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Author Topic: Worry making me iill  (Read 1496 times)

Nik2502

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Worry making me iill
« on: February 02, 2020, 05:26:10 PM »

I wonder if anyone else feels like me?
I'm severely progesterone intolerant and currently on long cycle HRT under specialist care. BUT I spend my life worrying about the progesterone part - the depression is horrific - it makes me so low, I'm suicidal.
This also isn't helped that, as I'm only 49 and peri, my natural cycle occasionally kicks in.
Doctor is pushing the mirena as she feels it will be better for me and assures me I can have have it removed if I suffer similar problems.
I just don't know what to do but know I can't go on like this, frightened.
Thank you for any advice xx
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bear

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Re: Worry making me iill
« Reply #1 on: February 02, 2020, 06:21:02 PM »

Hi Nik2502,

I'm so sorry you're going through this awful experience. I also had suicidal thoughts on Utrogestan. I think Mirena is a good option. Hope you can sort it out soon.

BeaR.
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CLKD

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Re: Worry making me iill
« Reply #2 on: February 02, 2020, 06:22:24 PM »

What's the worst that can happen if you try the Mirena?
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Nik2502

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Re: Worry making me iill
« Reply #3 on: February 02, 2020, 06:42:19 PM »

That?ll I?ll go permanently mental and not be able to get it out! I have terrible health anxiety as it is and menopause hasn't helped at all!
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vintagefiend

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Re: Worry making me iill
« Reply #4 on: February 02, 2020, 07:35:28 PM »

i totally hear you! hate the prog part get so depressed and for some time aftr. using it (utrogestan) very sparingly which is obvs not recommended- havent got courage to admit to gp but at some point i'll confess and ask for a scan to check womb lining- once saw a private meno who said ableed 3 or 4 times a year sufficient but i worry cos i really don't take much- use it vaginally and have to writ off next 2.5 to 3 weeks! its no life, is it!
i have tried mirena and was't for me but obviously that doesnt mean it won't be ok for you.
i'm currently lobbying for hysterectomy- got to go back for 2nd opinion but won't take "no" for answer. don't think docs realise how bad it can be- crappy leeds meno doc said "well everyone feels like that on prog"- no they bloody don't!
you have my sympathy and i'll cross my fingers that mirena works for you- failing that it kinda helps to know yu're not alone and i'll keep forum posted if (when) i'm allowed hy sterectomy.
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Nik2502

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Re: Worry making me iill
« Reply #5 on: February 02, 2020, 08:11:13 PM »

I'm totally with you! I've gone six months before without taking progesterone. I dip in and out of it when I feel strong enough - which isn't often! I wouldn't admit it to my GP either. I've had a scan and biopsy and it was all fine.
I'd love a hysterectomy like you - isn't it awful that you feel you need a major operation!
But we should have a choice. We are entitled to live our best life. And I think more women suffer with the progesterone than cope with it!
Good luck with the second opinion. Fingers crossed xx
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CLKD

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Re: Worry making me iill
« Reply #6 on: February 03, 2020, 01:42:48 PM »

Hysterectomy isn't the answer in some cases though.  There will be a hormone impact even if ovaries are removed as a small piece may be left due to surgical difficulties.  It's not simply a case of whipping it all out!
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Mogster71

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Re: Worry making me iill
« Reply #7 on: February 03, 2020, 02:07:02 PM »

Oh no, bless you Nik  :(

I too am progesterone intolerant, but mine is mainly a physical thing (tummy/mood/palpitations). I feel for you x

This meno lark takes over your whole life. Some days I regret starting the HRT journey at all to be honest, the days of worry and feeling crap far outweigh the days I have felt good on it.

Hoping you can get some relief my lovely x
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CLKD

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Re: Worry making me iill
« Reply #8 on: February 03, 2020, 03:12:03 PM »

Oh Girls  :'( .........  Group  :hug:
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Mogster71

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Re: Worry making me iill
« Reply #9 on: February 03, 2020, 04:16:41 PM »

Back at you CLKD x
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CLKD

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Re: Worry making me iill
« Reply #10 on: February 03, 2020, 04:20:29 PM »

 :thankyou:

this too will pass  ;)
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Nik2502

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Re: Worry making me iill
« Reply #11 on: February 03, 2020, 05:35:36 PM »

I know hysterectomy isn't always the answer but it's the hope of a desperate woman!

I'd walk naked down Oxford Street if I thought it would help! 😊🤣
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vintagefiend

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Re: Worry making me iill
« Reply #12 on: February 03, 2020, 06:17:11 PM »

thank you, nik and, yes, it will be totally worth it!! i don't relish the prospect of it but currently have no life- everything is worked around prog- i can't work and i dread invitations!
it would be hysterectomy *without* ovary removal simply so that i do not need progestogens-so not quite as scary as plunging into full hysterectomy/oophorectomy- i'm menopausal now- no natural period over a year so feel i have a bit of a baseline (of pretty much zero!) to work from.
i would join you naked down oxford street if it would help!
have just started utro regime- 1 vaginal tablet in and already wanna climb walls. currently on 6 pumps oestrogel so i darent not do it.
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CLKD

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Re: Worry making me iill
« Reply #13 on: February 03, 2020, 06:54:52 PM »

As long as I don't have to shave my legs, I'll be there too ......... <wave>
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GypsyRoseLee

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Re: Worry making me iill
« Reply #14 on: February 03, 2020, 07:10:03 PM »

Oh my sweetheart, I know exactly how you feel. My peri hormonal fluctuations made me feel suicidal at times, too. Other people simply Do. Not. Get. It.

People witter on about yoga? Mindfulness? Aromatherapy? Exercise? Don't make me f* cking laugh. Nothing helps, nothing touches it. It is visceral and vile.

I won't bore you with my tale, but I finally (after three years of utter misery) found the HRT which worked 4 pumps + 100mg Utro X 7 days per month + sertraline. It cured me.

Up until then I wasn't taking enough oestrogen to stop the fluctuations + I was being given too much progesterone which negated most of the oestrogen anyway.

I believe (and Prof Studd told me) that for severely progesterone intolerant women like us the trick is to take as much oestrogen necessary to make you feel good BALANCED by as little progesterone you can get away with, just enough to keep your endometrium healthy.

And yes, yes, yes I too would have walked naked down Oxford Street if it would have cured me.

Try and have a read of Oestrogen Matters by Dr Avrum Blooming, it's incredible. We have been SO misled about the dangers of oestrogen and HRT.
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