Happy New Year! Thought I’d update on what’s been happening since I started this thread.
The consultant’s letter arrived, mentioning APS and HRT, without actually stating that I had the condition. I spoke to my GP again and said I wanted to wait to find out if I had actually been diagnosed with APS, or even tested for it, before deciding on which HRT to go for. My GP agreed to look into some other options for me, and to write back to the rheumatologist to find out exactly what was going on with the APS.
I contacted the rheumatology nurse to try to get some information from my test results, and she offered to send me a leaflet about APS.
Fast forward to last week, and we received a reply from the rheumatologist - a very snotty letter, asking WHY I was contacting my GP for advice about APS (I wasn’t, I wanted to know if I had it or not). Anyway, she said I had been tested but my ‘anticardiolipin antibody was just borderline, which is not significant treatment wise’. So, not bad enough to be treated, but bad enough to affect options for HRT.
It’s put me RIGHT off seeing the rheumatologist again, and I am now unsure what to do about the HRT. I know I don’t want to get to the end of 2021 and still feel this rubbish though.