I'm going to leave the forum after this post, but I did want to post some kind of a 'resolution' to all this - in case anyone is reading the thread in the future.
I had a reply back from the cardiac nurse. She said:
"All of these ECGs are normal. You can still feeling your heart beating more forcefully, yet all is well (I get this). Be reassured this all looks great. If the BP is not well controlled, you can indeed have more rhythm fluctuations. But all that looks good too now you are off estrogen. We can go ahead with an echocardiogram no problem – about 8 months to wait at the moment unfortunately. Interestingly, the hormone / palpitation link is something we are really interested in the moment, with specialists a little perplexed by the association even. Do feel free to send any further tracings through if you need to."
So that's great and I am very reassured there is nothing wrong with my heart. I will have the echocardiogram, even though there is a wait. I am hopeful they are going to do further research into all this and have more answers for women in the future as to why estrogen causes this for some of us. Now I am off estrogen, my symptoms continue to improve and I just get occasional symptoms (palps) at night or when I wake. My BP returned to normal immediately on stopping HRT. The high blood pressure episodes at night, caused by HRT, might be responsible for causing all these palps. That's my best guess.
For the record and before I sign out permanently: I am currently on 200mg of utrogestan orally, and continuously. This is working to suppress my endo just as well as any synthetic POP has ever done - and I highly recommend trying this to anyone else who has endo, and would like to be on HRT without aggravating endo. Or even to anyone not on HRT, but who wants a natural alternative to the synthetic progestins in POPs for controlling their endo. If doctors won't prescribe utrogestan alone, you can accept the script for both estrogen and utrogestan - and just take the utrogestan. If you get breakthrough bleeding, just schedule a bleed by stopping for 5 days every 3 months.
The desogestrel POP suppressed my estrogen/ovaries so I had low estrogen symptoms and caused this mess in the first place for me. I really don't recommend desogestrel to any women, especially peri women.
I'm going to leave the forum now. I feel like my own crisis has resolved and I'm really thankful to those who've helped. I hope I've been a little helpful to others, in the time I've been here. Pippa, I hope that you too are on the right path now...
Unfortunately there seems to be a bit of a witch hunt and personality war going on, on the intermittent fasting thread, and also carried through into other threads now - where everything I say is being picked apart for the sake of it by multiple people. I'm not interested in putting myself through being attacked constantly, or in personality wars. I've had a really tough year (as evidenced here!). I say things the way I see them. I might be blunt but I don't mean to cause offence. I guess the written word sometimes doesn't convey tone of voice and can be misconstrued. One of the people who was very helpful to me (ATB) has already left, for similar reasons, so perhaps it is just how this forum rolls.
Good luck to you all in your own journeys. Don't stop researching and looking for answers. Remember that science is in its infancy when it comes to women's hormones and you may have to experiment with some fringe ideas. And do check out Lara Briden's excellent book 'Hormone Repair Manual' for more info on the benefits of body identical progesterone.