Hi sue I've just looked back at previous blood test results gp did and everything they said was normal except my d level was 39.9 which they gave me high dose supplement for and my cholesterol was too high at 7 which he tried to give me statins for even though id been on them years previously and reacted badly to them and had to be taken off again.
I've not supplemented b12 as that's the first time I've been tested
My TSH levels then were 1.49 range was 0.38-5.33
These were all tested in April this year full blood works at gps.
The reason I used nuffield was because that's where my consultant is based.
Thanks sue it's all a bit bewildering to me combined with the hrt issues it's really overwhelming.
It is bewildering at first, when combined with HRT issues. That's where I am too, but I'm no longer bewildered. Your thyroid TSH (which isn't a thyroid number at all really, it's a pituitary hormone) isn't too bad, but that doesn't mean a lot really. It's your free T3 that's the most important and at the moment that is showing too low. But your lower T4 (storage hormone) and T3 (active hormone) could be down to the low levels of nutrients you are showing. B12, iron, vitamin D and sex hormones are all needed to help the body produce more T4 and convert it into the active T3.
If your doctor gave you a high strength Vitamin D tablet, it won't actually be high strength. You need vitamin D3, with important co-factors of K2 and you need lots of it. A maintenance dose for many people is 2000 IU a day. To boost low levels you need 4000, or 5000 a day. You need the K2 with it to ensure the Vitamin D does what you need and pushes the calcium into your bones out of your blood vessels. You should load up on this vitamin over winter, but I keep supplementing it all year round now. I can't sit in the sun like I used to do. You can get an easy, cheap finger **** test for vitamin D to keep your eye on levels every 6 months and adjust dosage accordingly.
Avoid Holland & Barratt or Boots supplements. They are not good enough quality, only the cheapest hard to absorb ingredients. You need the best you can find to raise levels. The BetterYou D3 spray with K2 is a good one to use because it avoids any potential digestive issues slowing absorption. But the daily dose on the bottle is 3 sprays, you would need to use 5 to get the levels up, or you could use a bottle of high strength tablets first and then switch to the spray.
I also use their BetterYou B12 spray, but you could do with starting with something like this one, get a couple of bottles of this into you and then you could switch to a lower dose. You want the methylcobalamin B12, not the other types which are harder to absorb. Once you start supplementing with B12 blood tests are irrelevant. It takes something like 5 or 6 months without supplements before you get an accurate reading. So as we all need B12, just keep going.
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As I said in my other reply, it is actually vital to test full iron panel before supplementing. And you need to keep your eye on it to avoid going too high. But ferritin is the most vital of those readings for hair and T4 to T3 conversion.
If you do start taking an iron supplement, take 1000mg of food grade vitamin C with it each day. The vitamin C helps the iron to be absorbed.
If you could raise your levels of these things you may well see a return to full thyroid function without the need for medication, which is the aim. Ignore cholesterol. GP's are fixated on it, as they are on fat. Pity they aren't fixated on how to treat a thyroid patient optimally or how to give proper HRT help. But no, we mostly have to do both ourselves.
I hope some of this helps. When I felt despair at the start of my journey I wrote lists. Lists of the tests I needed and ticked them off as I collected the results. Then a list of the supplements I needed, the brands I wanted and the dose strengths. Then a list of how many of what to take each day and when. For example you never take iron with any other supplement other than Vitamin C. You should leave a 4 hour gap either side or the iron will bind to the other supplements and make them useless. This is why a multi-vitamin and mineral tablet with iron is useless. Might as well pour that money down the drain. The iron negates everything else. Those lists of mine have helped enormously. Now it's second nature. I feel odd this week because I'm retesting my thyroid bloods on Monday and the test I use will also check my iron and vitamin D levels so I'm off all supplements for a week first to get a good reading. The routines are all out!
I also use a lot of magnesium. We all need that and most people are short of it. I take it as a tablet at night to help me sleep and I use the BetterYou skin spray and body lotion.
I hope some of this helps you to sort things out a bit. On the plus side, my own hair is definitely thickening up again now. I have leg hair again (not a huge amount but enough to need to shave them occasionally). I have tiny hairs starting to regrow on my arms and my eyebrows are starting to lengthen again. Something I'm doing is definitely helping.
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