Print

Please login or register.
1 Hour 1 Day 1 Week 1 Month Forever
Login with username, password and session length

[Angel1964]

Hi ladies has anyone had their thyroid tested with the basic blood test and results came back fine but then to find it was thyroid problems? I have so many symptoms of hyperthyroidism but doctor is refusing to do the full TSH test as he said my last results for the basic TSH test was ok. I am fed up that he will not test me fully.

[SueLW]

Hello

Lots of thyroid questions coming up today.  I am hypothyroid (under active) not hyperthyroid (over active) so I don't have experience of hyperthyroidism.  Did you mean over active?

There is no such thing as a full TSH test.  TSH is just one hormone, and it's not even a thyroid hormone it's a pituitary hormone.  But our current medical practice considers the TSH to be the "Gold standard" thyroid test.  A claim just about every actual thyroid patient knows to be balls!. 

To find out if you are over active, you need antibodies testing. 

Come back and tell me if you really think you are over active (and why) or if you got the term wrong and really think you are under active (hypo). 

[Angel1964]

Hello

Lots of thyroid questions coming up today.  I am hypothyroid (under active) not hyperthyroid (over active) so I don't have experience of hyperthyroidism.  Did you mean over active?

There is no such thing as a full TSH test.  TSH is just one hormone, and it's not even a thyroid hormone it's a pituitary hormone.  But our current medical practice considers the TSH to be the "Gold standard" thyroid test.  A claim just about every actual thyroid patient knows to be balls!. 

To find out if you are over active, you need antibodies testing. 

Come back and tell me if you really think you are over active (and why) or if you got the term wrong and really think you are under active (hypo).

Hi been going to Doc's and they are saying anxiety which I have suffered for years on and off. They want me to go on anti anxiety meds but I'm refusing as I have a phobia with tablets due to anaphylactic shock years ago through tablets. I am on femseven Conti patches at the moment being on them for 10 weeks so far.  My symptoms are rapid heartbeat, hair thinning notice that the last couple of months, tired during day but cannot sleep as body feels wired, stools have gone looser. Extreme tingling in feet, feeling cold and cold hands and feet, have started waking up at 5 or 6 a. M. With rapid heartbeat feeling nauseous sometimes being sick which is not my normal anxiety in my mind. Heartbeat in one or two ears when heart pounding. Dizziness at times and feel like I can't walk straight in a line. Losing weight has no appetite.

[Angel1964]

Hi Ladies. I've got my tests today. In January my Serum TSH was 0.89. Then in June it dropped to 0.42.  should I be concerned and should I insist on a full thyroid test?

[SueLW]

Hypo and hyper symptoms do overlap.  The fact that you are cold and have cold hands and feet and are loosing hair and feel anxious makes me think you are hypo, but that TSH result is not hypo.  The TSH only responds to hypothyroidism in primary hypothyroidism.  Central hypothyroidism can be caused by a pituitary problem and the TSH won't respond properly.

You definitely need more testing.  You need a full thyroid panel taking to include TSH, free T4, free T3 and all the thyroid antibodies.  But I'm not sure you will get that from your GP.  You can go back and ask though.  Tell them you just don't feel well and have hypo and possibly hyper symptoms at the same time and need further investigation.  If they refuse, ask to be referred to an endocrinologist for help.  If they refuse that too you will have no option other than to get some blood tests done privately. 

I too used to get that jolting awake in the early hours, the anxiety was awful, the pounding heart and pulse in the ears.  All horrible and all either hypo or menopausal for me.  I'm a work in progress on both.

[Angel1964]

GP refused a further blood test today. He said thyroid is normal on looking at blood test results X

[Peroxideblader]

hi there..I'm in the same boat I've been ill for 6 years all the symptoms of hypothyroidism and my blood tests indicate secondary hypothyroidism a pitituary issue as my t4 t3 and tsh are low. twice one has been under range but my doctors all say normal no action required!!
I've had 2 private blood tests but the gp wouldn't consider them at all so it was useless. you also need to have your b12 folate vit d ferritin tested as these can affect your thyroid and dosent work well with low levels..
I'm having to see an endocrinologist privately sadly as my doctor classes my test results are not too out of range..this is afyer taking 2 years of pushing..they blame all my symptoms on perimenopause anxiety and depression..yes I have perimenopause symptoms and yes I'm anxious and depressed because I'm sick of feeling ill😣

[Angel1964]

I am thinking of having private blood tests done. I feel like I'm a hypochondriac as I do worry about every feeling I get or pain. I do suffer with health anxiety and PTSD (my therapist said this). I know my GP will not change his mind and told me I will end up on anti anxiety meds

[SueLW]

Even just a private HRT specialist is likely to look at thyroid and take the right tests.  Mine did.  I actually think I know more about hypothyroidism than she does, but it doesn't matter.  She said my thyroid was struggling (TSH over range) and so she started me on treatment which I got on private prescription from her, it's not expensive.  Then a few months ago, at my request, she wrote to my GP and told them what we were doing and asked for the surgery to take over prescribing what I need for me on the NHS to save me money and they have.  I have a prescription waiting for me at the chemist when I run low on my HRT and my Levothyroxine. 

In my experience private endochrinologists can be a bit up themselves.  So if you consider one, do your research, see what you can find about their interests and special interests.  You don't want a diabetes specialist.