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[sfreesto]

GP has referred me to a vulval dermatologist. I’m lucky enough to have private healthcare through work but still can’t get an appointment until 11 March. (My boss is actually a Dr and she is going to try and ask her network to see if anyone can help me - the shame of it!).

I’ll try and jump in the cooling bath once I finish work.

Infection wise I first went for a smear and I was feeling sore and the nurse told me I had a heavy infection. I took 3 lots of flucanazole and was still sore so went to the Dr. The swabs came back negative for yeast but I had an overgrowth on group B strep. Drs often think GBS is asymptomatic but because I was sore GP decided to treat me - as for BV with vaginal clindamycin. After that I was fine for about a month.

Dec 21 it all flared up again and this is where I appear to be stuck. I’m at a loss where to turn. I keep thinking that Mirena was the worst thing I ever did!

I don’t feel like the VA treatments aren’t doing their job, it’s more like some kind of irritation or and infection that is not being picked up.

[Minusminnie]

Given that you have been dealing with other infections has anyone suggested that the bartholins glands at the back of the vagina might be infected. I once had a small bartholins cyst which caused some vulva pain/soreness towards the back.  Antibiotics sorted it . Just a thought.

[sfreesto]

Managed to get to the GP again. The current thought is it the Group B Strep again. So it is vaginal clindamycin for 7 days for me now, but to go back Thursday if I haven’t improved.

I really need to improve because I am travelling for work next week and the thought of sitting in a meeting room with a bunch of strangers with my vag on fire is not a good one!

Thanks for getting me through today, I’ll let you know how I’m getting along. Xx

[CLKD]

Well done for pushing for the appt and well done on the GP for giving the advice.

Let us know how you get on.  R U able to postpone your part in the meeting next week?  That will increase any anxiety.

[sfreesto]

Thank you, feeling hopeful for a fix.

I can’t duck out of the meeting, and I’ve got to travel to the US for it. I’ve been very motivated to relieve some pain before being stuck on a plane for hours! Xx

[CLKD]

I really feel for you 

[sfreesto]

Ugh, morning ladies,

My update is not a good one. I did the Clindamycin and it made zero difference. The swabs came back with candida but no action required as very low level (I self treated anyway). I have to say my very bad days are getting more frequent, I am getting worse rather than better. My vagina feels kind of scoured out, like it’s been washed out with bleach or something. I have terrible pressure and pain in my bladder about every other day now. I’ve had lots of GP appointments and feel like they’ve given up on me. I guess next steps are to try and see a gynae and urologist somehow.

Treatment wise I’m still doing Intrarosa plus Ovestin outside, and I’ve also now bought some Vagifem and I’m using those in the day time.

I’m so confused about what’s happening to me, my symptoms were completely under control for 8 months and since the Mirena infection disaster in October I’ve been going further downhill.

Meanwhile I took a long haul flight to the US for work yesterday, and I’m lying awake with jet lag and terrible bladder pains wondering how the hell I’m going to survive the week. I am in a very dark place right now.

[Minusminnie]

Are you able to bring it all down to just the vagifem that you have bought for now & stick with that for a while.

Using 3 products at a time you may not know where you are.

It was suggested by a member to someone else yesterday that if bought vagifem helps then thereafter get the gp to prescribe it.

There are many members on here
using vagifem & then ovestin in combo with some success.

Did you get back to newson health ?

It must be hard to concentrate on your work but hope it can be some distraction for you.  A U shape cushion may help in meetings no one needs to know why you have one.

[CLKD]

Morning.  Did U get there and back without too many problems?

Your GP should be referring you to an appropriate Clinic if nothing is easing symptoms.  Could there be a low grade infection 'high up' after the Mirena issues?

Is there a Nurse Practitioner in your Practice who may be more knowledgable than the GPs?   

[Minusminnie]

ps are you self treating candida with a one off fluconazole capsule I’ve been advised to treat it in that way initially rather than a cream or pessary.  Avoids involving vaginal area.

[Ayesha]

Well one thing for sure is you definitely need further investigation and your upcoming appointment in March will hopefully get all these horrible symptoms resolved, I remember them very well and know exactly what you are going through and I really feel for you!

Keep up with whatever treatment you have to throw at it, at this stage it might help eventually or it might not but at least you are giving it a good go and can report back to the specialist in March.

You are good at expressing yourself, keep notes and go well prepared for any questions asked.

[sfreesto]

Thanks for your supportive responses all. I’m glad to say I’ve survived my week of work travel and am back home again.

So after a few days of bladder pain I decided to take a course of nitrofurantoin antibiotics I’d had the GP prescribe me “just in case” and it made the bladder pain go. So, despite a negative dip stick test seems I did have a UTI. VA wise I still have the scoured out feeling and am suspicious I have some deep rooted underlying infection. I’m going back to Newson Health on Monday to see if I can get some answers or at least the names of consultants I can see to help.

Hope you’re all doing well and wish you a great weekend xx

[Minusminnie]

Hope that it goes well for you on Monday.

[Jules]

Thanks for your supportive responses all. I’m glad to say I’ve survived my week of work travel and am back home again.

So after a few days of bladder pain I decided to take a course of nitrofurantoin antibiotics I’d had the GP prescribe me “just in case” and it made the bladder pain go. So, despite a negative dip stick test seems I did have a UTI. VA wise I still have the scoured out feeling and am suspicious I have some deep rooted underlying infection. I’m going back to Newson Health on Monday to see if I can get some answers or at least the names of consultants I can see to help.

Hope you’re all doing well and wish you a great weekend xx

I once had symptoms of a UTI. The doctor told me to take my Nitrofurantoin but that didn't help so they gave me trimethoprim and that worked fairly quickly. I was never sure if I did have a UTI. The GP said antibiotics have an anti inflammatory effect so I might have had some inflammation triggered by sex. Thing is I've not had an episode like that since. I'm not confident of tests these days. They're so short staffed and stretched.  I'm still waiting for my stomach biopsy results 3 months on.

[CLKD]

Tnx for the updates.  sfreesto - let us know how you get on.  Will U take a list of concerns with you?

ABs certainly eased VA symptoms 4 me.   My GP diagnosed the condition when he read my notes = several samples not sent to a Lab., he was not impressed!  I think Words Were Said