Hi
First post so be gentle ... also very fragile so will keep long story/intro for anon ...
After horrible few years of overlooked peri symps, totally inappropriately overdrugged with antideps, sleeping pills, etc etc, I started HRT and felt immediately and increasingly better for first year. Then I didn't, and patches were increased - way above licensed dose, by a pvt GP I now know generally does this (to a lot of criticism) - she said my E2 levels were crazy fluctuating and putting more in would make them more undulating. Things have not improved and last year terrible again.
My oestr levels are still all over the place. Finally finally into NHS meno clinic. They wondered about tachyphyl but say it can't only be that because sometimes they plummet too - they go from so high consultant wonders about tachyphylaxis to so low they repeat the tests, then back up and down and up and down etc etc. They are now talking about E implants. And possibly GnRH injections, although I'm not clear whether they'd do with implants or try implants alone first.
I realise I'm very lucky to have this referral, and possible opportunity - having done lots of googling, I now know E implants are not easy to come by in NHS. But that also means there's not a lot of stories, even on here, of people who have had them. To be clear, these are the 'E' only implants that used to be much more widely used but no longer generally available in UK ... not pvt compounded things.
I still have all my bits; I know they are often used for people who don't. I was initially reluctant to have anything remotely invasive or not easy to stop if needed, but I'm desperate. I've lost the last year again, after a good year on HRT, after 3-4 years of terrible symps that GP and I missed completely - hard to believe with all I know now, but hey ho.
So qn is ... does anyone have experience of E implants (possibly and GnRH?) to stabilise E levels?
This is definitely one of the more experienced mno clinics, but I can't find anything anywhere about this use of implants. I've every reason to trust no medic ever again after the last several years - couldn't make it up - would be entertaining if it wasn't true etc!
I think I'm probably at the stage of doing whatever they tell me they recommend, but I'd love to hear from anyone else who's had similar.
x