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[oldsheep]

good luck with the scans Tabbycat. Hope you don't have to wait too long.

[Tabbycat]

So far, I've had an MRI (which was like listening to really bad techno music), a nerve conduction test and an EMG (electric shocks - very weird). At the end of the month I'm having a datscan (this shows whether your brain is producing enough dopamine).

I'm back on the ADs for anxiety and am feeling a little calmer but still worried.

[GeordieGirl]

The main reason I take oestrogen is for the muscle spasms. Like you I thought it was stress related but then when I managed to minimise the stress, the aching and tight muscles still remained. I have a break of 5 days each month and start to feel a little achy by the end of it all.

I do hope it's oestrogen related for you as that's an easy one to resolve, possibly by tinkering with your dosage. If not, at least they're doing all the tests and will be able to get a handle on it all soon. The vast majority of these things tend to be resolvable / manageable.

GG X

[Tabbycat]

Thanks GG, I do hope it is hormone related. I'm not on HRT at the moment but I had these symptoms while I was on it.

[Tabbycat]

Well, after months of tests and scans, I've been diagnosed with Parkinson's Disease - exactly what I thought I had a year and a half ago (GP told me I was "too young" and that I was just anxious).

Despite thinking I've had it for so long, it's still come as a nasty shock and I feel numb and panicky. Not helped by my changing my ADs recently (so, I'm really anxious too).

[Dancinggirl]

Oh Tabbycat - I am really sorry to hear about your diagnosis.
You've had just a dreadful time trying to get a diagnosis in the first place - why, oh why won't doctors listen.
I do hope they can offer some treatment and support now.
Keep posting.  DG xxxx

[Cazikins]

Oh Tabbycat I am so sorry to read this, I know you have been looking for an answer for such a long time.
At least you now know what it is & can put a name to it (if that makes sense).
Thinking of you & please keep in touch.
Love Cazikins x

[Tabbycat]

Thanks everyone, it really helps being on this forum and knowing how sympathetic and caring everyone is. We're all on different journeys and they're all tough!

I've been given some meds - ironically, patches. (Useful information on the accompanying leaflet includes "where to stick the patch" - I know what I'd like to suggest .)

This will make you laugh: one of the side effects of the meds is "uncontrolled excessive shopping or spending." Talk about the perfect excuse...

Sparkle, I've been referred to a specialist clinic (four months' wait ) so in the meantime I guess I'll just go shopping!

(Can you tell I've been at the wine? No-one's told me I can't have wine.)

[Cazikins]

How are you doing Tabbycat?
I don't get on here very often these days so just catching up with things.
Hope things aren't too bad for you.
Cazikins x

[Ju Ju]

Just caught up with this thread. I'm so sorry about your diagnosis and hope you get loads of support. If you need any help shopping............. . Your sense of humour is wonderful.

[Kathleen]

Hello Tabbycat.

I am also just catching up with this thread and I wanted to send you hugs.

I am pleased to see that you are now getting the correct treatment and of course the search for a cure continues.

Wishing you well and keep posting.

K.

[Tabbycat]

Sorry, I haven't been on here for a while so only just seen your posts. Thanks for the hugs and good wishes.

Well, the patches were useless. They seriously disrupted my sleep (I woke up once an hour, every night) so by the end of the first week I was exhausted and could barely function. I stuck with them for another couple of weeks but it got no better - and I put on 3kgs! They didn't help my symptoms much either. And sadly, no sign of the excessive shopping. (Probably because I had no energy for it!)

I went to my GP but she couldn't help - this is specialist medication, apparently, and not something she knew anything about. Apparently I should have been registered (I don't know by whom) with a Parkinson's nurse but I wasn't, so now I have to wait for her to get in touch with the clinic where I was diagnosed, and for them to respond.

It's just a good thing I'm not (yet) too debilitated, although it's a struggle sometimes.