Please login or register.

Login with username, password and session length
Advanced search  

News:

Follow us on Twitter and Facebook

media

Pages: [1] 2

Author Topic: Recommendations and help please  (Read 1502 times)

Love_vodka

  • Member
  • *
  • Posts: 54
Recommendations and help please
« on: August 04, 2023, 10:58:19 AM »

Morning I have anterior/bladder prolapse.(along with hypersonic pelvic floor, perineal collapse,rectal intussception)  Basically a bit knackered!
I have bad nocturia getting up 6/7 times a night to pee. No-one has given me any advice apart from offered surgery,  which I really want to avoid!!  and prescription tablets Bermuda and solifenacin which do nothing.
I have GP appointment Monday.
Has anyone any advice or suggestions on what I could ask for? I'm currently on hrt patches (hysterectomy 10 years ago and been on hrt 6 years)
I read somewhere testosterone might help? Pessaries?
Any help,much appreciated. I want to go armed with knowledge. Thanks for reading, I'm a bit fed up and scared surgery will be my only option.
Logged

CLKD

  • Member
  • *
  • Posts: 75204
  • changes can be scary, even when we want them
Re: Recommendations and help please
« Reply #1 on: August 04, 2023, 11:26:11 AM »

What do U worry about surgical intervention?

Firstly take a list of queries with you to discuss.  Make notes of the replies/suggestions.

How is your urine outflow in the day?  Could this be vaginal atrophy for which treatment is successful.
Logged

Love_vodka

  • Member
  • *
  • Posts: 54
Re: Recommendations and help please
« Reply #2 on: August 04, 2023, 12:32:13 PM »

Thanks, I don't have any other symptoms of vaginal atrophy. I assumed it was the prolapse bladder but will mention it  :)
Logged

CLKD

  • Member
  • *
  • Posts: 75204
  • changes can be scary, even when we want them
Re: Recommendations and help please
« Reply #3 on: August 04, 2023, 02:40:42 PM »

Let us know how you get on.
Logged

Love_vodka

  • Member
  • *
  • Posts: 54
Re: Recommendations and help please
« Reply #4 on: August 07, 2023, 03:06:24 PM »

I saw the GPtoday, apparently my bladder prolapse has gone/fixed itself!  and I have been referred to urology with nocturia.
Logged

CLKD

  • Member
  • *
  • Posts: 75204
  • changes can be scary, even when we want them
Re: Recommendations and help please
« Reply #5 on: August 07, 2023, 03:08:52 PM »

Obviously your body takes care of itself  ::)

How long will you need to wait for the appt.?  has the night time trips eased any?
Logged

Love_vodka

  • Member
  • *
  • Posts: 54
Re: Recommendations and help please
« Reply #6 on: August 07, 2023, 03:16:44 PM »

No, still up 6/7 times. She also prescribed some oestrogen cream to use internally. Some days I wake up feeling a bit irritated inside. She didn't mention atrophy but I'm going to do some more research. I also have slow transit, so that might be contributing?
No idea how long I'll wait for appointment, no infection in my pee, she mentioned botox for bladder.
Logged

Wrensong

  • Member
  • *
  • Posts: 2114
Re: Recommendations and help please
« Reply #7 on: August 07, 2023, 04:49:14 PM »

Hi, so sorry to know of the problems you're facing which must be making life pretty difficult at present. 
Quote
Morning I have anterior/bladder prolapse.(along with hypersonic pelvic floor, perineal collapse,rectal intussception)
I'm guessing you've already seen a colorectal surgeon for the intussusception diagnosis?  It seems likely that that this condition, together with the slow transit you mention, are also having adverse effects on your bladder function, so yes I think your instincts here are probably right:-
Quote
I also have slow transit, so that might be contributing?
As you have pelvic floor dysfunction, if you haven't seen a specialist women's physio for pelvic floor assessment I would ask for one while waiting to see Urology.

You might also like to have a look at a recent thread called "Constipation" partly for some links I posted (pages 2&3) on pelvic floor dysfunction & the associated different types of pelvic organ prolapse.  One of the links has a section on the pessaries you mention, but the info in them is much more comprehensive than that so I hope you might find something helpful there.  There is also a good book called The Pelvic Floor Bible by Jane Simpson.  I'll bump the thread for you.

Wx
« Last Edit: August 07, 2023, 04:57:01 PM by Wrensong »
Logged

Love_vodka

  • Member
  • *
  • Posts: 54
Re: Recommendations and help please
« Reply #8 on: August 07, 2023, 08:13:07 PM »

Thank you Wrensong. That's really helpful. I did mention physio but there was a lot to get through and because she said the bladder prolapse was fixed I didn't pursue.
She did say to ease off pelvic floor exercises because of the hypertonic diagnosis.
I'll read up on the thread/book. Thanks I appreciate your reply. I want to be able to self manage rather than surgery (which was offered after my diagnosis) because of success rate/complications etc I had a hysterectomy at 39 and post menopause 6 years and don't want to risk more problems unless I absolutely have to.
Thanks again for your kindness.
Logged

Wrensong

  • Member
  • *
  • Posts: 2114
Re: Recommendations and help please
« Reply #9 on: August 07, 2023, 08:39:08 PM »

No problem  :)  Having had more than I'd wish myself over the years, I completely understand your wish to avoid further surgery; even surgeons say that should always be the last resort.  A good women's physio can be a great help though in enabling self management & I would think about asking for a referral as she will be able not only to do a thorough assessment but advise on all important relaxation of the PF.
Good luck with it, whatever steps you take.
Wx
Logged

Love_vodka

  • Member
  • *
  • Posts: 54
Re: Recommendations and help please
« Reply #10 on: August 07, 2023, 09:34:26 PM »

Thanks,yes I will, have found one listed in my area  :)
Logged

VioletAquarius

  • Member
  • *
  • Posts: 240
Re: Recommendations and help please
« Reply #11 on: August 07, 2023, 10:15:03 PM »

Hi Love_Vodka

Sorry to have to put this, but did yr GP check for prolapse while laying or standing? As if laying sometimes they cannot be felt. I have had this happen myself.

Logged

Love_vodka

  • Member
  • *
  • Posts: 54
Re: Recommendations and help please
« Reply #12 on: August 07, 2023, 10:46:43 PM »

Lying down. Oh bollox! What now? Wait for urology appointment?
Logged

Wrensong

  • Member
  • *
  • Posts: 2114
Re: Recommendations and help please
« Reply #13 on: August 08, 2023, 09:22:23 AM »

Quote
have found one listed in my area
Ooh, well done L_V  :)   Hope it proves worthwhile.  Wrt lying down during exams for diagnosis, sometimes it can help the clinician see what's going on in every day life if they ask you to bear down.  Sorry - not much use mentioning that after the event, but you could perhaps ask if they want you to do that next time.
Wx
Logged

Love_vodka

  • Member
  • *
  • Posts: 54
Re: Recommendations and help please
« Reply #14 on: August 08, 2023, 12:42:20 PM »

Oh she did ask me to bare down, I will definitely ask for pelvic floor referral though.
Is the book worth buying if I have hypersonic pelvic floor? Is it mentioned in the book do you know?
Logged
Pages: [1] 2