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[Keeleyruth]

Hey Mag.... I'm in the same boat as you.

Can't tolerate progesterone, have tried patches, coil and currently on Ultrogeston vaginally - but still suffering.

My NHS meno consultant advised the Mirina coil which made me feel suicidal. I couldn't get an appointment to have it removed quickly so I pulled it out myself at home... I was that desperate! She then dismissed me from her 'books' as I didn't agree that her recommendation was the right course of action for me. Nothing else was offered.
I've since asked my GP about a hysterectomy and my NHS meno specialist has offered me ANOTHER Mirina coil instead. I just feel so unheard... my body cannot cope with the Mirina..... it's bonkers! I've tried the Mirina twice in total and have the same reaction every time. Personally, for me, the Mirina is horrendous.

I have also paid to see a private meno GP but this hasn't made any impact either. I'm still on Ultrogeston but am not going to take it next month due to my horrendous symptoms. If I find any answers I'll definitely pass them onto you xxxx

[Mag22]

Bloody hell ladies sounds horrible. Will look again at tibolone I’d forgotten about that.
Just seems like there has not been enough research into why some people are so intolerant of hormones

[Nas]

Poppy, how did you pull the coil out yourself??
Did it hurt? Did you bleed?

[Kathleen]

Hello Mag 22.

I have been using Cyclogest pessaries for a while now and I find them okay.
 Having said that I don't think I am prog intolerant as I didn't feel much different when I was asked to try oestrogen only for eight weeks. Due to recent heavy bleeding I have now reduced my oestrogen and thankfully the bleeding has now resolved. I continue to have tender breasts but this symptom is also reducing however my emotional symptoms and mood swings have not improved very much. I don't think I had terrible PMDD but I also felt better when I was pregnant.

I agree that we need to research why some women suffer so much. One GP told me that about twenty percent of women get every symptom going and really struggle but of course no one knows why!

I hope you find a regime that works for you and please keep us updated.

Take care.

K.

[CLKD]

Keelyruth - how has your mental health been since removal of the Coil, hormone input aside?  I know my mood swings were certainly cyclical.

Why don't GPs listen 

[Keeleyruth]

Hey ladies....

Further update on my situation.

My mental health improved following my Marina coil removal. I still fell apart during the two weeks building up to my period, but I was nowhere near the suicidal state I was in before, which was constant with the Marina coil.

I then tried the testosterone, Ultrogeston and Oestrogel combo but still suffered with a multitude of symptoms and my mental/emotional health again deteriorated during the two weeks before my period, so I stopped taking the progesterone aspect of my HRT. I then felt AMAZING for two months, like my old self, but my severe symptoms started coming back with my periods. I spoke to my GP as I felt like I had PMDD.

Anyway, she has no clue what to do with me so she referred me to a specialist AGAIN. I've now seen two separate consultants through the NHS. I have been asked to try Tibolone/Lavia this time. Has anyone had any experience with this?

I'm currently not working as my anxiety is unmanageable!!! I can't even leave the house sometimes.

I feel like no one will ever be able to help me to function properly again. This situation is destroying my life and nobody can help. Is this it for people who suffer like us??

I'm 46 and started my peri journey at 37......... Still not seeing any light at the end of this tunnel.

[Armadillo]

Hello Everyone.

I read this thread and nodded at so many of the horrid experiences with progesterone. 

Yesterday during a phone appointment with my NHS Gynae i was added to the waiting list for a Hysterectomy.. uterus and ovaries.  I have run out of options and it is the only way for me to get quality of life.  Of course i am scared but I see no other option.  I just cant take progesterone, tried and tried.  This is my NHS gynae, he also does private clinics but I am under the NHS.  Now i wait but until then I am allowed estrogel without taking any progesterone, i will be called for an internal scan to keep an eye on uterus health until the operation.

[Armadillo]

MollyDolly

Thank you so much.. I am in a sea of questions at the moment but just letting it settle. Some of the questions are completely irrational at this stage.  Then will read up and start a thread for some support too.

It is reassuring to hear you are doing so well.. i am genuinely happy for you.  I have run out of options so feel somewhat forced by my body but the thought of no more periods, progesterone and getting in control again is exciting... if only everything runs smoothly