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Author Topic: We need more options- feeling like a rant  (Read 8823 times)

Perinowpost

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Re: We need more options- feeling like a rant
« Reply #45 on: June 09, 2019, 09:39:26 AM »

It was Pepperminty who set things off, she's also been instrumental in driving this thing forward. And she's right we do need more options. I'll write later when I get some time, let's all write (this is an open invitation to all) to the email that Hurdity has supplied. Fingers crossed, we can do this x
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pepperminty

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Re: We need more options- feeling like a rant
« Reply #46 on: June 09, 2019, 03:17:45 PM »

Hi, joint effort between all ! I will write too when I have a moment this week and my head is clear. There is strength in  numbers, we all deserve better and more options- after all we are 51% of the population.

PMX
« Last Edit: June 09, 2019, 05:58:42 PM by pepperminty »
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Perinowpost

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Re: We need more options- feeling like a rant
« Reply #47 on: June 11, 2019, 11:13:47 AM »

I've written again to Mylan, I will update as soon as I've heard back x
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heavenlyblue

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Re: We need more options- feeling like a rant
« Reply #48 on: November 11, 2019, 11:20:09 AM »

Sorry to bump an old thread but I was having a look through a few (all wonderfully helpful) and I found this one.  I wondered how it was all going?

I will definitely do an email - power in numbers and all that :-) 
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Sgtvhilts

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Re: We need more options- feeling like a rant
« Reply #49 on: November 11, 2019, 02:24:47 PM »

Wow- I did not know dydrogestone came alone!
I am swallowing Femeston for progesterone purposes as I cannot tolerate the old urogestan, in fact dydrogestone is the only one I do tolerate.  I am on patches as well.
GP happy to prescribe, but meno oh no- to far out of the nice guidelines for them.......
Feeling pretty good on my self invented regime, but would prefer just to have the dydrogestone alone
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Perinowpost

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Re: We need more options- feeling like a rant
« Reply #50 on: November 11, 2019, 04:50:11 PM »

Hi all

I followed this up and rewrote to Mylan about all this but didn't even get a reply!  Since then I've been really busy, and also given all the shortages we're suffering I sort of lost my mojo with it all.

Any suggestions ladies?x
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Hurdity

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Re: We need more options- feeling like a rant
« Reply #51 on: November 11, 2019, 05:59:52 PM »

I never got around to writing - soz folks - but terrible that you got no reply Perinowpost?! We should all make a concerted effort ( at least those of us who didn't before - I think you've done your bit Perinowpost!).

Another suggestion - those who see an NHS (or even private) consultant at a meno clinic - can you ask them if there are any plans to bring it back to UK or if eg BMS is putting pressure on pharma etc? After all they seem to be in close touch with the companies especially now in relation to the shortages....

The point is Sgtvhilts is that it used to be available in UK as Duphaston ( produced by Mylan) but withdrawn (from UK) for commercial reasons more than 10 years ago.  It also used to be used for luteal support in pregnancy if I recall and I think its use for this was questioned ( vague recollection of something I read)? Since then though HRT has seen an upsurge (no ideas on the stats) and especially the body-identical ones or nearly so - Dydrogesterone being the closest synthetic progestogen to progesterone. Annoyingly Duphaston is still in production - is available in Eire and elsewhere in EU (some countries) but not UK - so it doesn't even involve the company having to manufacture something different - just needs re supplying or licencing or whatever. I would have thought they would want the extra sales?

Hurdity x

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Sgtvhilts

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Re: We need more options- feeling like a rant
« Reply #52 on: November 12, 2019, 12:11:05 PM »

Hi hurdity
Would that mean you could get it here off license??
That is a weird decision to just withdraw it , when still making it and available elsewhere.

Even some of the older sulphonamides ( pre antibiotic) and barbiturates, which are most defo hardly ever used and  certainly commercially non viable are still available.
Defo more to it than that.
Did Milan launch a similar new product ( more expensive of course) around the same time ?
Otherwise it is very odd.
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Hurdity

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Re: We need more options- feeling like a rant
« Reply #53 on: November 12, 2019, 06:28:59 PM »

Hi there Sgtvhilts

The weird thing is it just doesn't seem to be available at all in UK even off licence. What is very odd is that as I said it's available in Ireland and France and many other countries - but Femoston was made before 2008.....so I can't fathom what commercial reason there could be. It was originally made by another company which bought by another which was bought be Mylan but the timing doesn't coincide and anyway if the are still producing it - it's a mystery!!!

Someone could write to someone in BMS or their meno consultant and see if there is any more info or plans to make it available again....as well as the company....again?

Hurdity x
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KiltedCupid

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Re: We need more options- feeling like a rant
« Reply #54 on: November 12, 2019, 07:06:10 PM »

I vaguely remember researching separate dydrogesterone when I was on Femoston and in fact I think I bought some. Anyway, it's available in Spain, so for those ladies who'd like to use it separately and holiday there or have friends/family who do, it's available in 10mg tablet. Presumably it's the same as all hrt in Spain in that you can purchase from a pharmacy without a prescription.

https://www.vademecum.es/equivalencia-lista-duphaston+film-coated+tablet+10+mg-espana-g03db01-es_1
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Sgtvhilts

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Re: We need more options- feeling like a rant
« Reply #55 on: November 12, 2019, 10:09:12 PM »

Hi kilted- I just followed that link and it is available everywhere apart from here. The is really weird.
Does that link offer it for sale.... don't understand any Spanish to follow links.
I wonder if anywhere does on line sales?
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Hurdity

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Re: We need more options- feeling like a rant
« Reply #56 on: November 13, 2019, 05:00:26 PM »

Hi again Sgtvhilts

I have already checked this ages ago lol (in extremis!) - the fact that it's widely available and whether it's available online  ::). It does but looks like only from US or sold in dollars at absurd prices. It is not a long-term solution though anyway - ie buying online! It's not to be publicised anyway on the forum (links to buying stuff not allowed).  This subject has been discussed ever since I've been on the forum. I think there might have been some still available when I first joined, lurking in some gynaes stores maybe?

We need to have it available here in UK now and prescribed properly by meno specialists and GPs!!! I feel your pain!

Also I think I've found the reason - which is what I was suspecting after thinking about what you said about the launch of another product - Utrogestan first became available (licensed) for HRT in 2007 and before that there was no bio-identical progesterone for HRT (I used Cyclogest off-licence until 2011 which my enlightened GP used to prescribe).Therefore it could have been in anticipation of the reduction in Duphaston being used - possibly with infuence from the medical establushment - who knows?  However now the situation has changed with so much emphasis on body-identical or progesterone derived progestogens so time they re-visited that decision....

Hurdity x
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KiltedCupid

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Re: We need more options- feeling like a rant
« Reply #57 on: November 13, 2019, 07:44:53 PM »

Sgtvhilts - no, that's not a link to an online pharmacy, just to show it's available in Spanish pharmacies. From memory, but it's pretty vague as it was about 4 years ago, I asked for it in a Spanish pharmacy and had a consult with the pharmacist (non chargeable) as I wanted to use it instead of utro alongside e-gel and I was ok-ish on femoston. Turns out I didn't absorb EGel well so it didn't work. I wouldn't mind trying it again though as it wasn't a nasty prog.
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Hurdity

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Re: We need more options- feeling like a rant
« Reply #58 on: November 14, 2019, 08:47:30 AM »

Well I finally got around to writing yesterday eve (to Mylan) - but don't hold out much hope in view of others not getting a reply....

Hurdity x
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