Hi All,
I've finally got a gynae appointment (after waiting a year, I had a call today offering a cancellation tomorrow), and I've now gone blank
What on earth do I ask for?
A bit about me - I have Transverse Myelitis (MS type of disease), and have been on Evorel Sequi for a year. I was on Elleste Duet(?) for several months before that. I weigh about 16 stone and don't exercise much as I have trouble walking.
I suffer with the most awful flushes that floor me (bet you're all familiar with that). Not helpful with the fatigue I have anyway. My GP told me quite sharply, "patches or tablets, that's it!" but surely there's something else out there? I've read here about gels and was hoping maybe someone would offer me some advice on what to ask for.
The first month I took Elleste I felt amazing - better than I've felt for years. The next few months were okay, but nothing like the first. Then it was ALL downhill mentally until I ended up in the GP's with horrendous anxiety and a script for diazepam.
I was given patches, but have never felt great on them - not anywhere as good as that first month - but then, without warning, my patches were cancelled as I'd not had my blood pressure checked at the surgery and they couldn't give me an appointment for a few weeks. I had a spare pack of pills in the cupboard, so took them until my next period. And felt GREAT again.
Would anyone know if my weight would not give me good results with the patches? I know from listening to my Canadian cousin that some overweight women cut their patches in half and use 1.5 at a time, or the ladies using gel will use a bit more. Do gynaes allow this over here? My cousin use the gel for the first fortnight, then gel and the last fortnight of patches from a mixed pack. She has fibromyalgia and has the best results for her fatigue.
I have really light, but long and not very regular periods with the patches and had very heavy, painful, regular periods with the pills (even with that single month's worth I took in between patches).
I don't want to take the pills ALL the time as I'm quite immobile and DVT runs in my family. I also don't want the horrible permanent PMT and anxiety I had with them - I don't think my marriage will last if I go through that again.
Any help will be greatly appreciated, so thank you in advance.