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[pricey]

Hi ladies,

Update on my outpatients appointment letter that caused so much anxiety over the weekend. Today got worse.

I managed to get a telephone consultation with my GP who hadn't been notified of the results arriving and knew nothing about an appointment.  She was able to access the histology report. She said no malignancy but some changes to the cells but confessed to not fully understanding the 'lab speak'. I said if there were changes did that mean atypia and wouldn't that mean a hysterectomy was recommended? She said it didn't say atypia but obviously some changes to the cells, although she doubted I would wait 4 months for an appointment if it was serious. She also said it mentioned a multi disciplinary team on the notes which threw me into a complete panic. She suggested I ring the consultant's secretary, saying try not to worry!

I did so, and she advised someone would call me back. The leading nurse hysteroscopist called me about an hour later. She immediately asked why I was so anxious and I told her what the doctor had said. She explained the 'disordered proliferative endometrium' as being extremely common in perimenopause and that she herself might have signed me off but given my age (56) and the fact that I am not yet through menopause, the recommendation was this is checked again in a few months time as a precaution, late menopause being a risk factor for EC, especially given the bleeding issues I've had. I asked if there was hyperplasia or atypia and she said no. It's an unstable endometrium most likely due to fluctuating hormones. From reading I seem to think it *can* precede hyperplasia and more sinister changes hence the need to monitor, although if I was a few years younger probably not. I mentioned the doctor had said changes in the cells but the nurse reassured me that wasn't what this meant. She also confirmed the MDT literally meant discussing the histology report with the senior gynaecologist. She offered to send me a copy of the letter but I said I was reassured by her explanation and it would probably only get me overthinking again! I asked if I should opt for a mirena npw after all. She advised I wait for the biopsy so they can check that against the last one and perhaps have the mirena when they do the next biopsy.

Not sure if anyone else has experienced this. I feel quite shaken after thinking the worst and not too happy with my doctor who is supposedly the gynae specialist at our surgery! She hasn't exactly been supportive during this time and has never looked into issues I've had with HRT. I told the nurse hysteroscopist I had come off all HRT last August and this was when my bleeds went really haywire.  No doubt the polyp they removed (which was benign) hadn't helped either.

I'm exhausted from worry!

X

[CLKD]

There's been a Bank Holiday which usually delays issues.  Your GP probably hadn't had time or knowledge that the report was ready to read.  At least she chatted to you as much as possible about the results.

And you spoke to someone at the Dept..  Lots of long words there to deal with!  So a follow up appt. in 4 months is probably to be expected. What a pity that you couldn't have been told all this B4 worry set in!  The trouble with professionals they know what is/not usual !  They know the routine according to what is in front of the them.  DH had blood tests 2 weeks ago and nothing more needs to be done as all within normal limits: the fact that they were querying diabetes didn't cross anyone's mind to let DH know the result  .  There is so little joined up thinking these days, such a lack of patient care 

....... and breath.  Make a list of your queries to take to the next appt..  If complications were expected i.e. hyperplasia I would have expected a 6 weeks appt. rather than 4 months.  A hysterectomy is a HUGE operation and best avoided unless absolutely necessary.  It can cause it's own problems and 1 needs to feel ill B4 even considering a major operation.

[pricey]

Thank you, CLKD. I still feel a bit shaken by it all.

Wondering if anyone else has had this outcome from a biopsy?

X

[sheila99]

I haven't had a biopsy so can't help but it seems you're in good hands and they know what they're doing. It sounds as though they don't expect problems but it's good they're monitoring it. If it won't send your anxiety into overdrive I would get a copy of the letter in case there's anything you want to query at your next appointment.