Please login or register.

Login with username, password and session length
Advanced search  

News:

Got a story to tell for the magazine? Get in touch with the editor!

media

Pages: [1] 2

Author Topic: Newly diagnosed with Osteoporosis  (Read 3099 times)

sprush1

  • Member
  • *
  • Posts: 16
Newly diagnosed with Osteoporosis
« on: February 13, 2023, 07:19:54 PM »

In October I fell and badly broke my left wrist. Consequently was sent for a DEXA scan 3 weeks ago. Telephone call with my GP today to be told I’ve got Osteoporosis with the following scores.
Neck -2.7
Lumbar L1 -3.7
            L2 -3.3
            L3 -2.7
            L4 -2.5
Average -3 I think but can’t read my handwriting!
GP strongly advises I take calcium, VitaminD, A Acid, and Bisphosphonates.
I’m happy to take calcium and vitamin D but am very very hesitant to take the other medication. I’m not over weight but had an early menopause aged 42 and I’m now 65. I eat healthily and am reasonably active.
I’ve been on Evorel Conti patches since July but I only take half a patch as couldn’t tolerate the side effects of the full patch. Still having side effects or maybe even hormonal deficiency symptoms. I asked the GP again if I could have a hormone blood test but she said no.
I have read previous threads about Osteoporosis but I’m asking for any recent thoughts or observations.
To be honest I’m in bits at the moment and feeling so overwhelmed with it all.
Living alone doesn’t help as fairly recently widowed. I can talk to others but not that candidly. Don’t want to burden my adult children either.
Any thoughts gratefully received.
Thank you.

Logged

CLKD

  • Member
  • *
  • Posts: 75313
  • changes can be scary, even when we want them
Re: Newly diagnosed with Osteoporosis
« Reply #1 on: February 13, 2023, 07:52:05 PM »

Without your partner you haven't the possible support for a good old moan or discussion about serious issues.  So sorry, what support have you had: CRUSE : recommended when you feel ready to access them.

Osteoporosis: your GP has given good advice to get the condition under control.  MayB have a lookC at the osteoporosis society website? 

Brisk exercise.  Lots of protein and dairy.  I think a lot of young people currently avoiding basic foodstuffs will find themlseves diagnosed with this condition sooner rather than later.  Lots of fresh air.  Do U have hobbies?
Logged

CLKD

  • Member
  • *
  • Posts: 75313
  • changes can be scary, even when we want them
Re: Newly diagnosed with Osteoporosis
« Reply #2 on: February 13, 2023, 07:53:20 PM »

the Royal Osteoporosis Society – the UK’s largest national charity dedicated to improving bone health and beating osteoporosis. And we’re here for everyone. We equip people with practical information and support to take action on their bone health.

Working with healthcare professionals and policy-makers, we’re influencing and shaping policy and practice at every level. We’re driving the research and development of new treatments, to beat osteoporosis together.

Our vision

Strong and healthy bones for life
Logged

sprush1

  • Member
  • *
  • Posts: 16
Re: Newly diagnosed with Osteoporosis
« Reply #3 on: February 13, 2023, 09:03:53 PM »

Thank you so much CLKD.
I have been looking at the Royal Osteoporosis Society web page.
When I had my fall I also damaged my adductor muscles in my leg so was housebound for almost 3 months and couldn’t walk much.
Thankfully I’m better now. My hobbies are varied and I do try and keep focused. The rich tapestry of life throws us curved balls and floors us.
I belong to a bereavement support group through the Rare Dementia Support Group in London. I will reach out to them.
Logged

sheila99

  • Member
  • *
  • Posts: 5194
Re: Newly diagnosed with Osteoporosis
« Reply #4 on: February 13, 2023, 09:19:59 PM »

I'm so sorry for your loss. I think you need 50 to help with osteoporosis which would be the full patch. What were the side effects? Usually it's the progesterone that causes the problems so it might be worth trying a different type.
Logged

sprush1

  • Member
  • *
  • Posts: 16
Re: Newly diagnosed with Osteoporosis
« Reply #5 on: February 13, 2023, 09:36:30 PM »

Thank you Sheila 99
The side effects were nausea dizziness headaches and feeling so anxious and spaced out. I still have some of the dizziness but not so many of the other symptoms. It’s all a minefield to be honest but I will chat with my GP again next week and see what she says.
Logged

Jillyboo

  • Member
  • *
  • Posts: 51
Re: Newly diagnosed with Osteoporosis
« Reply #6 on: February 14, 2023, 09:02:04 AM »

Hi Sprush. My mum had osteoporosis so my G P recommended HRT as soon as menopause symptoms started. You do need to take a certain level of oestrogen for it to be deemed a 'bone sparing' dose.

I also take a high level vitamin D supplement which contains Vitamin K2 and a supermarket brand multivitamin which contains calcium.

My mum took bisphosphonates. All I can say is that despite several very nasty falls that landed her in hospital she never sustained a serious fracture which always seemed pretty surprising to both ourselves and the doctors.
Logged

sprush1

  • Member
  • *
  • Posts: 16
Re: Newly diagnosed with Osteoporosis
« Reply #7 on: February 14, 2023, 03:34:14 PM »

Hello Jellyboo
Thank you for that information.
Your Mum was indeed fortunate.
I fell from a height down three stone steps onto a stone patio so it was a pretty bad fall. I’ve got 4 metal plates and a bone graft.
Never broken a bone before so it’s all pretty alien.

I have just started to take Vitamin D but I will ask the GP about Accrete that has Vitamin D and Calcium in and see if I can get it on prescription. 
I’m very paranoid about side effects. My late husband was so sensitive to pretty much all of his medication and I’m afraid that has made me so nervous.
I won’t bore you with the details but if you’d seen him you would have understood.
Logged

Jinty14

  • First Flush
  • *
  • Posts: 6
Re: Newly diagnosed with Osteoporosis
« Reply #8 on: February 16, 2023, 02:33:06 PM »

Hello, sprush 1. I am so sorry for the loss of your husband. I know how you feel about your osteoporosis diagnosis.I had a Dexa scan done last year, just as routine, and was diagnosed with osteopaenia and osteoporosis. I am 56 and apparently my bone density is very low for my age. I still feel overwhelmed and depressed by this. I am now scared of falling all the time.
Like you, I am very reluctant to take the medications. I saw a bone specialist who said I could probably defer them if I stay on hrt. Otherwise I would probably consider stopping hrt as since starting it,I have had massive hair loss, but of course it may not be connected. I take vitamin d and am looking for a good k2 supplement. The consultant said it is better to get calcium from dietary sources so am doing my best. Have always done lots of weight-bearing exercise. All in all, between the osteoporosis diagnosis and the hair loss, I feel I have become old overnight. So I understand how overwhelmed you feel and am sending you my thoughts and good wishes.
Logged

CLKD

  • Member
  • *
  • Posts: 75313
  • changes can be scary, even when we want them
Re: Newly diagnosed with Osteoporosis
« Reply #9 on: February 16, 2023, 02:55:42 PM »

Jinty - what types of 'weight bearing' exercise, as interestingly we are told to walk briskly several times a week to stave off osteoporosis.   :-\
Logged

Jinty14

  • First Flush
  • *
  • Posts: 6
Re: Newly diagnosed with Osteoporosis
« Reply #10 on: February 16, 2023, 05:28:32 PM »

Hi CLKD, for the past 25 years, I have walked for 1 to 3 hours every day and hillwalking at weekends. So obviously this wasn't enough. I do think myself, though, that I never got enough vitamin d. Even though I am outdoors a lot, I always wear sunscreen and legs are covered. Only started taking supplements recently.
Logged

CLKD

  • Member
  • *
  • Posts: 75313
  • changes can be scary, even when we want them
Re: Newly diagnosed with Osteoporosis
« Reply #11 on: February 16, 2023, 05:56:53 PM »

That's confused me completely  :-\.  The year that I felt very tired after 20 mins work, even though I had been in the sunshine my VitD levels were low. 
Logged

Jillyboo

  • Member
  • *
  • Posts: 51
Re: Newly diagnosed with Osteoporosis
« Reply #12 on: February 16, 2023, 06:33:01 PM »

I take 4000 ius Vit D3 daily with 100mg of K2 Mk4 becsuse i use regular sunblock due to skin sensitivity. I don't supplement calcium other than a small amount in a daily multivitamin because I regularly eat cheese and yogurt.

I've always understood weight bearing exercise to be anything that involves carrying your body weight around - ie walking or running. My mum's doctor mentioned that's why slightly built people tend to be more susceptible to osteoporosis than chubbier ones!

I'm convinced personally that taking HRT is really effective if you can and particularly if you have an early menopause.
Logged

sammy828

  • Member
  • *
  • Posts: 14
Re: Newly diagnosed with Osteoporosis
« Reply #13 on: February 17, 2023, 12:06:15 AM »

Hi CLKD, for the past 25 years, I have walked for 1 to 3 hours every day and hillwalking at weekends. So obviously this wasn't enough. I do think myself, though, that I never got enough vitamin d. Even though I am outdoors a lot, I always wear sunscreen and legs are covered. Only started taking supplements recently.

It isn’t your fault - we are not well instructed.  I’ve looked at this quite a lot as I have low bone mass.  Walking does nothing from all the data I’ve read.  It’s good for overall health but our bones need work that is above our natural body weight.  Powerlifting, weighted vests.  I’m in a weightlifting program now, as heavy as I can do.  High loads, short reps.  Ask your doctor before any exercise as some are not safe for osteoporosis.   Don’t give up or blame yourself.  I’m annoyed with my doctors for not giving me the information I needed. 
Logged

sprush1

  • Member
  • *
  • Posts: 16
Re: Newly diagnosed with Osteoporosis
« Reply #14 on: February 17, 2023, 04:53:07 PM »

Thank you Jinty 14.
We are on the same wave length. Like you I’m now paranoid about falling.
Following my recent fracture the surgeon told me to start taking 1000mg of Vitamin C each day. I take the gentle C tablets from Healthspan.
Also vitamin D3. I do eat a lot of calcium rich foods so not going to take supplements. Having said that I had a brief chat with a pharmacist yesterday and she suggested I take Accrete D3 one a day chewable, 1000mg/880iu.
I bought a box at £5.13 for 30 tablets. I’m probably not going to take them though.
I’ve been watching some programmes on You Tube about osteoporosis.
One was from The Stanford institute in America. An endocrinologist specialising in bone health said that the line of thinking in the USA now is that HRT is no longer recommended as a treatment for osteoporosis and is no longer promoted as such. I wonder if and when that will be the case here?
For the time being I’m still going to persevere with my half patches of Evorel Conti.

I still see a physio about my wrist so I’m going to ask her about an exercise regime for my bones. I’ll let you know what she says.
A friend who has it says that she was told skipping, jumping and country and line dancing were all great for the bones!

It’s all a mine field but all we can do is stay positive.
Happy weekend everyone.
Logged
Pages: [1] 2