Please login or register.

Login with username, password and session length
Advanced search  

News:

Please have a look at the questionnaire page if you have a spare minute.

media

Pages: 1 [2]

Author Topic: Advice on thickened endometrium please  (Read 3183 times)

Hurdity

  • Member
  • *
  • Posts: 13941
Re: Advice on thickened endometrium please
« Reply #15 on: August 28, 2019, 06:59:08 PM »

Hi KateJ, this is interesting for me as I am coming up to 3 months on my current HRT regime (Everol 75mcg patches & Provera 5mg daily) since starting I have been having fortnightly bleeding (at time of period fresh blood, much lighter than normal period, mainly during the day little if any at night, the other two weeks its old blood for around 4 days) the cramps are getting really annoying, more often at night & bloating also. Was planning on making a GP appointment when I got to collect my prescription tomorrow as it has been going on for so long. I'm assuming it's the Provera that's causing the issues. I've never had any scans, investigations re endometrial lining etc but assume that will be the suggestion from GP. It's such a rollercoster this menopause what helps with some symptoms then causes others, hope you find a solution that you are happy with kate. x

Foxylady - it is normal to bleed for the first 6 months on continuous combined HRT and how much you bleed will depend to some extent on what regime you were on before ie the lining could have built up previously and the Provera is now dealing with it. Any bleeding beyond 6 months should be investigated or any bleeding you are worried about that appears abnormal or very unusual before this time period has elapsed. Are you actually post-menpause because you are referring to "at time of period"? If you are post-menopausal and on continuous combined HRT then none of it is a period as such - natural or artificial and there is no due date nor cycle. It's all abnormal bleeding - which as has been said can be expected initially. I hope your cramps and bleeding ease soon!

Hurdity x
Logged

Hurdity

  • Member
  • *
  • Posts: 13941
Re: Advice on thickened endometrium please
« Reply #16 on: August 28, 2019, 07:12:20 PM »

Hi kateJ - when you say 7 days post bleed - do you mean post the start of your bleed or post the end of your bleed? If the latter then you definitely do not need a hysteroscopy I would agree, and if the former well it's borderline. I've had a scan on what I thought was Day 7 (since start of bleed) and had lining of over 7 mm which sonographer said was normal - no action (last year). By contrast a few years ago i had a scan a little later in my cycle and was 7.4 mm and despite my saying I was on cyclical HRT the gynae insisted on referring me for hysterosocopy - mainly because a small abnormaility was noted (turned out to be a small fibroid).

A friend on another forum sees a private consultant and her lining is never less than approx 7 mm post bleed and her gynae is quite happy with that (she has them done annually) for the very reasons you say and those studies that have been done.

Also to give a contrasting view with my experience of hysteroscopy. Mine was offered either at a small local hospital where they only did them under GA or larger city hospital where I had the choice. Having never had a GA there was no way I was going to have a GA for what I saw as a small investigative procedure - saving that for if/when I needed an op of some sort. I wasn't worried about it at all. The instructions were to take two paracetamol and two ibuprofen an hour before the time of the appt which I did and I did not feel the hysteroscopy at all and barely felt the biopsy ( just a tiny pinch). It was done expertly by an experienced ?consultant or registrar and I wouldn't hesitate to have it done again.

I agree I would question in more detail but if nothing abnormal has been noted on the scan (TVS) then maybe not needed with a thickness so low, as you say. It is frustrating when even the experts disagree! In addition if you hasve been using less progesterone than recommended this could be the reason for the slightly thicker lining which should reduce - but perhaps your gynaes are offering this precisely because you have been taking insufficient - just to make sure all is OK as there is an increased risk of endometrial hyperplasia with less than recommended progesterone dosage.

Hurdity x  :welcomemm:
Logged

Wrensong

  • Member
  • *
  • Posts: 2114
Re: Advice on thickened endometrium please
« Reply #17 on: August 28, 2019, 07:30:39 PM »

Glad you posted with your experience of hysteroscopy being OK Hurdity - I thought I remembered you saying some time ago that your procedure had been fine, but couldn't be sure who it was!  Hence my saying some women don't have any probs with it.
Wx
Logged

onion relish

  • Guest
Re: Advice on thickened endometrium please
« Reply #18 on: August 29, 2019, 11:39:56 AM »

I'm so glad you posted this as I was told yesterday that my gynae is requesting one for me.

She mentioned it BEFORE she sent me for my scan - which showed a thickness of 6mm. She won't see me unless I have the hysteroscopy.

Okay, I fully admit I'm a complete wimp. Long story short, I'm an abuse survivor. I'm still seeing a specialist counsellor despite this happening from my early teens to my thirties. I take diazepam and painkillers for my smear tests and still find them incredibly painful.

I'm a wimp about the pain, but also about anyone between my legs!

I'm thinking of stopping my HRT and just cancelling everything. I cannot bear the thought of this procedure even if they give me GA. My abuser ex forced me to have an abortion which was the last time I had GA.

Having tears and a meltdown just thinking of this.

But back to your query. Can you not request a few scans to keep an eye on things? My scan was done abdominally despite the gynae requesting TVS. I had gone prepped for TVS (painkillers and diazepam - which are hell to get hold of from my GP despite my neuro telling them I was to be prescribed them for back spasms linked to my TM) and can't say I wasn't relieved but now I'm getting doubts at whether an abdo would have showed everything.

I'm also wondering if there's a financial push for these to be done. Why would my gynae have mentioned it before sending me for a scan?

I hope you get some answers and that you (or anyone else here) doesn't need to go for one of these unnecessarily. Good luck.
Logged

suzysunday

  • Member
  • *
  • Posts: 1311
Re: Advice on thickened endometrium please
« Reply #19 on: August 29, 2019, 04:52:30 PM »

Don't say you are a wimp onion relish, as said on here we are all different to coping with these things.  What you have endured with the abuse must be horrendous to cope with.

I was sent for a Trans vaginal scan and a hysteroscopy in the same week.  My lining was 5mm which the scan picked up.  The hysteroscopy did not get enough tissue for the biopsy so the gynae (who was a totally uncaring man) wanted me to have another. I refused and they settled for another tvs.  This was several weeks later and the lining had reduced to normal thank goodness. That was because I had stopped systemic hrt, tibolone.   Now I stick to local hrt.   It's hard to know what to take, I need something for atrophy otherwise life is unbearable.
Logged

Foxylady

  • Member
  • *
  • Posts: 533
Re: Advice on thickened endometrium please
« Reply #20 on: August 29, 2019, 05:24:51 PM »

Hi Hurdity, I'm peri and was on everol sequi for 3 months before starting everol 75mcg & Provera 5mg. If it is 6 months then that's fine as long as I have an idea what to expect. For both regimes I was started on it following a phone call by the GP (I had seen him earlier that day & he then emailed local mono specialist who advised him & then he phoned me). It has meant I haven't had the opportunity to discuss what I'm about to start & expectations etc. I know there are ladies here with personal & professional experience who are able to share with me. x
Logged

onion relish

  • Guest
Re: Advice on thickened endometrium please
« Reply #21 on: August 29, 2019, 10:31:25 PM »

Don't say you are a wimp onion relish, as said on here we are all different to coping with these things.  What you have endured with the abuse must be horrendous to cope with.

I was sent for a Trans vaginal scan and a hysteroscopy in the same week.  My lining was 5mm which the scan picked up.  The hysteroscopy did not get enough tissue for the biopsy so the gynae (who was a totally uncaring man) wanted me to have another. I refused and they settled for another tvs.  This was several weeks later and the lining had reduced to normal thank goodness. That was because I had stopped systemic hrt, tibolone.   Now I stick to local hrt.   It's hard to know what to take, I need something for atrophy otherwise life is unbearable.

Thank you, Suzysunday.

I often wonder why men want to go into gynaecology, especially those who apparently have no empathy towards women. Having said that, I've had the misfortune of coming across a few uncaring/harsh/downright unpleasant female medical professionals lately.

I wouldn't be able to see a male as it would be too triggering for me. My new gynae is lovely - I couldn't wish for better - however, I do wish she'd give me a bit more time to settle into the regime and maybe send me for a scan before sending me for this.

I hope you manage to find something less unpredictable for your atrophy. I'm all too familiar with physical problems making life hell - I hope you don't feel like that ever again.
Logged

am#

  • Member
  • *
  • Posts: 37
Re: Advice on thickened endometrium please
« Reply #22 on: August 31, 2019, 04:37:45 PM »

I have recently had my 4th hysteroscopy/biopsy , i have them to check on my endometrial hyperplasia , i find them very painfull i would say maybe worse than giving birth . Taking painkillers didnt seem to help atall  :'(
Logged

Hurdity

  • Member
  • *
  • Posts: 13941
Re: Advice on thickened endometrium please
« Reply #23 on: August 31, 2019, 07:46:58 PM »

Hi Hurdity, I'm peri and was on everol sequi for 3 months before starting everol 75mcg & Provera 5mg. If it is 6 months then that's fine as long as I have an idea what to expect. For both regimes I was started on it following a phone call by the GP (I had seen him earlier that day & he then emailed local mono specialist who advised him & then he phoned me). It has meant I haven't had the opportunity to discuss what I'm about to start & expectations etc. I know there are ladies here with personal & professional experience who are able to share with me. x

Foxylady - you may well bleed for far longer than 6 months if you are peri-mnenopausal. The 6 month rule is for post-menopausal women starting continuous combined HRT. It is basically your period coming through if ovulation has not been suppressed which it may not be when on HRT. Not sure why you have been given this type? You would be better off taking the Provera cyclically 10 mg 12-14 days per month which if you sync with your cycle should mean you only bleed once per month. Once you are near menopause then you could try conti again although you won;t know when this is - you will just have to trial it every now and again if this is what you prefer.

Hurdity x
Logged

Foxylady

  • Member
  • *
  • Posts: 533
Re: Advice on thickened endometrium please
« Reply #24 on: September 01, 2019, 08:19:24 AM »

Thanks Hurdity! Think I will speak to GP just to clarify why I have been put on the continuous combined HRT, he took advise from Meno specialist! x
Logged

kateJ

  • Member
  • *
  • Posts: 39
Re: Advice on thickened endometrium please
« Reply #25 on: September 05, 2019, 08:36:50 PM »

Hi kateJ - when you say 7 days post bleed - do you mean post the start of your bleed or post the end of your bleed? If the latter then you definitely do not need a hysteroscopy I would agree, and if the former well it's borderline. I've had a scan on what I thought was Day 7 (since start of bleed) and had lining of over 7 mm which sonographer said was normal - no action (last year). By contrast a few years ago i had a scan a little later in my cycle and was 7.4 mm and despite my saying I was on cyclical HRT the gynae insisted on referring me for hysterosocopy - mainly because a small abnormaility was noted (turned out to be a small fibroid).

A friend on another forum sees a private consultant and her lining is never less than approx 7 mm post bleed and her gynae is quite happy with that (she has them done annually) for the very reasons you say and those studies that have been done.

Also to give a contrasting view with my experience of hysteroscopy. Mine was offered either at a small local hospital where they only did them under GA or larger city hospital where I had the choice. Having never had a GA there was no way I was going to have a GA for what I saw as a small investigative procedure - saving that for if/when I needed an op of some sort. I wasn't worried about it at all. The instructions were to take two paracetamol and two ibuprofen an hour before the time of the appt which I did and I did not feel the hysteroscopy at all and barely felt the biopsy ( just a tiny pinch). It was done expertly by an experienced ?consultant or registrar and I wouldn't hesitate to have it done again.

I agree I would question in more detail but if nothing abnormal has been noted on the scan (TVS) then maybe not needed with a thickness so low, as you say. It is frustrating when even the experts disagree! In addition if you hasve been using less progesterone than recommended this could be the reason for the slightly thicker lining which should reduce - but perhaps your gynaes are offering this precisely because you have been taking insufficient - just to make sure all is OK as there is an increased risk of endometrial hyperplasia with less than recommended progesterone dosage.

Hurdity x  :welcomemm:

Thank you for this Hurdity, and to everyone who took the time to read and respond.

I just thought I would update everyone.

It is exactly as you said, Hurdity: 'It is frustrating when even the experts disagree!'

I had a follow up appointment today( brought forward by at least a month because of my email to them) at the Chelsea and Westminster Hospital with a consultant nurse who knew my name but nothing else about me or my case as I sat down. Very frustrating to say the least. Then, after my detailed explanation as to why i was there, she then agreed that there was nothing to worry about regarding the endometrium and discharged me back to my GP! And despite me asking why the Dr I had originally seen had recommended a hysteroscopy, she could offer no explanation.

I am obviously relieved and happy that they now think that I don't need a hysteroscopy, but frustrated at the nurse for not knowing anything about my case as I sat down in front of her. And I think it terrible that there are such inconsistent opinions about the need for hysteroscopies in the gynaecological field. I am also concerned that she didn't think it necessary to monitor my endometrium further.

The NHS is fantastic on the whole, but this falls a little short of best practice.

I think we just need to have confidence to ask more questions; it is after all. our bodies.




Logged

onion relish

  • Guest
Re: Advice on thickened endometrium please
« Reply #26 on: September 13, 2019, 04:16:30 PM »

Thank you for the update.

I don't know whether I will attend my appointment yet. Obviously, if I don't I'll let them know so someone else can have it. 

Am I missing something? Did you not have it done because you explained what was going on and it (sensibly) didn't go ahead?

I'm interested as if I go and explain what's going on will they try to insist I have it? Can I say no and walk out without risking future care? I worked in the NHS many years ago and am aware that with some "nuisance patients" they get punished down the line.

I'm losing sleep and am on verge of becoming hysterical several times a day over this.

Thanks and sorry I'm so dense - I had to search through my posts so everything is out of order.
Logged

kateJ

  • Member
  • *
  • Posts: 39
Re: Advice on thickened endometrium please
« Reply #27 on: September 18, 2019, 09:58:18 AM »

Thank you for the update.

I don't know whether I will attend my appointment yet. Obviously, if I don't I'll let them know so someone else can have it. 

Am I missing something? Did you not have it done because you explained what was going on and it (sensibly) didn't go ahead?

I'm interested as if I go and explain what's going on will they try to insist I have it? Can I say no and walk out without risking future care? I worked in the NHS many years ago and am aware that with some "nuisance patients" they get punished down the line.

I'm losing sleep and am on verge of becoming hysterical several times a day over this.

Thanks and sorry I'm so dense - I had to search through my posts so everything is out of order.

Hi Onion Relish,

The nurse seems to have decided against the hysteroscopy after our discussion.

I think you really should get a clearer reason as to why you need a hystersoscopy. And the thought that the people in charge of your care, be it in a hospital or GP centre, would be so vindictive as to ' punish ' you for taking charge of your own body, is terrible, but I can not say that that does not happen.

Please let us know what you decide to do.
Logged
Pages: 1 [2]