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Author Topic: 8mm womb lining...any advice  (Read 8364 times)

sheila99

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Re: 8mm womb lining...any advice
« Reply #30 on: December 13, 2023, 02:22:08 PM »

If the back and abdominal pain are recent and associated with your current bleed it looks more positive. And the bleed may be good as it will thin the lining. How much utro were you on?
 I know I don't take my own advice  :o but do try not to worry. Many women have hysteroscopies and only a few find something frightening. And in the unlikely event that they do it's been caught early so there's every chance you will be OK.
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Northerngirl

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Re: 8mm womb lining...any advice
« Reply #31 on: December 13, 2023, 03:44:23 PM »

The day gets worse now....I've had a referral through to go gynae/oncology on 28th December....not even had a hysteroscopy or biopsy done.  Bang straight to oncology. I'm in bits atm
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CLKD

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Re: 8mm womb lining...any advice
« Reply #32 on: December 13, 2023, 03:54:26 PM »

Give the Dept a phone call, speak to the Secretary of the Dept and ask the questions.  It's too soon to C.mas to be distressed and worried!   It may B that they will do the explanation  and any treatment/investigations required.  If U don't ask you won't get and if you do, it may well stop the worrying.

Make a list of your worries, pick up that phone - and let us know.   :bighug:
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Northerngirl

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Re: 8mm womb lining...any advice
« Reply #33 on: December 13, 2023, 04:22:16 PM »

Pointless they won't tell me anything before anyway. Gp is ringing tomorrow about it
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MrsMitch

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Re: 8mm womb lining...any advice
« Reply #34 on: December 13, 2023, 05:54:08 PM »

Oh dear Northerngirl,  that must be a huge worry for you. Not sure where you're based, unless your username is a clue, but I expect I'll have a follow up apt with gynae which will be for after hysteroscopy.  I'll let you know who/what type of specialist I'm seeing if I get notice.
I know it's difficult but if you can try to take on board comments on here about there only being a very slim chance you have cancer etc etc. Hard to do I know, but very miserable of them to send you that just before Christmas.
Hopefully your GP will help tomorrow.  Thinking of you.
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Taz2

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Re: 8mm womb lining...any advice
« Reply #35 on: December 13, 2023, 06:01:42 PM »

Thinking of you too Northerngirl. Gynae-oncologists also deal with complex non-cancerous gynae conditions. Hold on to that thought.

Taz x
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Nas

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Re: 8mm womb lining...any advice
« Reply #36 on: December 13, 2023, 06:26:33 PM »

Great advice from Taz Northerngirl
These gynae oncologists, do indeed deal with other more complex, but benign conditions.

Fingers crossed for a positive outcome for you (albeit rubbish timimg I agree!)

xx
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Mary G

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Re: 8mm womb lining...any advice
« Reply #37 on: December 13, 2023, 06:30:58 PM »

Northerngirl, I'm trying to hit the right note here and I'm all for women having uterine scans and being checked out but this all sounds very alarmist.

So you had a UTI that has been checked out and come back clear thankfully.  Your had a TVS and your womb lining was 8mm despite the fact you take the recommended dose of Utrogestan (which you may not be digesting properly) and you are on a low dose of Oestrogel.  And that has led to this?  It's a bit of a knee jerk reaction and sounds like someone is following an extremely rigid protocol and not taking account of the fact you use HRT.

I had a very interesting conversation with a Spanish gynaecologist over here who used to work for an NHS hospital in London and came back to Spain a few years ago to set up his own private practice.  He said that women who use HRT often have a higher womb lining measurement and it's often because their HRT regime is out of sync.  It's not definitely deadly and not the same as a woman who is not taking HRT at all.  Because he was a bloke I was slightly uncomfortable with him at first (particularly when he did the TVS!) but he turned out to be very nice, pro HRT and extremely switched on.

I'm not trying to overly downplay this in any way but unless you have something else that would indicate endometrial hyperplasia, I would have thought the first port of call would be a strong dose of norethisterone to strip the womb lining and then another scan. 

This is not helped by the fact the NHS don't routinely scans women so you have no idea what your normal post bleed measurement is. 

Can you find a private gynaecologist on the hurry up? 
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Teresa

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Re: 8mm womb lining...any advice
« Reply #38 on: December 14, 2023, 08:22:13 AM »

Hi Northern Girl,
I’ve had scans which have shown my lining is 4-5 mm and multiple fibroids, . I too had menopausal bleeding and on HRT. I was on utrogestan and patches. However, when I had the hysteroscopy, earlier this year, I was told my lining was atrophic ( so no lining) and  I had zero fibroids. When I asked why the scan showed something completely different, they told me that scans can often be wrong as they can distort things….please bear that in mind. I think they are so wrong to make judgements like this purely based on your scan results.
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CLKD

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Re: 8mm womb lining...any advice
« Reply #39 on: December 14, 2023, 09:12:13 AM »

I was a Medical Secretary and answered many such calls. 
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MrsMitch

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Re: 8mm womb lining...any advice
« Reply #40 on: December 14, 2023, 03:02:19 PM »

Got my hysteroscopy next Wednesday the 20th in the afternoon.
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Northerngirl

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Re: 8mm womb lining...any advice
« Reply #41 on: December 15, 2023, 07:05:50 PM »

Just another update ladies.  Ended up in A &E the other night , then spent the day on the gynae Surgical ward . After speaking to the gynae dr (don't think it was a consultant tho). She explained the results.   Don't think they'll do a hysteroscopy(apparently you shouldn't have them if you've had c sections....I've had 3 over 30 years ago. Guessing that's why the last one hurt so much. She said I  might have a pipelle  biopsy (think that's what it was called) she said she had double checked my ct from 3 weeks  ago and it is all clear. Nothing concerning with my blood tests. Just have to go to gynae/oncology appointment in 2 weeks time.....so maybe she'll  go straight for a hysterectomy., I don't know.  Surely they have to biopsy first to see if it is the C word. They did say that my GP should never have said what he did and definitely not the way he did or over the phone.  I feel  a little more reassured ..... not crying every half hour now. Still very anxious. Just wanted to say thanks for all the support again....there is only so much talking about it to the family ....bet they're fed up hearing about it....don't get me wrong I have  an amazing husband, 3 sons ,their wives and lovely friends  :)
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Northerngirl

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Re: 8mm womb lining...any advice
« Reply #42 on: December 15, 2023, 07:24:11 PM »

If the back and abdominal pain are recent and associated with your current bleed it looks more positive. And the bleed may be good as it will thin the lining. How much utro were you on?
 I know I don't take my own advice  :o but do try not to worry. Many women have hysteroscopies and only a few find something frightening. And in the unlikely event that they do it's been caught early so there's every chance you will be OK.
They haven't said that the bleed is the lining shedding or anything like that so I don't know.  I took one pump of the gel and 100 mg utrogestan( think that's right...1 tablet)
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Summer-sky

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Re: 8mm womb lining...any advice
« Reply #43 on: December 15, 2023, 07:58:40 PM »

Hello Northerngirl,

Sorry you ended up in A&E but it sounds very encouraging about the scan being clear.  Good news.  The pipelle biopsy is like a thin tube that goes through into the womb and takes a bit of the lining to sample  They don't tend go straight to hysterectomy as first line treatment if you have Endometrial Hyperplasia Without Atypia - ie no precancerous / unusual cells or cancerous cells as they tend to treat with progesterone therapy, coil, or continuous progesterone tablets first and monitor, of course there might be exceptions.  I'm glad the Gynae doctor acknowledged that the original doctor jumped the gun in what and the manner you were told. You are further on with what is going on than a few days ago, so hopefully that has helped a little with processing things. 

Mrs Mitch - all the best for your hysteroscopy next week x
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