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Author Topic: Thoughts on bleeding  (Read 1274 times)

Kittie BC

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Thoughts on bleeding
« on: May 29, 2024, 11:52:32 AM »

New to the forum and  feeling frustrated.. started on patches last year but found them itchy and often fell off .. they did start helping with anxiety being over emotional and brain fog .. but not the aches pains and sleeping /tiredness issues then after persisting for three months started spotting but almost continuous.. doctor changed me to gel and tablets in January ..things settled and I started feeling better generally until about 3 weeks ago  had a bad week where I was forgetting an odd day or on one day took twice by accident .. not sure if it was the gel pill or both.. had an horrendous 7 days heavy bleed and after 7 days just continually spotting with an odd clear day until 2 days ago when another massive bleed. I had been taking doses religiously at the right time - as per doctors instructions .. I have noticed other stressors and anxiety seem to be present when the bleeding becomes heavy and obviously I’m then worse as worry about the bleeding ..

I’m wondering how long I wait for it to settle and what the issue might be - maybe I’m having too much or ultra sensitive ..

Doctor has said try to persist but if bleeding carries on he will need to refer for tests .. 

Wondering if others have same - before treatment I hadn’t had any bleeding for 12 months at all.. and before that on the pill with no periods or spotting ..

I really want to be bleed free as it makes me upset - quite apart from the emotional ups and down and neediness I have which has gradually crept up on me for about the last 12 to 14 months ..
Probably should add im 56 .. before the bleeding with the patches I’d had no bleeding for a couple of years at least .. this was because before ceasing contraception at 55 the pill was a continuous one with no periods.  My contraception stopped in sept 22.
« Last Edit: May 30, 2024, 08:11:55 PM by Kittie BC »
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Andil

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Re: Thoughts on bleeding
« Reply #1 on: June 04, 2024, 07:19:54 PM »

Hi Kittie, this sounds really frustrating. I’ve just posted a thread hoping to draw in people’s experiences so we can all start to see what to expect. For my own part, the first year was the most tumultuous with periods all over the place. They’ve now settled to about 40 days apart and a more consistent length of bleeding of around 8 days (year 2 ish of perimenopause - when symptoms became more obvious so prob a bit longer; about 1.5 years of HRT) I was on gel and utrogestan but have found the patches better for me. You haven’t said how many pumps you’re using, but it might be time to increase your dose. I was on 2 for quite a while before I saw a specialist who said to go straight up to 3 or 4 and just see how that felt. You can monitor symptoms and can always adjust down. She also advised not to wait 3 months each increase as my GP had advised. I Went to 4 and felt much better (now on evorel 100 patches, equiv to 4 pumps). I don’t think it had any effect on periods, unfortunately my experience was just having to ride out the year of crazy cycles and bleeding, but it definitely helped with sleep, brain fog and tiredness, but I have come to expect some tiredness now (but no longer debilitating). It’s worth mentioning that I said to the consultant that I slept better when I was taking the utrogestan on those two weeks in each cycle and asked what the reason was for women in perimenopause not being given continuous progestorone. She said it was simply that it can cause spotting but to try it and if it  did, then decide if I wanted to go back to the 2 weeks in each cycle. Now I take 100mg utrogestan (1tablet) every night. I’ve, personally, had no spotting and it definitely helped with sleep. 
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CLKD

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Re: Thoughts on bleeding
« Reply #2 on: June 04, 2024, 07:25:03 PM »

All of us are different.  So there's no rhyme or reason why we have different symptoms during The Change.  Some may be genetic in that women through the family have similar experiences.

Bleeding is natural as we know but can be a worry if the flow alters.  Peri does throw up odd symptoms  ::) so sharing on MM can be helpful.
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sheila99

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Re: Thoughts on bleeding
« Reply #3 on: June 05, 2024, 10:09:24 AM »

Bleeding can be expected for the first 3-6 months of a new conti regime. I can't work out if you're meno or not (or if you can't tell because of bcp) but if you aren't meno you can expect bleeding too. If you want to be bleed free a mirena is the most effective option.
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Kittie BC

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Re: Thoughts on bleeding
« Reply #4 on: June 09, 2024, 02:42:04 PM »

Update - the doctor examined me and I have been referred on two week pathway for a scan because she has said it’s best to be sure that it’s just the treatment settling down but it shouldn’t be happening at this point.

Obviously anxious about it but should have results in a week - just need to cope with the wait ..
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Kittie BC

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Re: Thoughts on bleeding
« Reply #5 on: July 22, 2024, 10:21:52 AM »

Quick update - the scan showed an abnormal womb lining thickness - around twice what it should be .. biopsy showed no cancer or pre cancer ..so referred back to gp.. she has increased my progesterone to 200mg per day but keeps reiterating it is trial and error .. and has left the oestrogen level the same… the bleeding is still continuing .. after the biopsy it was about 10 days .. and stopped for maybe a week .. then it started again and lasted 2 weeks .. then stopped for 4 days .. and now back again .. so I don’t really know where I am! The bleeding makes my anxiety horrendous .. I have stomach cramps ..as well as minor headaches and nausea.. starting to wonder how long before things will settle .. and if anyone had anything similar at all ?
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bombsh3ll

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Re: Thoughts on bleeding
« Reply #6 on: July 22, 2024, 06:57:58 PM »

Please don't worry, this is common on hormone therapy and the main thing is that you have no sign of cancer.

Some people just don't find progesterone enough to keep their lining thin.

Have you considered or been offered a mirena IUS? This can be a really good bleed free option.

Alternatively, and this may be a good one for you as you know that you tolerate desogestrel, however it is currently off label, but is to take 150mcg ( ie two desogestrel pills) daily as your progestin.

These are ideas you could discuss with your doctor. I think there is some literature on the BMS website about off label desogestrel.
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Ladybird13

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Re: Thoughts on bleeding
« Reply #7 on: July 25, 2024, 07:16:56 AM »

Quick update - the scan showed an abnormal womb lining thickness - around twice what it should be .. biopsy showed no cancer or pre cancer ..so referred back to gp.. she has increased my progesterone to 200mg per day but keeps reiterating it is trial and error .. and has left the oestrogen level the same… the bleeding is still continuing .. after the biopsy it was about 10 days .. and stopped for maybe a week .. then it started again and lasted 2 weeks .. then stopped for 4 days .. and now back again .. so I don’t really know where I am! The bleeding makes my anxiety horrendous .. I have stomach cramps ..as well as minor headaches and nausea.. starting to wonder how long before things will settle .. and if anyone had anything similar at all ?

I feel for you and get how anxious it can be. I had 5 years sequential then last June was changed to continous (75mg patch, 100 mg utrogestan). Still spotting regular every 4-5 weeks so increased to 100mg patch (for symptoms returning) and 200mg daily utrogestan from February this year. Now on month 5 and still light spotting (only need a liner) a couple of days still every 4-5 weeks with headaches, sore boobs, sweating etc so no idea what is happening. Feel great until this happens. Was told I am now postmenopausal but it seems my normal cycle is still there in the background? I am 49
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