of which are have validity), HRT is not something I would consider, given BC in my family (sister and maternal aunt). I think maybe do hold off and have a rethink, knowing you can go back on at any time? Love AgathaC x
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AgathaC

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #7 on: August 23, 2019, 05:49:12 AM »

P.S. if you search for a nice member called Nas, she has positive HRT and BC comments which might reassure you? X
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Jari

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #8 on: August 23, 2019, 05:49:32 AM »

Hi Kelly, I agree, it's very unreassuring when gp's say different things.
Mine point blank refused because my family history was estrogen receptive BC, meaning the cancer thrives on estrogen.  I think sometimes it's ok if it's a different type of cancer.
If you're still having natural periods then you're not in menopause yet, but still peri menopause, so at 42, that's a good thing. Once you've not had a period for a whole year, you are then post menopausal.

If you become post menopausal before the age of 45, then it's good to read up about osteoporosis.

Pepperminty is right to read up and then you are informed to be able to decide.

In case you're wanting to stop the hrt, I can highly recommend Marilyn glenville's website. I am following her guide on natural menopause and it's working for me.

All the best. X
« Last Edit: August 23, 2019, 08:16:20 AM by Jari »
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Hurdity

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #9 on: August 23, 2019, 08:04:23 AM »

Hi Kelly909

 :welcomemm:

First of all so sorry to hear about your mum - especially as I am that age....it's the news one dreads with so many friends getting cancer in their 60's. Do hope her treatment goes well.

The general advice I understand is that it is early breast cancer that is more of a cause for concern genetically, rather than at your mum's age? Also as a rule of thumb, provided there is no genetic risk ( of early bc in close relatives), the years taking HRT do not count risk wise until you reach at least the natural age of menopause which is 51/52 as your body should be getting it anyway. Then you start counting years. As the others have said it is not a simple matter anyway re risk and causality.

When was your last period? You are very young to have gone through menopause if your last period was 12 months ago or more or if your periods are few and far between and the risks to general health and mortaility may be greater from an early menopause than the risk of bc. Therefore the benefits of HRT in your position may well outweigh the risks. I can understand your worry though.

You haven't mentioned your lifestyle at all and the one thing you can do to reduce your risk of many cancers is optimise this. That is - make sure you are not overweight - get to healthy BMI - much higher risk of cancer with too much body fat. Take plenty of exercise, reduce stress, get enough sleep, reduce alcohol, stop smoking ( if you do!) and above all eat good varied healthy diet ( low sugar, low fat, reduce processed foods) with plenty of fresh ingredients and tons of fruit and veg. Make sure you are not deficient in any nutrients. Think about vitamin D - get out in the sunshine for a time all year round without sunscreen (without burninbg of course!). Eat lots of oily fish etc. Take a cod liver oil supplement for vit D if you're not doing the above....if you have digestive problems then take extra vits and minerals as absorption can be affected.

If after all this you cannot take HRT or decide due to your history not to - then there are other meds you can take for hot flushes and sweats although I would really see if you can replace oestrogen for a few years at least.

These meds are anti-depressants or blood pressure medication and some others. There was a paper produced a couple of years ago which was open access and now no longer. Called "Consensus statement for non-hormonal-based treatments for menopausal symptoms". I think Venlafaxene was the most recommended? At a later date I can find the paper (which I downloaded) and print an extract for you if necessary?

Hope this helps :)

Hurdity x
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CLKD

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #10 on: August 23, 2019, 08:09:26 AM »

How do they know it's oestrogen dominant? 

My Mum had a diagnosis at age 65 and a mastectomy.  No other treatment.  She's now 92!  Her cancer was different to mine.

Let us know how you get on!  Will her Surgeon be yours? Might be worth while sharing information.
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Kelly909

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #11 on: August 23, 2019, 09:54:41 PM »

Again thanks all so much. Finally got a few days off work so I'm going to look at all these sites and read up. I spoke to a doctor and a gynae specialist today and the advice was polar opposite from both.
Herdity that paper sounds really interesting if you do find it, although  may be able to access it if you denver the author/name?
Thanks again all for such helpful and informative replies. It's pretty overwhelming all this isn't it?
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Kelly909

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #12 on: August 23, 2019, 10:13:45 PM »

Sorry I've just spied the article name Hurdity so I'll have a dig x :o
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Hurdity

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #13 on: August 24, 2019, 07:41:22 PM »

Did you manage to find the article? It's so annoying we can't post attachments on this forum!  I have the paper but it;s pdf so difficult to reproduce and the format gets lost. I can just copy and paste but it will come out in odd format....tell you what I'll paste it on a new post so that it doesnt mess up this one of yours....

Hurdity x
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Wrensong

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Re: Terrible timing. Hrt and new family breast cancer
« Reply #14 on: August 24, 2019, 08:15:47 PM »

Hi Kelly, I'm so sorry to hear about your Mum's diagnosis.  What a very worrying time for you all & very poor timing for you, though at least you don't have the additional worry of having been on HRT yourself for any significant length of time. 

It's generally thought that when family members are diagnosed postmenopause, the cancer is unlikely to be genetic, but many doctors still advise against taking HRT if a first degree relative has had BC.

I agree with the other ladies' advice to read up as much as you can to become well informed, so that you can have more confidence in whatever you decide to do.  I second Pepperminty's suggestion of getting hold of Oncologist Avrum Bluming's book Oestrogen Matters.    He has spent many years treating breast cancer patients & his wife & daughter both developed the disease, so he was motivated to put all the relevant research under the microscope & has come to some reassuring conclusions about HRT & breast cancer.

As you have only just started HRT yourself, you should not get withdrawal symptoms from discontinuing now, so this may be your wisest course of action to reduce additional worry while you learn more about your Mum's situation & take time to research the field.

I wish you both all the best & hope you get sympathetic advice from any medics you consult to help you make your choices.
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