Hi Jules
I hope your fatigue will lose its grip on you soon, it's hard to know what savvy day will bring. Like you I know doing too much in a day will see me pay for it in worsening fatigue. I also get muscle fatigue, and a sensation that is not quite tingling or pulsating, I can't get the right word to describe it. And yes, I hate not being able to exercise because the fatigue won't allow us that. So I too am concerned about muscle weakness not being able to be improved.
A year ago I could do two fast hour walks each day. Now, some days so only manage ten minutes. Am so much worse in the mornings with stiffness joint pain.
I am due a cortisol test in hospital next month as my gp blood test showed low results. In a strange way I hope it shows something. So maybe so can be treated it the adrenal glands are not functioning well enough and so may get more energy? I don't find it easy living half a life. I miss walking so much, it was my time alone, where mind and body were working together.
Jules can your gp refer you for specific physio on your leg?
I was having physio for osteoarthritis on both hips, but had to halt that. The physio is made aware of other health issues so can work with the ME.
Take care