Hello Sparkle. Hah, I love the names people chose on this site! Thanks for your response.
I feel so sorry for you, migraine is an appalling condition which is so misunderstood. I'm so very very sorry to hear about your sister too - of course that would make you panic. The pain with some migraines is so bad that you feel that it is going to kill you, that you can't possibly survive it. Could I ask, have you seen anyone other than your GP about your migraine? I ask because in my own experience some GPs have a cursory understanding of migraine whilst others a wealth of knowledge. It's pot luck really. My migraine was first diagnosed by a GP whose mother had suffered in exactly the same way as me and she recognised the symptoms. I had previously assumed that my migraine was sinus related which was confirmed by another GP at my practise. I have been told by a neurologist and a migraine specialist that migraine/sinus are one of the most misdiagnosed conditions.
I ask too because I had previously been prescribed an opiate (dihydracodeine) for a painkiller which caused horrible sickness and tummy upset. Prof Anne MacGregor (who is incidentally absolutely brilliant) explained that opiates should be avoided in migraine as the stomach goes into stasis and this is irritated by opiates. I can't possibly recommend you take any particular medications, you must take advice from your GP on this, however let me tell you what I take and what is the only thing that does and has ever worked for me, and believe me I've tried so many things.
Frovatriptan is the best triptan for treating menstrual migraine apparently as it best manages the horrible rebounds that are so common with menstrual migraine, plus it has a long half life. It is my absolute life saver! Sumatriptan didn't do a thing for me, it was like I'd taken a smartie and I tried it in tablet, injection and can't remember but another form (possibly inhalation -sorry it was a long time ago).
You have to wait until the headache stage of migraine starts, so after aura and prodrome stages, before you take it but take it immediately you feel the headache starts. To be honest probably 80% of my migraines I wake with so the early stages are missed when I'm sleeping. At the same time I insert a Diclofenac Sodium suppository. These are an NSAID and by using them in suppository form you are able to bypass the stomach which is in stasis and unable to process the meds easily.
The combination of these two drugs is my lifeline. Depending on whether the migraine is a fast moving bat out of hell or a slow burner which builds gradually, will effect how quickly the drugs work. Sometimes they work better than others.
Have you also heard about cluster headaches - was that considered at all?
I mentioned on one of my posts that some of my migraine symptoms are so weird that I have sometimes questioned my sanity, An hour and a half with Anne MacGregor was the best move I ever made. She's heard it all before and is a font of knowledge and probably the most reassuring person I've ever met. If you haven't seen a specialist - could you ask to be referred to someone?
Please don't be offended if I've offered advice unasked. After all of these years I still get people making suggestions to me - 'have you tried sucking polo mints twice a day, works wonders for migraine' !!!!!
I do hope you find some relief, I feel really badly for you, I wouldn't wish migraine on anyone!
All good wishes to you.