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Author Topic: New member.. hello :)  (Read 117 times)

Moonstone

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New member.. hello :)
« on: July 15, 2024, 05:20:31 PM »

Hi.  I've just joined so thought I'd pop in here to introduce myself :)
I'm about 2yrs into the beginning of peri-meno. A month ago started Evorel and Gepretrix - 2 weeks of Progesterone and 2 weeks off.
I've had several issues since starting this and am currently reducing the Evorel patch (by cutting it in half) to wean off it. Have already stopped the Progesterone on day 5 of the 2nd month. I am hugely concerned it's causing me seizure-like episodes. I've had 3 so far and numerous secondary episodes of erratic/fast heartbeat and lightheadedness.
I am truly frightened at the moment, and I'm not someone who gets frightened.. especially about medical things.
I did see a GP the first time the episodes happened: she doesn't think it's anything to do with HRT - has never seen or heard of anything like it before. She advised me to go to A&E the next time it happened. I did on the 3rd episode but was treated so badly, basically the Dr in A&E told me I was a woman of a certain age (51) and going through meno and all this was due to that and all in my head.
I worry about coming off HRT, so I'm going to reduce the patch over the next couple weeks by half each time I change it. I hope that won't cause any other issues on top of what I already have.
Am hoping there will be some nuggets of wisdom here to do with alternative options as perhaps that would be best for me.
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jaypo

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Re: New member.. hello :)
« Reply #1 on: July 15, 2024, 06:19:36 PM »

Hi and welcome to the forum.
What were your seizures like exactly? Erratic heartbeat and palpitations are par for the course in menopause.
Disgusting behaviour from A&E and somewhat patronising too  >:(
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Moonstone

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Re: New member.. hello :)
« Reply #2 on: July 15, 2024, 09:24:42 PM »

Hi and welcome to the forum.
What were your seizures like exactly? Erratic heartbeat and palpitations are par for the course in menopause.
Disgusting behaviour from A&E and somewhat patronising too  >:(


Hi Jaypo. Thank you :)
The episodes are always at night (about 3 hours after the Progesterone pills).  I get fidgetty, my arms and legs stop working (ataxia), I can't raise them up, can't walk etc. My speech slurs as if drunk (I don't drink), I 'phase' out.. I go blank and my husband can't get a reaction from me.  I also lose memory of the event.  It's very frightening. The other issues with erratic heart etc I wonder maybe anxiety attacks (never had one before this trip to A&E), so I think the issue with these seizure-like events has caused me anxiety which is showing itself now :(
Its these events that my GP says she's never heard of in relation to HRt or meno. 
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jaypo

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Re: New member.. hello :)
« Reply #3 on: Today at 11:12:39 AM »

Personally,I'd be going back to the Dr,you need to be referred to a specialist. Panic attacks can cause all sorts of symptoms,they can mimic heart attacks and all sorts.
Can't advise on the HRT as I've never been on it but it sounds as if it's the culprit,don't let it run on my lovely x
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CLKD

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Re: New member.. hello :)
« Reply #4 on: Today at 12:02:58 PM »

Your GP should be referring you to a specialist,  not simply saying that she 'isn't aware'.   >:(. That, as well as the treatment in A&E, are deplorable and need reporting to the Secretary of State for Health in the new government.  Also a note to the Practice Manager, the British Menopause Society and your local MP.

PHEW!  I am tamping  >:(  :beat:

Keeping a note of your symptoms/food intake etc. will give U an idea of what to discuss at your appts..   I would be phoning the Hospital to see which Dept I would need to be referred to!
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