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Author Topic: Help needed please 😟 new regime not suiting  (Read 1620 times)

Ljp

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Help needed please 😟 new regime not suiting
« on: December 29, 2019, 09:12:30 AM »

Hi all,
I had thread called “just seen meno specialist ” I really need some advice please. Apologies for long post, lots to explain!

I saw specialist n 12th December, to supposedly have my mirena coil changed, GP couldn't do it as strings have disappeared inside my cervix.
I have VA and was worried about discomfort of procedure.

Specialist suggested I leave mirena for time being (had it 4 years, and apparently they are now suggesting it's effective as part of HRT for 5).. and try utrogestan 100mg daily to see if it suits me.
I use 3 pumps oestrogel, half a pump tostran every other day, and have estring for VA, but often have soreness (externally only) can't tolerate oestrogen creams, just make soreness  and irritation worse.
I've also had 7 Mona Lisa treatments over the past 3 years.
She also prescribed intrarosa DHEA to use alongside the estring.

So...after a week, I stopped the intrarosa, it was fine overnight, but once up and about, the External soreness and burning were Intolerable, and I'm still trying to obtain relief a week on 😟

Utrogestan, I was very apprehensive of, it's seemed ok, but over Christmas I had bad IBS (I think possibly change of diet related though).....but I'm also feeling paranoid, like no one likes me, I feel unattractive, my hair is dry and frizzy (hasn't been great since menopause anyway, but worse now)....my nails are dry and brittle...I feel like I want to cry and shut myself away from the world, feeling ratty with my husband and out if control with my thoughts.

Is this likely to be utrogestan effects?
I felt great a few weeks ago, I was using half a pump tostran every day since September as advised by my Mona Lisa gynae, I used medichecks to have my testosterone levels tested and was told high (6.2) I contacted gynae, she said not unduly high for total testosterone result, but drop to half pump every other day as precaution.

I also mentioned the tostran to the nhs meno specialist as she wasn't concerned by result either, and agreed 1/2 pump every other day was good to continue with.

So questions are, should I stop utrogestan and ask for another mirena at my next visit? (She said she'd see me in 6 weeks time....still waiting for appointment from the practice she works from, will be 4 weeks now)

I also want to know if I can safely use 1/2 pump tostran per day again as I feel it was helping my bladder urgency and my VA, but I'm worried about blood result being high.

Sorry for such a long post, I'm overthinking everything and feel miserable and deflated, VA is getting me down as struggling to get this soreness under control, and I'm worried to keep taking utrogestan due to how I'm feeling, but equally worried to stop without discussing with specialist, but doubt I can get advise or speak to her as she isn't at the GP practice everyday, and I don't yet have an appointment....this is all too much 😥😥😥
« Last Edit: December 29, 2019, 10:19:10 PM by Ljp »
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Whatsupwiththis

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Re: Help needed new regime not suiting
« Reply #1 on: December 29, 2019, 02:03:54 PM »

ljp...have you been checked for vulvodynia?  This is a separate issue aside from VA.  Sounds like you've thrown everything at the VA and you're still sore so possibly something else...Lichen sclerosis?
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Ljp

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Re: Help needed new regime not suiting
« Reply #2 on: December 29, 2019, 04:49:45 PM »

ljp...have you been checked for vulvodynia?  This is a separate issue aside from VA.  Sounds like you've thrown everything at the VA and you're still sore so possibly something else...Lichen sclerosis?

Thank you for the reply.
Yes I have thrown everything at my VA, and it had been ok for quite some time, it's the intrarosa that's caused the flare up, and it's taking time to settle it.

My main question, I was hoping those with experience might be able to offer advice on, was regarding how I'm feeling at the moment and whether it could be the utrogestan causing it.
Whether to stop it, or stick with it until I see specialist in what should be 4 weeks time.

I've not had these anxiety, overthinking, and paranoia issues Since before I started HRT over 4 years ago 😟
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Whatsupwiththis

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Re: Help needed new regime not suiting
« Reply #3 on: December 29, 2019, 05:08:51 PM »

Sorry can't help out on the utro. issue.  There will be someone along who can offer their issues with utro.  Seems many ladies have issues with it.  Good luck.
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sheila99

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Re: Help needed new regime not suiting
« Reply #4 on: December 29, 2019, 06:37:22 PM »

Your symptoms sound more like low oestrogen to me though with both utro and the coil perhaps you have to much prog. I get tired on utro but not the symptoms you have, it's particularly bad when I produce my own too (in peri). They will have to remove the old coil anyway so will it be much worse if the insert a new one at the same time? As a matter of principle if it suits you I would be reluctant to change, and if you have VA using utro vaginally may not be much fun. If your symptoms coincided with the use of utro I would be reluctant to use it long term. You could try using it cyclically which will give you a bleed but you'll know if you're only bad on the utro phase.
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Ljp

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Re: Help needed new regime not suiting
« Reply #5 on: December 29, 2019, 07:45:19 PM »

Thanks Sheila, I'm debating stopping utrogestan, and just tell specialist when I see her that it didn't suit me, two prescriptions wasted! But not liking the flat feeling and anxiety or the terrible worse than ever dry frizzy hair!

If, as she suggested, the mirena is now ok for 5 years as opposed to 4, then my uterus will still be protected if I stop utrogestan now?
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sheila99

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Re: Help needed new regime not suiting
« Reply #6 on: December 29, 2019, 09:11:21 PM »

Yes, I believe it's 5 years for HRT so you will still be protected.
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Ljp

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Re: Help needed new regime not suiting
« Reply #7 on: December 29, 2019, 09:46:51 PM »

Might sound stupid, but I feel like I'm doing something wrong by dropping everything she prescribed without trying it for the full 6 weeks?

The intrarosa definitely made me sore, and I'm doubting the utrogestan, but equally worried I may not have given it enough time to know?
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Orangefoot

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Re: Help needed please 😟 new regime not suiting
« Reply #8 on: December 30, 2019, 07:23:57 PM »

Utrogestan made me act very strangely and upset me badly and within days my family asked me please not to take it ever again. If your mirena is still releasing progesterone, and you still have your own progesterone and then the utro on top, it might be too much, or it might just not suit you. I have a Jaydess IUS now and I'm fine with that and the Estradot patch. No screaming at the neighbours and no suicidal thoughts :oops:
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Hurdity

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Re: Help needed please 😟 new regime not suiting
« Reply #9 on: January 02, 2020, 12:01:24 PM »

I wouldn't want to take utrogestan every day anyway - let alone in addition to progestogen coming from the Mirena...if you are taking it orally this could upset your guts yes. Also could lead to permanently sedated feeling. Provided your oestrogen dose is not high then as there will still be progestogen being released from the Mirena your uterus lining should still be protected. If you start to get spotting you'll know it could be running low in your case.

Whay are you being prescribed Utrogestan if the specialist is happy that the Mirena contains enough prog to protect your uterus for anither year? Presumably this specialist is bona fide BMS approved?

Also re the testosterone - personally I wouldn't want to risk it remaining high - but the blood results might depend where you apply the T gel in relation to where the blood was drawn, and also when in the day the bloods were taken in relation to time of T application.

Hurdity x
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