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Author Topic: Hot Flushes  (Read 1117 times)

Had enough

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Hot Flushes
« on: July 26, 2019, 01:02:29 PM »

 :'( Hi, I'm new here and I know that I probably won't find many solutions but it'll be nice to know I'm at least not alone!

I'm 44 and was diagnosed with Breast Cancer in 2013. In 2015 I was diagnosed with Secondary Breast Cancer, it had spread to the bone! So I am currently ‘living' with Cancer. Which includes have injections with have shut down my ovaries! I have all the usual Menopausal side effects but they just don't seem to be settling. For 3years I have been having Hot Flushes and Night Sweats! It's embarrassing and exhausting! Haven't slept a full night in years!

The hot flushes/sweating really gets to me and I just want a solution! Of course I can't take HRT although right now I would be tempted! Really tempted!

Anyone have anything they have tried to get rid of or ease Hot Flushes! Thanks  xx
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Jari

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Re: Hot Flushes
« Reply #1 on: July 26, 2019, 02:43:24 PM »

Hello there!

So sorry to read what you are going through!!

You'll be very aware that cancer cells live off hormones, which is of course why hrt would be bad for you.

I don't take hrt because I have a family history of breast cancer.

I've found that excercise really helps and by eating a diet rich is vegetables and fruit. Also I take good supplements. Viridian is the brand I take.

What kind of treatment are you having for the bone cancer?

Im sure there will be some ladies along soon who are going through similar to you, but there are many of us on here struggling with the hot flushes/sweats and this hot weather doesn't help. A cool bath before bed I find helps.

Also maybe if you try the cancer websites, they sometimes have forums too and you may find ladies with some good ideas aswell as here.

Welcome and keep posting!! XX
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Taz2

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Re: Hot Flushes
« Reply #2 on: July 26, 2019, 02:50:13 PM »

Hi Had Enough. You won't feel so alone now that you've found us.

I have a friend who is going through the same as you with her secondary bone cancer being 'managed' by steroid and hormonal injections so I know how difficult it is to deal with the effects of the treatment especially after being in remission from the original cancer.  :hug:

Although you can't use HRT there are other medications which can help alleviate hot sweats. One is a blood pressure medication called Dixarit which works well for some women. Also Fluoxetine (Prozac) in a low dose has proved helpful. Maybe one of these could help?

You will find lots of support on here.

Taz  :welcomemm:
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Had enough

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Re: Hot Flushes
« Reply #3 on: July 26, 2019, 03:25:49 PM »

Thank you for the kind replies, both much appreciated. I am already a member of the Macmillan site but was finding most people seemed to get over their menopausal side effects much easier/quicker than I am!! Starting to think that this might be forever?! However long that is!!

I am even considering an oophorectomy (removal of ovaries) instead of having these injections every 3wks! But will that guarantee to stop the flushes?! Not sure it will and that's the bit that worries me! Nothing seems to of gone right for me in the last 6yrs!!  :'( Sorry, just feeling sorry for myself! I'm usually much more determined and upbeat....but these flushes have slowly but surely driven me loopy!!
Thanks for the suggestions. I hope to see GP shortly to discuss things!
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Wrensong

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Re: Hot Flushes
« Reply #4 on: July 26, 2019, 03:58:02 PM »

Hi there Had Enough &  :welcomemm:  So sorry to hear of all you're having to deal with.  I imagine you're already familiar with the advice in the attached links, but just in case you haven't seen them before & have time to have a look, I hope there might be something helpful in them.  The last one, for the charity Breast Cancer Care, also has a link to a forum where other women in your situation might have helpful advice, in case you weren't given their info in your initial treatment pack on diagnosis.

https://associationofbreastsurgery.org.uk/media/64908/11-bms-consensusstatement-the-diagnosis-of-the-menopause-and-management-of-oestrogen-deficiency-symptoms-and-arthralgia-in-women-treated-for-breast-cancer-for-abs-01c.pdf

https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/going-through-treatment-breast-cancer/side-effects/menopausal-symptoms-after-treatment

https://forum.breastcancercare.org.uk

I had a decade of menopause symptoms I found very difficult to manage without HRT, which I'd avoided due to family history of breast cancer.  I've also recently had both ovaries removed & even though that was postmenopause it has had an additional adverse affect on symptoms.  I'm afraid I have no magic bullet & can only pass on a few things I found helped at night, which was my worst time for overheating:-

1 Hot water bottles filled with cold water & refrigerated all day then taken up to bed at night & left in a pile beside the bed, can be pulled in to cool you down when you get too hot.  This can be enough to help you get back to sleep, though you will have to swap the used bottle for another after a while, as they warm up with the heat of your body.
2  Blackout blinds/curtains kept shut all day with windows also closed to keep out the heat, help keep the bedroom as cool as possible, but open the windows as soon as it starts to cool down outside, to let in any air that's cooler than indoors!  Sleep with windows open if you can.
3  Take up to bed a big glass of iced water to sip whenever you wake too hot during the night.  If you get up for a while, run cold water over wrists & cool your face with a cold, damp flannel.  A hand-held battery operated fan by the bed can help to cool your face & neck.
4  Not sure whether you are currently well enough to exercise, but if so, don't do this too late in the evening as it can be hard to cool down enough to ensure the best possible night's sleep.
5  An oscillating desk fan in the bedroom (or better still an air-con unit) can help you feel more comfortable on the hottest nights.
6  If you find it hard to sleep under just a sheet & need the weight of a duvet as I do, Dunelm sell 1-tog duvets.  Mine still comes on & off all night though!

Do have a good poke around the forum & maybe use the search box to see how other ladies cope.  There is lots of brilliant advice & support on here.

One last thing - if you have never been referred to a menopause clinic, they may be best placed to help but I would ask your breast care team/oncologist to refer you so they can be sure to pass on all the relevant details of your history & any treatments (such as Tamoxifen) that may be contraindicated with some of the non-hormonal medications sometimes used to treat menopause symptoms.

I do hope you manage to find something to help.


« Last Edit: July 27, 2019, 09:19:41 AM by Wrensong »
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Wrensong

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Re: Hot Flushes
« Reply #5 on: July 26, 2019, 04:09:58 PM »

Sorry Had Enough, you posted again while I was writing the above - I see you're already a Macmillan forum member, so the Breast Cancer Care site links may not help you much.  I'm afraid I think having a BSO will continue to give you menopause symptoms similar to those you are already getting from your ovarian suppression treatment, but your oncologist is probably best to advise on this, especially if they feel BSO may give you a better prognosis than the injections.  Also not sure whether the injections might have additional side effects to those you would get from BSO alone.  As mentioned already, I had a BSO postmenopause, but it is known to give rise to more severe menopause symptoms when carried out before natural menopause has occurred. 

I really think you need to discuss this with the specialists involved in your BC care - make sure they know how bad you're feeling, as their main focus will naturally be on treating your cancer but they will also be aware of the effects such treatments have on women & will want to do what they can to help you.
« Last Edit: July 26, 2019, 06:34:19 PM by Wrensong »
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