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Author Topic: Peeing 😣  (Read 4649 times)

PompeyLou

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Peeing 😣
« on: August 01, 2017, 12:01:29 AM »

Hi
Does anyone else experience stinging in their bladder when it's full.. a bad back when it's full... and constantly peeing!!
I'm trying to sleep and every time I come back from the toilet and lay back down I need to go again :-\  :'(
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daisysareyellow

  • Guest
Re: Peeing 😣
« Reply #1 on: August 01, 2017, 03:23:55 AM »

Hi
I suffer from Interstitial Cystitis. Please get checked for this if all your tests come back negative.
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Maryjane

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  • Posts: 1612
Re: Peeing 😣
« Reply #2 on: August 01, 2017, 05:29:57 AM »

Firstly infection , then look at PFD pelvic floor dysfunction .....an intravaginal scan may be appropriate also , lots of what ifs and maybes.

There's a new body of scinentists who do not believe in IC , and believe it's an embedded infection in the bladder wall , which is wing looked into I also believe this to be the case , in my non medical opinion . IC is an umbrella term for a painful bladder not a diagnose of cause.
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daisysareyellow

  • Guest
Re: Peeing 😣
« Reply #3 on: August 01, 2017, 06:35:30 AM »

I had a cystoscopy and the Hunners Ulcers were present. My case was obvious, but only 10% of sufferers have physical signs.
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daisysareyellow

  • Guest
Re: Peeing 😣
« Reply #4 on: August 01, 2017, 06:39:19 AM »

Firstly infection , then look at PFD pelvic floor dysfunction .....an intravaginal scan may be appropriate also , lots of what ifs and maybes.

There's a new body of scinentists who do not believe in IC , and believe it's an embedded infection in the bladder wall , which is wing looked into I also believe this to be the case , in my non medical opinion . IC is an umbrella term for a painful bladder not a diagnose of cause.

I should add that I am paying $124 per month for the drug Elmiron which is only effective against IC. Are you saying you believe IC doesn't exist???? It took 5 years to get my diagnosis and I have the Hunners Ulcers to prove it. I don't know whether to laugh or cry when people doubt IC.
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daisysareyellow

  • Guest
Re: Peeing 😣
« Reply #5 on: August 01, 2017, 06:51:54 AM »

Firstly infection , then look at PFD pelvic floor dysfunction .....an intravaginal scan may be appropriate also , lots of what ifs and maybes.

There's a new body of scinentists who do not believe in IC , and believe it's an embedded infection in the bladder wall , which is wing looked into I also believe this to be the case , in my non medical opinion . IC is an umbrella term for a painful bladder not a diagnose of cause.

Can you name the scientists who do not believe in IC? My brothers are doctors (Associate Professors) and urologists are taught all about IC as part of their speciality. A simple google search would have told you all you need to know.
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PompeyLou

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Re: Peeing 😣
« Reply #6 on: August 01, 2017, 08:28:47 AM »

I did do a Google search 1st.. the only reason I asked was because I wasn't sure  if it was a menopause symptom or not. :-\
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daisysareyellow

  • Guest
Re: Peeing 😣
« Reply #7 on: August 01, 2017, 08:39:56 AM »

I did do a Google search 1st.. the only reason I asked was because I wasn't sure  if it was a menopause symptom or not. :-\

Sorry PompeyLou
That was not directed at you.  I get frustrated when people query an IC diagnosis.  It takes so long to get diagnosed and we go through hell!
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Maryjane

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  • Posts: 1612
Re: Peeing 😣
« Reply #8 on: August 01, 2017, 08:42:39 AM »

Yes there is evidence on the very edge of science re IC and an embedded bio-film infection that burrows deep into the bladder wall , I also come under the heading of IC.

Professor James Malone - Lee I will put up some info later if I can get it onto here , science is always moving forward regards new findings with anything .

Just need to remember Professor Marshall regarding stomach ulcers , always told stress diet , he had to infect himself and prove it was a bacteria that we all now no as h-pylori bacteria , he was as good as shot down by the establishment, I  no many ladies who were told they had dreadful IC some bed bound , it proved to be infection.


We are also prone to UTIs yes as we age , due to lack of oestrogen.
« Last Edit: August 01, 2017, 08:45:14 AM by Maryjane »
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PompeyLou

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Re: Peeing 😣
« Reply #9 on: August 01, 2017, 08:57:10 AM »

That's ok.. I'm just very touchy and emotional lately.. take every thing to heart...
My doctors are useless.. I've had to ask for a scan of my womb as I was told when I had my ovaries out that because I was taking Livial I needed my lining checked regularly.. well that was 2 years ago! I've felt so tired lately and now with this stinging and pain I know something is not right... if I had the chance I would sleep all day as I have no energy what's so ever.
By doing a ultra sound of my womb could they tell if there is something wrong with my bladder.
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daisysareyellow

  • Guest
Re: Peeing 😣
« Reply #11 on: August 01, 2017, 09:00:05 AM »

Maryjane, Everything you have just said has been proven false. I had every test under the sun including trans vaginal ultrasound and all was negative. I did have Hunners Ulcers in my bladder which is the physical manifestation of IC . Elmiron only treats IC and I had relief after 5 years once I started it. I was tested for all manner of bacteria and it was all negative. Urologists treat IC sufferers all over the world.
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daisysareyellow

  • Guest
Re: Peeing 😣
« Reply #12 on: August 01, 2017, 09:05:56 AM »

That's ok.. I'm just very touchy and emotional lately.. take every thing to heart...
My doctors are useless.. I've had to ask for a scan of my womb as I was told when I had my ovaries out that because I was taking Livial I needed my lining checked regularly.. well that was 2 years ago! I've felt so tired lately and now with this stinging and pain I know something is not right... if I had the chance I would sleep all day as I have no energy what's so ever.
By doing a ultra sound of my womb could they tell if there is something wrong with my bladder.

Are you prolapsed at all? This can sometimes affect urinary urge/frequency? I know how it feels to have bladder issues and it wears you down. Can you be refered to a urologist?
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PompeyLou

  • Guest
Re: Peeing 😣
« Reply #13 on: August 01, 2017, 09:10:41 AM »

I wouldn't have a clue..i just feel I'm trying to cope and understand this on my own.. doctors haven't got a clue! Husband can't or won't understand!... I've emailed my gynocolagist who I've not heard from in 2 years to see if she can help... but nothing back.
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Maryjane

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Re: Peeing 😣
« Reply #14 on: August 01, 2017, 09:13:22 AM »

It's really fine , I am going to leave it and not commmet anymore .

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