Please login or register.

Login with username, password and session length
Advanced search  

News:

Menopause Matters magazine ISSUE 76 out now. (Summer issue, June 2024)

media

Pages: 1 [2]

Author Topic: No ovaries? Struggling to raise HRT? Please have your thyroid checked.  (Read 6725 times)

abbyH

  • Guest
Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #15 on: November 18, 2016, 10:38:12 PM »

oh no!
Well, I can't get referred, my GP has been adament I have no thyroid issues whatsover!
can you give me a name?

Logged

dahliagirl

  • Member
  • *
  • Posts: 1523
Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #16 on: November 18, 2016, 10:54:23 PM »

I had TSH of 2.1 and T4 of 15 in 2001 when I was TATT and depressed.  Given sertraline (never again!!!!)
I had TSH of 2.63 and T4 of 14.1 in 2014 (which I discovered recently as I can look at my notes online - never knew the test was taken)

I thought they were bang in the middle of normal - so not?
Logged

Hurdity

  • Member
  • *
  • Posts: 13941
Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #17 on: November 18, 2016, 10:55:14 PM »

This is all very interesting - the interaction between thyroid function and oestrogen and ovarian function. I don't know anything about the normal relationship and physiology of the interaction, so if you have any links to papers on it Joesmum I would be interested to read them. The only link I have read about ( although I must say I haven't searched) - is when taking oral oestrogen because it can lower the amount of thyroid hormone available - (but sounds pretty complicated and requires an understanding of endocrine function and all the feedback mechanisms!) and therefore those taking thyroid meds and oral oestrogen may need to get their thyroid levels checked regularly especially when starting oral HRT.

Re the doctors babyjane - from what I've read thyroid function seems to be not well understood nor treated - but if results are within the reference range it seems nothing can be done on NHS. What seems to be being discussed here is asking for treatment when results are within the ref range but not ideal and perhpas symptomatic (apart form Abby H with antibodies - can't udnerstand why this isn't being treated as Hashimoto's?) and a lack of acceptance that normal for some may be abnormal for others. Presumably also when there are limited funds - what constitutes a condition needing treatment. In your position presumably as you say you were diagnosed as hypothyroid your levels were outside the normal range and therefore treatment would automatically follow without problem.

What I do find strange (and I have said this before in response to your post on this! - Where have you been by the way - don't think you're posted for a while???) - is that there is a discrepancy between TSH levels at which treatment is deemed necessary when underactive thyroid is diagnosed, and the levels at which someone with underactive thyroid such as yourself are said to be ideal. ie above 4.5 TSH treatable. Ideal with treatment below 2.5 feeling best between 1 and 1.5. What about those of us whose level is over 2.5 as mine was last measurement - almost 3? We just get on with it? I mean we are not ill but definitely not functioning as well as we could be - and how much of this should we put down to age (I am in my 60's)? Can we reasonably expect our hormones to be tweaked and topped up into our 80's with a cash-strapped NHS?

Sorry this is a bit off topic or at least at a tangent to the original post but is an important one I think for many women - and I think if the whole thyroid thing was treated properly as it should a lot more women would be slimmer, less tired and jumping about - but it would cost a lot of money I expect!

I do think all women who have gone through surgical menopause should automatically be referred to gynaecologists and endocrinologists though!

Hurdity x
Logged

Maryjane

  • Member
  • *
  • Posts: 1612
Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #18 on: November 19, 2016, 07:48:27 AM »

I went to a lecture at Loughborough university on Thyroid and B12 and how the " within ranges " are just that and GPs etc to THINK outside the box as if you have symptoms of either of those two conditions ( or any others ferritin etc ), and you are at either end of the within range then common sense says to trial whatever medication , this would probably save money re constant GP trips days off work etc.

The NHS Professor talking about thyroid says there is clinical evidence that these patients need treating , and the GPs etc need to listen to there patients , this professor said the NHS testing for thyroid is missing so many , and a trial she was part of probes that ALL patients in the inrange but with obvious thyroid symptoms ALL improved when treated with medication.

The data is out there but it was done with her and a leading thyroid specialist, who died before the paper could be published as it is the only one of its kind worldwide and there are lots of procedures to go through to be able to get it published.

I showed her my results and symptoms and she said I need treatment but the NHS won't , so another private appointment.

The discussion on B12 deficiency was equally exasperatingly infuriating, regards my husbands health who is now back at the gym 3 times a week after 4 years away and was heading for early retirement and a wheelchair.

I can almost guarantee that most ladies on here will have thyroid , ferritin , vitamin D and B12 as a starter deficiency.

The witnin ranges are to big and set far to low , we should all be at optimal range for us to fire on all four cylinders, and antidepressants are just dished out instead.

My ferritin is 9 was 6 got to 19 GP said great stop taking iron ( that's in the days I listened to GPs) , back down to 16 and now 9 , for proper hair growth the body functioning it should be a minimum of 30 ( as per a NHS professor of heamotology) and 80 to be firing on all cylinders , the private sector ( baring in mind most work for the NHS also ) like to see it at 60/80.

They will tell you that all the ranges are set to low , however the NHS is broke ......but these are really quite cheap to sort out and I bet in the long run would save money regards people being sighned off work , various hospital visits etc etc.

My hubby had 3 a&e visits , a night on a stroke ward , a brain scan , MRI , three consultant appointments ( we were told on two occasions we should have called an ambulance) , the odd week or two off work , the list goes on.

Then told nothing we can do STRESS, private bloods showed his B12 was on the floor not even with in range , the testing and treating and teaching of B12 deficiency has got lost at med school , and all these people being put on PPIs they deplete your B12 even further.

So the NHS is AMAZING for emergencies cancer, stroke etc and we are incredibly lucky to have it , however some thinking outside the boxes need to be done , as one Professoer has said GPs are scientists who stop thinking when they are qualified.

Rant over , I will dig out the thyroid stuff if Hurdity is interested , it was only done in captions however regards a way of following the lecture , as it was mostly for healthcare professionals as part of ther CPD ( think that's the term ) with a few like me.

As a aside there was a NHS microbiologist there who's antibodies where 2,500 extremely ill signed off work for 6 months ( NHS money ) who's GP wouldn't help as the other parts of her test where in range , she self treated and back at work HOWEVER the GP still won't treat her.

She also said the ranges are all set to low and no one is thinking outside the box.
Logged

abbyH

  • Guest
Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #19 on: November 19, 2016, 10:08:57 AM »

Thanks that is so helpful..
We should all be able to advocate for our health..
Keep up the good work everyone.

Abby x
Logged

babyjane

  • Guest
Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #20 on: November 19, 2016, 02:05:51 PM »

Hello Hurdity, yes, when I finally had blood tests done my GP rang me the following evening to explain what was wrong as my TSH was 52!  Over the next 18 months I was started on thyroxine and the dose increased but I never felt better.  Eventually I was taking 250mcg thyroxine and has a FT4 of 26 but I still had hypothyroid symptoms.  That's when I was referred and I am in the 15% sub group of thyroid patients who cannot convert T4 to T3 properly.  Since I have been on the combination and with my current endo I am more stable that I have ever been over the last 10 years.

I wish all thyroid patients could receive good care.

Once upon a time I wrote a letter to a well known women's magazine about my experiences and they contacted me to do an article about thyroid issues which I was glad to do.  Over the next 6 months after the magazine article was published, the magazine's editorial department forwarded to me a total of 130 letters that had been sent in in response to the article.  It was heartbreaking to read so many sad stories of women not being given treatment properly.  I replied to as many as I could but could do nothing to help them really or give advice except to point them to Thyroid UK.
Logged
Pages: 1 [2]