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[DaisyB]

Yes Mrs B - i put my mum and dad on Benenden membership with me. So they will fund hers also - I was able to find a new place here and explained about both of us being claustrophobic- but the new equipment is like a large donut so you are not enclosed.  Waiting for mum's referral letter before arranging - she'd feel better having me there and I'm not so panicked now so happy to wait a few days    also booked couple of cottages in south of Ireland. So we can all go away for a week in July - but if anything goes wrong with them I can get them back quickly. So far so good  

[Elizabethrose]

Daisy, I had one done 2 weeks ago and am slightly claustrophobic. Hot tip, wear an eye mask so you won't be tempted to have a peek!! And hum!!  Hope all goes well for you x

[DaisyB]

Hasty just found out today that GP made referral to neurologist for MRI. So I have to attend that first. First appt end of month - but now I'm not anxious! I spoke to Claire Snowdon Darling and some of the lovely replies here - and also doubled estrogel. So somehow the anxiety has withdrawn ( for the time being) and I'm just going to rest easy until my appt. GP didn't say what was to be scanned so not sure x ER they give you fancy glasses that are mirrored makes you feel like your looking outside I think? Good that they specialise in claustrophobia x 

[Annie0710]

I've had 2 brain MRIs , and miraculously my brain was found lol

First one I had a periscope type thing and 2nd one I had goggles, both times the guy let me choose the genre of music for the supplied headphones

[DaisyB]

 

[daisysareyellow]

Hi Daisy
I have been reading this thread with interest. A bit off topic, but an example of how symptoms can occur and how their explanation can be so strange sometimes. I had been on Topamax for my menstrual migraine for 5 years. I was loving it because it had reduced my migraines and was also causing weight loss (which is a happy side effect of Topamax). Anyway I started to develop a tremor in my left hand and twitching in various parts of my body. These are not good symptoms to have, especially when you are in you late 40's. I had been on Topamax for 5 years at this stage, so nobody put the symtoms together with the medication. Luckily my GP looked up some of the rarer symptoms of Topamax and decided to try and wean me off it for a while. As soon as I had been weaned off completely, all the twitching and tremors stopped. When I resumed the Topamax, they started up again. I had to come off permanently after that and I am now on Relpax. I had convinced myself that I had a terrible neurological disorder like MS or maybe MND. The even scarier part for me was that we do have a very rare degenerative disorder in our family and I had completely convinced myself that I was in the grips of some terrible neurological disorder.

[DaisyB]

Daisysareyellow - nice to hear from you. Yes it has been a scary 6 months - to put it mildly! But I am now able to deal with the symptoms much better as the anxiety is reducing. Still to have an MRI but feel great otherwise. I have doubled the daily estrogel and have started working with a kinesiologist ( recommended by edelweiss in forum) i feel things starting to turn around - and am so grateful. I still get pins and needles - numbness in odd fingers etc but I honestly don't notice it any where near as much as I was. So I'm guessing the panic attacks and severe anxiety were exacerbating all the symptoms.  Welcome to the forum by the way