Sounds awful luckylady. I've not experienced what you describe, but do get dry eyes. I'm still waiting for my rheumatology appointment, but the GP thinks I've got an auto-immune condition (lupus, or sjogrens, or connective tissue disease, or ... whatever, hopefully I'll find out eventually). In the meantime, I've been trying to find out more information. It seems that women are more prone to such conditions, and they often come to light around times of hormonal change (puberty, pregancy, menopause, etc.). It might be worth asking for that to be investigated?
When I was younger my hayfever was much worse than I experience now, and that also caused horrible eye problems, which still flare up every now and then. I take an anti-histamine all year round to try and catch any inflamation before it starts.
I hope you manage to get to the bottom of things.