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Author Topic: PTSD  (Read 6229 times)

racjen

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PTSD
« on: February 27, 2018, 06:47:22 PM »

Haven't been on here for a while as my ongoing depression and anxiety problems came to a crisis again a couple of weeks ago. Crisis team called in again, to cut a long story short i was diagnosed with Post Traumatic Stress Disorder and started on EMDR therapy immediately. This is based on my cancer diagnosis having retriggered much earlier life traumas in which I felt I was completely alone. Really tough therapy as it involves reaccessing the horrible memories you've been trying to avoid for years, but feels like things are moving. But I think hormonal issues are still playing a part - for me I think low testosterone is a big factor in anxiety particularly. And I find myself once again feeling caught between the psychotherapy angle - PTSD is definitely part of the picture, I'm convinced by the results of the therapy within two weeks, and the medical angle, because testosterone is clearly playing a part too - I had a brief and wonderful respite from anxiety when I went onto testosterone a few weeks ago, then the whole effect just disappeared. Wondering if there is something about binding globulin going on here ie once my body detected the testosterone it started making the stuff that ties it all up (why?) And desperately wishing there was one professional who could make sense of the whole thing for me, but clearly there isn't, so i have to carry on trying to do it myself. I'm rambling now - does anybody out there even have a clue what i'm talking about?
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Lady Daviot

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Re: PTSD
« Reply #1 on: February 27, 2018, 07:41:34 PM »

Sorry, but wanted to offer you a Big hug and hope some of the other ladies can provide some insight. Wishing you well x
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CLKD

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Re: PTSD
« Reply #2 on: February 28, 2018, 11:29:45 AM »

Yep.  Kind of.

I found that talking about my childhood wasn't as traumatic as I thought it might have been.  Discuss, decide, ditch became my mantra and after a couple of years of intermittent talking therapy, I couldn't tell anyone what had bothered me enough 4 me to go to therapy!  It really did clear my head.  Talking to a complete stranger who couldn't turn round to tell me "that couldn't have happened in *your* family" ........ was liberating.

Stick with that.  Do you get homework ?  ;D .........

I can't remember if you had to stop the testosterone?
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Dancinggirl

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Re: PTSD
« Reply #3 on: February 28, 2018, 03:13:34 PM »

racjen - I can understand why you feel the testosterone helped but there may have been other factors that caused a raise in mood at that time. All hormones can have a variety of effects on any of us - some good and some bad - and these effects may only be brief.  You are needing a better way forward that will have a lasting effect.
It sounds as though you are getting good treatment, so if I were you I would try not to get too caught up in the hormonal side of things right now, just concentrate on getting your mind in a better place.
I'm sure that everyone experiences mental health issues differently and there will be many different aspects that will effect the mental state. Those helping you have to assess what is best and you need to trust them, don't over think things or look for quick fixes, just concentrate on working with their professional approach. 

I have had bad bouts of depression - it's very tough. Stay brave and bold and you will emerge stronger. DG x
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racjen

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Re: PTSD
« Reply #4 on: March 01, 2018, 03:15:16 PM »

The weirdest thing for me is that I've had years of psychotherapy in an effort to come to terms with what happened to me as a child, and I'm sure it has helped, but not in the extreme and rapid way EMDR (the therapy they use for PTSD) seems to be. But it's also very distressing in between sessions, whilst your brain is reprocessing this stuff which you've been sitting on for years.

As far as the hormonal side of things goes, I'm working very hard to put that to one side for the moment, but the short-lived effects of testosterone were quite hard to attribute to anything else - sense of well-being and reduction in anxiety I can see as placebo, but bearing in mind that I'm single, just had a mastectomy and sex was absolutely the last thing on my mind I find the incredible increase in libido much more difficult to dismiss. To put it bluntly I went from having no sex drive whatsoever to masturbating three times a day and having the most incredible orgasms. Sorry if that's too graphic for anyone out there but i prefer to say it like it is - just makes life easier all round!

I do suspect that something is going on here with Sex Hormone Binding Globulin - I note that this increases if your estrogen level is high, so maybe mine's now reached a level where it's hindering rather than helping. Hopefully I'll get to see specialist soon and in the meantime i'm throwing all my energy into EMDR therapy.
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CLKD

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Re: PTSD
« Reply #5 on: March 01, 2018, 03:51:39 PM »

How long do you feel distressed after each session?   Is there a group that you could interact with that have been through similar problems?  like AA or this Forum?
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racjen

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Re: PTSD
« Reply #6 on: March 01, 2018, 05:42:26 PM »

There's usually 3 - 4 days between sessions, I've found the pattern is that for the first couple of days after I feel terrible, really anxious, highjacked by distressing memories, tearful etc. Then at some point after that my brain kind of says OK, I've had enough of this and just switches off, so by day 3 or 4 I'm feeling numbingly depressed instead, which I see as my mind's way of taking a break before the next onslaught. Then I have the next session, feel OK immediately after and then we're back into the cycle. Bloody exhausting. Luckily i have a good friend who's had PTSD and has been thru this herself so I can always phone her. It's hard to explain to anyone who hasn't been thru it because I've never felt anything like it before - reliving the past as if it's only just happened and the grief is as fresh as ever.
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CLKD

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Re: PTSD
« Reply #7 on: March 01, 2018, 06:31:26 PM »

Did U grief at the time?   I suffer with delayed reaction, deal at the time but 6-8 months later, any little thing can set me off!
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racjen

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Re: PTSD
« Reply #8 on: March 01, 2018, 10:59:15 PM »

No, my original trauma dates back to losing my dad very suddenly when I was 14 and I was with strangers on an exchange trip in Germany. I felt totally alone, and even when I got home the grief wasn't well-managed - we were encouraged to just go back to school and get on with it. I developed a chronic eating disorder to cope with the distress and got on with life.It took me 30 years to start to address that grief, and the effects have stayed with me ever since despite years of therapy. Now looking back I can identify multiple triggers that have added to that unaddressed trauma, culminating in dealing with cancer on my own and feeling I just had to get on with it because no-one was going to look after me.
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CLKD

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Re: PTSD
« Reply #9 on: March 02, 2018, 11:00:46 AM »

Oh have a  :bighug:.  In the main though, do you feel that over-all, you have coped admirably as stuff hit you full on?

14 is a vulnerable age.  An in-between time.  It was also common for kids not to be involved in what was seen as 'adult trauma', not to be talked about.  It happened to me when a baby died, 15 months old, suddenly ........ Mum told me not to say anything to Dad or he would be upset and little girls don't like upsetting their Daddies  :-\.  Now I can see that it was another way of her controlling me and stopping Dad from building a relationship with me.

You are facing things that may well have 'grown' in your mind over the years as you had little or not outlet for your feelings. I don't think that this will remain with you long, do you get 'homework'?  I found keeping a journal: writing down my instaneious thoughts: really helpful. When I read it about 5 years later, prior to shredding the paper work, I would have been locked up had anyone else seen it  ::) but my head was clear.  My heart not as heavy.

I didn't feel 'adult' until I was 33 if that makes sense ......... :D

You will get through this.  You are allowed to be angry - I was told that maybe my parents dealt with my eating problems the best way they could at the time: but my Mum refused to call a doctor, "He will laugh if I call him in the middle of the night!" - so I never told anyone after that: if a GP would laugh  :-\  :'(.  Even now my DH and I talk about my phobia in coded language.

Pity that your more recent illness wasn't supported!  Usually there are specific nurses/therapists to help.  I don't think that the medical profession realise how truamatic patients can feel.  I always said that Medics should 'spend a week in that bed' B4 being passed as fit to Practice  ;D
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racjen

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Re: PTSD
« Reply #10 on: March 02, 2018, 07:17:28 PM »

No homework as such because it's supposed to carry on processing in the brain in between sessions, but lots of self-soothing strategies. I've been keeping a journal for many years - mixture of complete ranting and strange drawings. It certainly helps but not sure what anyone else would think if they got their hands on them!

I feel  i've coped in the only way i could over my adult life, just accepted that life is shit but we have to get on with it anyway, but I'm now having to deal with the fall-out from that. There was something on Woman's Hour today about how going thru breast cancer on your own must be one of the worst things imaginable, and i do think that's what's pushed me over the edge from coping to feeling suicidal at times. I remember that when I was having chemo, the high spot of my week was the District Nurse coming every Friday to flush my line and change the dressing. It felt like the only time I had an adult coming in and just taking over, even if only for half an hour.The rest of the time I was both mother and child at the same time. Bloody awful.
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CLKD

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Re: PTSD
« Reply #11 on: March 02, 2018, 07:38:25 PM »

That's total lack of support and the District Nurse should have been aware!  As should the Consultant and your GP!

Does the self-soothing work for you?
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Hurdity

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Re: PTSD
« Reply #12 on: March 03, 2018, 10:15:32 AM »

The weirdest thing for me is that I've had years of psychotherapy in an effort to come to terms with what happened to me as a child, and I'm sure it has helped, but not in the extreme and rapid way EMDR (the therapy they use for PTSD) seems to be. But it's also very distressing in between sessions, whilst your brain is reprocessing this stuff which you've been sitting on for years.

As far as the hormonal side of things goes, I'm working very hard to put that to one side for the moment, but the short-lived effects of testosterone were quite hard to attribute to anything else - sense of well-being and reduction in anxiety I can see as placebo, but bearing in mind that I'm single, just had a mastectomy and sex was absolutely the last thing on my mind I find the incredible increase in libido much more difficult to dismiss. To put it bluntly I went from having no sex drive whatsoever to masturbating three times a day and having the most incredible orgasms. Sorry if that's too graphic for anyone out there but i prefer to say it like it is - just makes life easier all round!

I do suspect that something is going on here with Sex Hormone Binding Globulin - I note that this increases if your estrogen level is high, so maybe mine's now reached a level where it's hindering rather than helping. Hopefully I'll get to see specialist soon and in the meantime i'm throwing all my energy into EMDR therapy.

Hi racjen

I missed your thread here - but see you mention SHBG. I have read a bit about this but it seems to be very complex and I don't begin to understand it. Actually I think not enough is known about it in depth in relation to exogneous hormones as part of HRT compared to endogenous ones, and also re the age related changes. Some of the information seems to be contradictory. What seems to be pretty conclusive is that oral oestrogen but not transdermal increases SHBG reducing free testosterone, although elsewhere I read that all oestrogens increase SHBG (but this could have been referring to endogenous hormones - since there must be some sort of feedback going on too) but androgens reduce it. Some papers provide info saying that even when SHBG levels are altered (eg with transdermal oestrogens), levels of the free (ie bio-available) hormones are unaffected. I've tried to find a summary or review paper on all of this but haven't been able to! I think it's an under-researched area. The other thing is I have picked up from past reading that at least oestrogen operates through receptors on two levels - (and probably testosterone too?). There are the immediate effects (eg sexual desire, feelings of well being) - I think through receptors on the cell membranes, and the long term - where changes are made in target tissues (where there are receptors) through the cell nucleus and the genes (eg re collagen, circulatory system etc). Most women know this inutitively because we are aware of changes to how we feel throughout the menstrual cycle - and these are short term, immediate feelings. The same thing probably happens with testosterone (which also apparently rises around the time of ovulation when our oestrogen is also at its peak) - so there may be immediate increases in libido from increases in T - but not sure how this is affected long term? Yes what is happening to you (hormonally) must have something to do with SHBG. Also the other thing is testosterone has a greater affinity for SHBG than estradiol so maybe the exogenous hormones are somehow messing up with this? Sorry that is very unscientific and a very rambly means of saying I don't really know what I'm talking abut - well trying to understand it! Feedback mechanisms are always like this though - complex!

I do hope you see a way through it all soon ....

Hurdity x
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racjen

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Re: PTSD
« Reply #13 on: March 03, 2018, 11:54:14 AM »

Thanks Hurdity, yes it really is so complicated, i think even my specialist is struggling to understand what's going on. i had read that too much estrogen can stimulate production of SHBG so I'm hoping that if we now reduce that it might help, but who knows. Just feels like one complication after another, and on top of the PTSD diagnosis I feel like I'm being attacked on all sides and all I can do is surrender and get thru one hour at a time. Particularly difficuly right now when we're pretty much snowed in so all my coping strategies like walks, visiting friends etc. are on hold.

CKLD, the self-soothing stuff helps up to a point, depends on how bad it is really. That memory of the district nurse reminded me that when I came home from hospital after day surgery for mastectomy (day surgery - I couldn't believe it at first), I had no support whatsoever. My ex-husband had come to be with my daughters but he and I don't get on so he made it clear he wasn't here for me. The surgery unit didn't phone to check I was OK until 24 hours after the op, there was no district nurse visit, I had to empty the drain myself and get myself back to the hospital after a week to get the drain removed. And all they gave me for pain relief was paracetemol. Undressing for the first time, and facing the fact that I had a great big scar across my chest where my breast used to be was one of the most painful things i've ever had to deal with, and I was all alone. No wonder I've ended up with fucking PTSD.
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racjen

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Re: PTSD
« Reply #14 on: March 03, 2018, 11:55:44 AM »

Sorry if my posts are a bit over-emotional today - finding the suspension of all my coping routines, plus cancellation of therapy etc. and feeling trapped at home very hard to deal with, i'm climbing the walls  :'(
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