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[Floo36]

It’s a truly awful time and I’m terrified what it’s doing to me.  I have horrific physical and emotional symptoms.  Whatever I try doesn’t work, my body doesn’t seem to absorb anything, I’m peri so can’t prove anything with bloods because I fluctuate wildly. I’ve not tried livial yet.  I’ve tried oral estradiol, zumenon and elleste solo, Premarin, estrogel, Sandrena, Everol patch , Estradot patch, femoston, estradiol implant. Also using daily vagifem and blissel but still have bladder issues.

I feel for us all that are suffering and existing unable to work or even leave the house. I just never imagined that Estrogen deficiency could do this, it’s cruel.  What do women like me do that don’t seem to absorb anything?

[Joy2066]

Hi I dont know what do to I'm so fed up at mo it all started last year about June were I had tooth ache caught an infection when I had my tooth out and a ear infection  started to get pains in face but even though my infection cleared up I was still getting pains in face an pressure and feeling dry mouth then pains in neck arm joints wierd feeling in head and hot flushes  and all I wanted to do was cry had to take time off work which I've never hardly been off work  before anyway booked in to ae few times bloods were always ok they looked at me as if I was some sort of nutter was stillgetting all these symptoms finally I got an appt with gp and decided these symptoms were down to menapause as he done bloods to check my hormones and said I was definitely starting my menapause put me on hrt I tried
2 lots of different hrt for the first 2 month felt worse to the point I lost my saliva then tried oestrogel 2 pumps and utrogestan felt like I still wasn't going to get better felt like my life was over but a few weeks into it my saliva came back and except for a few aches and pains my facial pain pressure in nose and tingling stopped and I started to feel like my old self again for a good 5mths now this month slowly but surely my my facial problems have came back but this time my teeth are hurting feeling sensitive. I  had a ct scan which came back clear and now waiting to see dentist to rule anything out . Ct consultant said if dentist doent find anything wrong with teeth it could be neuralgia anyway I've also seen gp again had blood test and a ecg as I was also getting palpitations and feeling wierd in head again and my blood pressure was high waiting on results but I'm down as a routine telephone appt which I've got to wait for a few weeks so I'm assuming it cant be that urgent maybe  I need a higher dose or a change of hrt i dont know but all i can say I'm scared fed up i starting to think my life is over i used to be so happy and very sociable person  now I cant plan anything as some days I feel worse than others . Sometimes I just dont feel like going out as these wierd feeling I've got are driving me insane sorry to go on abit but just had to write down how I feel and get it off my chest fell like I'm going to lose everything my life my friends my husband as I think he's starting to get fed up too just wish it would stop 🙁

[Sazzle42115]

Floo no luck with the implant? I've just had one 3 weeks ago. Nothing much happening had high hopes

[Skylark]

I'm so utterly fed up tonight I feel like I can't cope. I wish I hadn't started HRT. I'm constantly spotting now whereas the Mirena might have settled by now.  I just feel like going cold turkey. I'd rather the anxiety,  the flushes, the sweats, the everything.  I have no life like this.

X

[Nas]

Skylark, is the Mirena causing the spotting do you think?
You are on such a low dose gel, that it can’t be that causing the issues ?
What about having the Mirena out and trying femeston Conti? The progesterone in FC is quite gentle and the Oestrogen quite low in dose.

Hugs for all those who are suffering, it’s hell on earth and very lonely.

 Floo, have tried no HRT ? If so, do you feel better or worse?
Maybe give your body a break? Have you ever tried CBD oil for menopause? A good quality oil could help balance the body a little? Natural remedies?

Xx

[Skylark]

Hi Nas. I don't think it's the Mirena because I had stopped spotting for over a month when I started the HRT. I have just cut down from Sandrena 1mg to one pump of Oestrogel.  Changing HRT can't have helped but that's thanks to the shortage. I felt the oestrogen might be too high as my breasts were so sore. Cutting down seems to have helped. Unfortunately taking the Mirena out isn't an option as it was recommended by gynae because I had some thickening of my womb lining and had had a polyp.

So I feel stuck! X

[Nas]

Oh right.
I thought the Mirena was meant to stop or reduce bleeding or spotting  though? This is in fact one of the reasons why I had one fitted the other week. How long after you had yours fitted, did you stop spotting/ bleeding? I’ve had a bit of spotting today, but specialist says it’s normal until it settles down?

Mmm, it’s a tough one skylark, mainly because you are on such a low dose of Oestrogen anyway. Have you tried the patch, spray or oral ? I wonder if you would do better on one of those instead?

I think if the Mirena doesn’t work out for me, it’s coming out and I’m going to reduce down, until no HRT. Seriously, there’s only so much a person can take, trying to fathom out how to balance hormones!


Xx

[Skylark]

Yes, that was my hope, Nas. And I believe it had until I introduced the Sandrena 1mg which was equivalent to two pumps of Oestrogel.  Hence why I have reduced.  So fed up with this.

X

[joziel]

How long has the Mirena been in? I think spotting in the first 6 months is to be expected, so even if it had stopped for a month, if you are still within the first 6 months, I wouldn't be concerned about that...

Plus if you did have a thicker than usual lining, perhaps it is just continuing to do its job in thinning that at the moment with the spotting and when it has achieved that, the spotting will stop...?

[Floo36]

Sazzle42115, no my implant hanse worked.  Did you have yours done on the NHS or privately.  I wonder if they get the implants from the same supplier and wonder if there's a faulty batch or something?  Where did they insert it, and can you feel it because sometimes if they are too shallow they may not work especially if a poor absorber?

[Skylark]

Hi joziel,

I've had it from November, so was 6 months in early May. I stopped spotting at about 4 months but introduced HRT just after. Fine for a couple of weeks, then a very light period, sore breasts,  mood swings, headache, etc., then unfortunately the Oestrogel was out of stock so was put on Sandrena. Now back on Oestrogel. Been unsettled since!

X

[joziel]

Oh that sucks a bit. But I think, when you start HRT, you are supposed to give THAT 6 months too. So unfortunately you've had two lots of 6 months    If you started HRT in May, then November is when you would expect everything to have settled by for sure...