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Author Topic: Worrying scan results  (Read 304 times)

Pqow

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Worrying scan results
« on: July 26, 2024, 09:22:09 PM »

I had a scan yesterday and dr has called today to say I’m being referred on an urgent pathway. Obviously I’m very worried.
The scan says my endometrium was 16mm with a coarse texture, areas suggestive of cysts and areas suggestive of polyps. Nothing in one ovary, couldn’t see another. No free fluid.

Ive been on HRT for two years on and off because of heavy periods. A tiny bit of gel and progesterone but because of heavy bleeding the dr replaced this with continuous protocol HRT as she said I was probably not doing any bleeding naturally and it was a withdrawal. The continuous HRT made me bleed heavily every two weeks so I requested a scan to rule out anything. I stopped HRT altogether at the end of June as I couldn’t cope with another period and work at the same time. I’ve had no menopausal symptoms since stopping (I did expect hot flushes etc)
I’m thinking my womb lining might have thickened ready to bleed but no bleeding yet. I don’t know if I’m bleeding naturally or HRT related.

Any reassurance would be good, I’m panicking a bit now about cancer. Thanks.
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Pqow

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Re: Worrying scan results
« Reply #1 on: July 26, 2024, 10:44:58 PM »

Any advice? I just can’t sleep…
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joziel

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Re: Worrying scan results
« Reply #2 on: Today at 12:56:45 AM »

Try not to worry. They refer soooo many people via this urgent pathway. It’s just protocol for a thickened lining but the vast majority of time it’s just that and nothing more. They just have to check it out.

They might offer to fit a Mirena whilst they have a look so consider that. It will thin the lining and stop all bleeding and you could restart estrogen…

If you search in the box on this forum you’ll see loads of accounts of women referred urgently due to thickened lining and it’s very rare for it to be anything serious.
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Pqow

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Re: Worrying scan results
« Reply #3 on: Today at 03:38:21 AM »

Thank you. I’m wondering whether to restart the HRT as I probably don’t have enough natural progesterone for a bleed. And if it’s thickened in a few weeks it might be better to have a bleed. Does anyone think this would be a good idea?
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Jules

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Re: Worrying scan results
« Reply #4 on: Today at 07:31:33 AM »

What did your doctor advise? Mine told me to stop all HRT treatment until I'd had my appointment but they all give different advice and mine was for a different issue. Are you able to ask?
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sheila99

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Re: Worrying scan results
« Reply #5 on: Today at 07:39:32 AM »

If you wanted you could take progesterone to thin it down, either sequi or conti. If you don't need the oestrogen you could stay off that so you don't build it up further. Assuming you get an appointment in 2 weeks whatever you do now won't make a lot of difference.
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Pqow

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Re: Worrying scan results
« Reply #6 on: Today at 10:30:55 AM »

What did your doctor advise? Mine told me to stop all HRT treatment until I'd had my appointment but they all give different advice and mine was for a different issue. Are you able to ask?
My GP didn’t say anything about HRT and I was a bit in shock to ask. I might call on Monday.
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Pqow

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Re: Worrying scan results
« Reply #7 on: Today at 10:32:29 AM »

If you wanted you could take progesterone to thin it down, either sequi or conti. If you don't need the oestrogen you could stay off that so you don't build it up further. Assuming you get an appointment in 2 weeks whatever you do now won't make a lot of difference.
I was wondering if it might be thick because I haven’t now had a bleed for a few weeks. I just don’t know what to do and of course I can’t help thinking it’s serious.
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Pqow

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Re: Worrying scan results
« Reply #8 on: Today at 10:33:25 AM »

I also feel very oestrogen dominant, sore breasts etc. But that also might be because a bleed would be due.
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Jules

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Re: Worrying scan results
« Reply #9 on: Today at 10:35:08 AM »

What did your doctor advise? Mine told me to stop all HRT treatment until I'd had my appointment but they all give different advice and mine was for a different issue. Are you able to ask?
My GP didn’t say anything about HRT and I was a bit in shock to ask. I might call on Monday.
Actually my doctor didnt say either. It wasn't till I requested a repeat prescription and they wouldn't do it. By then I'd about 5 days to my appointment so pretty pointless stopping
« Last Edit: Today at 01:17:58 PM by Jules »
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Pqow

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Re: Worrying scan results
« Reply #10 on: Today at 10:47:21 AM »

If you wanted you could take progesterone to thin it down, either sequi or conti. If you don't need the oestrogen you could stay off that so you don't build it up further. Assuming you get an appointment in 2 weeks whatever you do now won't make a lot of difference.
I have some Utrogestan in the cupboard, I could take that.
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Mary G

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Re: Worrying scan results
« Reply #11 on: Today at 03:31:02 PM »

I would take a massive dose of progesterone to provoke a good bleed.  The Utrogestan should be OK used vaginally but I would be inclined to order some norethisterine online because it's a very strong, synthetic progesterone that will strip the womb lining.

I think you will find you just need a good clear out.
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Pqow

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Re: Worrying scan results
« Reply #12 on: Today at 04:48:51 PM »

I would take a massive dose of progesterone to provoke a good bleed.  The Utrogestan should be OK used vaginally but I would be inclined to order some norethisterine online because it's a very strong, synthetic progesterone that will strip the womb lining.

I think you will find you just need a good clear out.
Even with the cystic/polyp areas?
I have been bleeding every two weeks on Evorel Conti but ‘periods’ have been short 2/3 days but violent. Then stop abruptly. Dr told me it needed 6 months to settle but I stopped all HRT after about 2.5 months as it was just too much.

Thanks for your help, I am honestly going out of my mind here with worry. I do have anxiety which doesn’t help. It helps to chat to others, thank you.
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Mary G

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Re: Worrying scan results
« Reply #13 on: Today at 06:04:12 PM »

The womb lining is often between 16-18mm just before a bleed and it should go down to about 3-4mm immediately post bleed.

Evorel conti contains norethisterone so I'm surprised you have not been been shedding properly.  It could be that you are producing some of your own oestrogen which is causing build up?  Oral norethisterone might be worth a try and it won't do any harm.

Polyps are very common and you might need to have them removed but it could be that the womb lining build up is a separate issue.  Polyps are rarely dangerous.

It's good that you have had a scan and I wonder if they may even suggest a Mirena coil? In my opinion all women should have regular transvaginal scans irrespective of HRT use.

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Jules

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Re: Worrying scan results
« Reply #14 on: Today at 06:12:43 PM »

I would take a massive dose of progesterone to provoke a good bleed.  The Utrogestan should be OK used vaginally but I would be inclined to order some norethisterine online because it's a very strong, synthetic progesterone that will strip the womb lining.

I think you will find you just need a good clear out.
Even with the cystic/polyp areas?
I have been bleeding every two weeks on Evorel Conti but ‘periods’ have been short 2/3 days but violent. Then stop abruptly. Dr told me it needed 6 months to settle but I stopped all HRT after about 2.5 months as it was just too much.

Thanks for your help, I am honestly going out of my mind here with worry. I do have anxiety which doesn’t help. It helps to chat to others, thank you.

I know exactly how you feel though it was a different problem. Your mind goes wild and the anxiety can be crippling. We jump to the worse case scenario straight away and ignore all the other possible less serious and sometimes more obvious causes. I think it is natures way of preparing us for threat and to keep us on our toes so that we check worrisome things out but it becomes a problem when its out of control. I'm sure you will be okay. The time comes around quickly and once you actually go I found I wasnt anywhere near as anxious or nervous as I had been.  Personally I wouldnt do anything medication wise unless Id checked with my doctor though.
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