I’m so, so sorry to hear this. I could really cry for you. I’ve been on vagifem and systemic HRT for a few years and recently had the absolute worst flare-up of V.A in my life. It felt like the worst U.T.I since Time began!! The pain was off the scale. It felt like a roll of barbed wire in my bladder and I was doubled-up in pain, running to the toilet every half an hour to pass about 50ml of wee. One side of the entrance to my vagina was really swollen and I literally felt like there was something squishy just inside me - as if I’d suddenly developed a prolapse, or there were blobs of thick mucous trying to come out. I couldn’t sit or walk comfortably. My vagina was so dry that even the vagifem pessaries were falling out un-dissolved! It felt so much like bad cystitis/UTI that I even took some over the counter cystitis meds and then a few days later, when it still hadn’t cleared, I sent a urine sample to the gp for the lab to test just to check for infection in case I needed antibiotics (result - negative). I was totally desperate. I increased the vagifem to repeat the loading dose for two weeks and thought it was under control, but then symptoms started to come back again when I reduced the vagifem again. I started the loading dose again and bought some Yes W.B lubricant so I could dab a little bit on the pessary before insertion. It’s all under control again now, but it took a good few weeks for the swelling to go down to the point where I wasn’t uncomfortable and aware of it all the time. My life was in tatters for a while there and I thought I was never going to get better ever again. Increasing the vagifem helped me eventually. It was depressing and extremely debilitating. People don’t realise how bad it is unless they experience it. My heart goes out to you.
Can you discuss your work situation with your doctor too so they have a record of how you feel and how it has affected you? The last thing anyone needs who has V.A is someone a work talking about “taking steps” because of sick time. I hope you can get it sorted and get some support. Sending big hugs xxx