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[Scampidoodle]

It might be worth a try with the antihistamine, even something like loratadine or cetirizine which you can get over the counter. Just as an experiment. I certainly identify the pumped daytime feeling from high histamine times when I was on estrogen. X

[sweettooth]

Scampi sorry for delay!
For all other ladies too….
Got jab end March last year, hormones went crazy and I mean crazy!! The surges of anxiety were unbearable, headaches back, heart rate and palpitations were cruel!  My specialist increased my Estrogel tablet until double dose but it only made thing worse, I was literally unable to stand and felt sooo depressed on the higher doses.
Because I then had to start decreasing this all took time and it’s toll….so was only by March this year that I began seeing improvement and then I got covid April past,  mild symptoms but exact same reaction as jab, honestly I thought I had reached the end of the road.
I read that covid and vaccine can heighten histamine and also that they somehow affect the E receptors.  My body was constantly on overdrive, my GP prescribed diazepam to try to calm things when really tough but I’m not sure they even helped! 
Anyway Iv been told I now have long covid due to immense fatigue, backache coming and going etc etc .known as covid coaster as it’s up & down.
I am getting more good days just lately which I am so v grateful for!
I take 2 x otc anti histamines, 1 DAO, high vitamin d & C, zinc and quercetin…..vit b complex & magnesium…rattling big time.  I’m also avoiding some of the high hist foods👍
I hope this is of help, it’s just my knowledge and experience, but I was fine before covid and vaccine…..we all react differently I know xxxx

[Scampidoodle]

Interesting sweet tooth. It may well have been the booster vaccine Gilla, that exacerbated everything. And then the getting actual covid more recently.

Some of my symptoms feel very much like yours sweet tooth.

For those who take DAO supplement, do you take before meals or other times. Note you take one a day sweettooth - when do you take it?

I have some awaiting delivery

[Scampidoodle]

That’s ok as at the Mo I feel bad upon waking (hopefully the fexo will continue to help) and then after eating (I get jittery and head fog, anxious, low) so in that sense the DAO should help. I don’t want to start on H2 blockers so hopefully the DAO should help.

[Gilla999]

Joziel that's very interesting and positive on the Utro not preventing ovulation for you - gives me some tentative hope!

On Friday I have my first monthly Xolair injection which is an immunosuppresant for the urticaria. A bit nervous about side effects but praying it works and I at least get a bit of relief without too many side effects... it's not a cure though, as soon as you stop it comes back and the injections are monthly. But at least it might bide me some time to work out what's going on and address.

I had my stool test results back today which confirmed leaky gut and also severe lack of absorption of fats, sugars and a couple of other enzymes I can't recall the names of. So thanks for the Zinc recommendation I'll look at that!

Sweettooth it was lovely to hear you say you've had a few better days recently. Keeping everything crossed for you that it continues, I know what a terrible time you've had of it.

Joziel I hope you have a better night tonight!

[Scampidoodle]

I’m hopeful for you Gilla as Xolair is a known treatment for mast cell issues so I hope it’ll be the breather you need. If they’re what’s pumping the histamine out it should settle things. And mast cells replace and calm so you might find a few months of injections and you can stop and you’re in a different place. One with no urticaria! Xx

[joziel]

1.30am. Arrrgggg. So tired. I start to drop off and then wake with a jerk just before deep sleep 😴

Heart now beating hard and faster than usual. I’m just so over this. I don’t think I can complete my two week diet trial without trying to change something else.

[joziel]

Hello everyone, it’s now 3am  I hope you are all fast asleep, just like my snoring husband next to me.

So I just took an anti histamine. Ceteri-something. Out of sheer desperation. I hope it works and I get very sleepy and finally get some rest. 

Which of these should I do next:

1) Double utrogestan to 200mg and stop the desogestrel. Hoping that this extra progesterone will stop the histamine symptoms? I have enough meds as I was supposed to be doing this anyway.

2) Reduce the patch down to 50? From current 62.5. Bearing in mind my estrogen on the 50 was only 233nmol and I’m 44. I was still getting these nighttime histamine symptoms on the 50 but perhaps less extremely - so it might help but i don’t think it’s going to be a total fix. I had no notable peri symptoms on the 50, no more than now anyway. So Peri symptom wise I haven’t achieved anything going from 50 to 62.5. It’s just that the bloods were a bit low.

What should I do? Or both?? As soon as the stuff I’ve ordered gets here I’ll be starting quercetin and DAO and zinc…

Will it never end…  I am starting to think Michael Jackson had it right with the propofol. Although perhaps with better monitoring….

[Marchlove]

Morning zoziel

Sorry to hear of you bad night, hoping you got back to sleep.

I’d do one thing first, probably lower the patch to 50. You can’t go by bloods. I was reading the other day that our estrogen actually peaks in the early hours of the morning and then has about 3 more peaks and troughs throughout the day.

What zinc did you order? I forgot to post some links about zinc-l-Carnosine for leaky gut, but here’s one

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7146259/

X

[Marchlove]

So is that a zinc-l-carnosine brand? X

[Tora]

Morning Joziel,
Sorry things are rough, interrupted sleep/insomnia is no fun. For me sleep disturbance is connected to anxiety and palps which I’d do almost anything to never feel again.
If you change your estrogen now (it was improving your symptoms up until the day before diet change) and/or add other meds/supplements I don’t see a reliable outcome for your trial and potentially a return of worse symptoms.
It’s taken incredible strength to get this far but is it healthy to continue?
Good luck whatever you decide.

[joziel]

Hi tora / yes it would affect the diet trial and me being all scientific and not changing more than one variable but to be honest, I’m now on day 6 of the diet trial which has been pretty rigorous until now - and have noticed zero improvement- if anything, things are worse!!

I do think I’d notice an improvement by now if diet was going to help. But I also can’t go on like this and need to try some other stuff as well now.

I may have to completely stop HRT and get over these symptoms and then increase very gradually from the start again. And I may be someone who can’t tolerate a decent blood level of estrogen but hopefully I can have some and it will do something…

Not sure what you mean with the estrogen helping symptoms until the diet trial. In terms of my original peri symptoms things are the same at 50 and 62.5 for me. I haven’t seen any further symptom reduction increasing to 62.5 from 50. I’m not benefitting in terms of peri symptoms being at 62.5. I just increases because my bloods were a bit low and I still had some joint pain. The minor joint pain is still there and hasn’t reduced further at 62.5.

[sweettooth]

Gosh ladies aren’t we all having a time of it!!  Sorry for each and everyone and sending heartfelt vibes that we all find continued peace v soon❤️
Scampi atm I’m just taking one a day b4 a meal no particular time of day, I’m not sure if it wud be better to take 2 daily🤷‍♀️I hope things improve for you soon, could well be the jab and the Covid indeed.
Gilla thank you, there is no quick fix for sure!  Can I ask where did you have stool test done to discover leaky gut?
Joziel I pray things fall into place for you, it’s a minefield knowing what to do for the best❤️

Ps does anyone know which probiotics are best for histamine etc? ❤️❤️

[Tora]

Not sure what you mean with the estrogen helping symptoms until the diet trial. In terms of my original peri symptoms things are the same at 50 and 62.5 for me. I haven’t seen any further symptom reduction increasing to 62.5 from 50. I’m not benefitting in terms of peri symptoms being at 62.5. I just increases because my bloods were a bit low and I still had some joint pain. The minor joint pain is still there and hasn’t reduced further at 62.5.

Hi Joziel,
I just meant that you felt better immediately before the diet than you do now. Would it not be better to return to a few decent nights’ sleep on regular healthy diet and then make a decision about changing E dose?

I’ve just seen a previous post of yours about farting and slow metabolism, what you wrote is identical to my experience! it has taken me months to get my metabolism back so perhaps I’m sounding over cautious around diet changes. . .

I’ve also just read that you got palps after starting HRT, same here.
I can’t take antihistamines of any type due to them causing (me) to wake up, even the drowsy ones. Have you noticed anything similar before last night?

[sweettooth]

Just read on DAO can be taken b4 each meal.  I’m going to take twice daily for now…..hoping all this will settle when covid does one🤨