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[redandpinkstripes]

I had a hysterectomy 5 months ago for Adenomyosis/fibroids. They now think I have Endometriosis as my pain has flared up since starting hrt. I'm on Tibolone but I'm still in so much pain. Has anyone had experience of this and have they found sequential hrt better? I don't think the Tibolone is strong enough. The specialist has suggested I stop hrt but there is no way I can, as the menopausal symptoms were brutal.

[CLKD]

 

How were your periods over the years? 

'they now think' - is this via examination under GA or simply 'this might be ......... ' because 'they' don't know!

hopefully some1 will be along with advice. 

[redandpinkstripes]

My periods have always been very painful and heavy. Ultrasounds always clear, so I just assumed it was how they were meant to be My pain reactivated after starting hrt, exactly the same as it did last year when I went on add-back hrt when on Prostap. I have so many symptoms of Endo but my laparoscopy was dine by a general gynae. I've been referred to a specialist bsge one now. It's just so frustrating to be as bad as I was post op. I have to make a decision between pain or my mental amd overall health xx

[bombsh3ll]

What dose of tibolone are you on? It comes in 1.25 and 2.5mg.

Tibolone can work well but in my opinion a combined HRT with a strong progestogen is probably better if there is significant endometriosis as tibolone is slightly less suppressive of endometrial tissue than a potent progestin.

You don't want to be on any kind of cyclical preparation - these are designed to induce bleeding, and although your actual uterus is gone, any endometriosis deposits in the pelvis will proliferate and bleed too on this, which is painful.

[sheila99]

If you use a separate oestrogen and progestogen you can increase the progestogen until the endometriosis is under control. As above, continual progestogen would be a better option than cyclical. I don't have if myself but someone on here uses 300mg utrogestan daily to keep it under control.