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Author Topic: I’m a newbie to this forum  (Read 1535 times)

Anxious me

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I’m a newbie to this forum
« on: November 20, 2019, 06:12:08 PM »

Hello all lovely ladies out there suffering like myself. :'(

Just wanted to tell you my story and see if anyone can relate.  I started in peri in 2011 when I was 49 which I knew nothing about peri and what was happening to me, I suddenly felt very strange while out for a meal and thought I would faint, since then iv had every test imaginable yet no Dr suggested perimenopause but when I started researching it symptoms peri and menopause always came up.  Iv been in menopause since 2015 and feel iv not had my normal life since 2011.  Iv lost my independence, the little confidence I had and I feel I just live in my own small bubble.

On a daily basis I feel anxious and nervy, I'm off balance and dizzy some days. I get the shake and I rarely go into shops as they make me dizzy and I feel I will fall forward. Iv still managed to keep my job but I struggle through it and every week I say to myself I can't go on any longer I'll have to finish but I know I'll be worse at home because I'll just focus on how I'm feeling all day which will make me worse and I think I'd quite easily become depressed.

I have no appetite so struggle to eat but as I have reactive hypoglycaemia I have to eat little and often.  I can't sleep and have terrible headaches that last days. I get freezing cold to the bone and tingle from my head to my toes in fact I'm a mess.  I thought I would look after myself in my 50's ready for old age but I had to sop going to the gym and out for walks because of my balance dizziness issues.

Iv read so many interesting posts on here that have helped me a lot so thank you for that ladies. 

I can't take HRT as I already have a hormone problem with a pituitary tumour so I think iv been hit hard with all the horrendous menopause symptoms.

Can anyone else relate

Sending a comforting hug to all x
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jaypo

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Re: I’m a newbie to this forum
« Reply #1 on: November 20, 2019, 08:32:38 PM »

Hi and welcome to the forum
Yes to pretty much all your symptoms  :-\
I hadn't a clue what was happening to me,back and forth to dr,he must've thought I was a hypochondriac BUT not once did any dr suggest menopause,it's incredible in this day and age is it? I was so so dizzy,my dr told me to take stugeron,it's a travel sickness tablet which you can buy over the counter,2 tablets 3x daily and they really helped.
Look round the forum,put your symptoms into the search engine and you'll find any one of your symptoms
I was bad for a while but I think I'm coming out the other side now,this forum helped me immensely,so feel free to ask absolutely any worry you have x
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Jacmar

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Re: I’m a newbie to this forum
« Reply #2 on: November 20, 2019, 10:59:54 PM »

Hi, I can relate to a few of your issues especially the dizziness made worse when I go into shops etc!

My GP positive peri is responsible for this and other symptoms. I have been on HRT now for 1 month, no drastic changes but know it can take longer.

It's horrible, persevere as I'm sure it will go away soon. I'm not as bad when I don't think about it too much!!

Hope this forum helps, lots of people with lots of experience.
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QueenofReds3

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Re: I’m a newbie to this forum
« Reply #3 on: November 21, 2019, 09:20:45 PM »

Hello Anxious me.
I am interested in your post mentioning you have a pituitary tumour. Is this a non malignant Microprolactinoma or Micra? I have a Microprolactinoma, diagnosed over twenty years ago now. Had MRI and have been on medication on and off over the years. If you have the same I am interested in to finding out why you have been advised against taking HRT. I am on HRT and both the doctor and my consultant have both said it is okay to do so. I have my prolactin levels checked regular and taking the HRT has not affected the levels at at all.
I had dizziness , headaches and really bad aches and pains before I decided enough is enough. I have not had either of those symptoms whilst on HRT. I am not saying it is the be all etc etc but it has given me some quality of life.
Sending hugs to you too. X
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Bobidy

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Re: I’m a newbie to this forum
« Reply #4 on: November 21, 2019, 11:01:50 PM »

AM, I'm sorry to hear you are feeling so rubbish and peri is affecting your quality of life so much. I think many of us can relate.

Do seek further advice about your medical condition and hrt. A menopause clinic or specialist would probably be best. Or you could email Dr Currie on this site.

I wonder if the LatteLounge website would be good for you. It's a UK based online social space for women. It may help to make you feel less isolated at the moment. And of course you can chat on here too.

Dizziness is awful, I used to get it with anemia. Try to keep hydrated and you are obviously eating little and often too. Be aware of your breathing. It can also be linked to the Vasomotor symptoms of peri/meno.

Could you try just marching on the spot with a chair at the side of you as a balance if you need it. You could always layer up and do this outside your back door too to get some fresh air at the same time. Nadia Narain does a great chair yoga DVD for days when you feel a bit rubbish, which might be good for you. It's relaxing and you are supported by the chair x

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Bobidy

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Re: I’m a newbie to this forum
« Reply #5 on: November 21, 2019, 11:33:27 PM »

Also do check online if your local area does a walking for health group. They are groups of people with various ailments for various abilities and have a group leader (first aider) so you would be very safe in their company and it could provide some social support for you too. You could get a couple of Nordic walking poles for support in case of dizziness.

Let us know how you get on x
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CLKD

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Re: I’m a newbie to this forum
« Reply #6 on: November 22, 2019, 09:29:15 AM »

You are the first person that I have heard mention the feeling of falling forwards.  It happens to me in the theatre as the lights go down  :-\ so I haven't been there for over 10 years.  Also when walking I put a foot down but sometimes it doesn't land where expected and I kind of go off-line if that makes sense?

 :welcomemm:  browse round. Make notes.

If you aren't eating then that may be part of the cause for your headaches as can dehydration.  What snacks do you have to hand: as a recovering anorexic I have to make sure that I eat B4 my body requires energy to stop the nausea - dried fruits and nuts, bananas, slow release breakfast stuff, 'dextrose' tablets; gentle exercise and I always take a banana or a bar ............ not eating often enough can cause anxiety.

 :bighug:

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Anxious me

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Re: I’m a newbie to this forum
« Reply #7 on: December 01, 2019, 04:28:55 PM »

Thank you so much for all your replies, sorry it's taken me so long to reply but I still don't know how to reply to each individual person so until I do this is for all.

Queen of Reds  -   I have a microprolactinoma non malignant and my prolactin level is checked every 6 months and I have an mri every two years. iv just been taken off my medication for the first time in 17 years as my levels became in the normal range.  It's my GP that told me a caution sign came up on his computer when he was going to try me on HRT I stupidly just never questioned it. I'm worried about trying HRT at this late stage as there are so many to try and I'm afraid of side effects.

Bobiddy. -  Thank you for all your advice I will defiantly do the marching on the spot.

Thank again to everyone else you've made me feel better I myself already   Hugs 🤗 x
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