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Author Topic: Hello again!  (Read 1512 times)

Tanuki67

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Hello again!
« on: September 12, 2017, 04:35:55 PM »

Hello to you all again.  I made my first post a few months ago and was so grateful for the welcome and advice.  My periods had got a bit erratic and I was having awful mood swings and in particular feeling very angry at times.  I was considering HRT but just beginning to realise what a minefield it all was.  You all told me I was peri and were so helpful and supportive.

Haven't posted again since because I've been feeling so awful, akin to lying face down on the floor waving a white flag.  I very naively had thought that HRT was the answer to everything and would make me feel amazing again, how foolish I was.  I think you practically need a PHD to understand it all, the different variations, methods of taking it and I had not expected that some of the side effects could actually make me feel WORSE!  So I haven't accepted any prescriptions so far but the worse I feel the more I think I may have to.  My fears are that I haven't got on at all well with synthetic hormones in the past.  I tried umpteen variations of the pill in my 20's before I gave up.  I also had a horrible experience with progesterone following PND with my first child.  It made me feel the worst I've ever felt, I literally was lying on the floor crying and I only took one dose.  So I am terrified of the progesterone side of HRT but as I have a uterus understand that I would have to have it.  I have also always suffered premenstrually so I think I am progesterone intolerant.

I decided that I would therefore have to go the diet/vitamins way and I reasoned that we must have all done this prior to HRT and that I should just grit my teeth and get on with it.  Unfortunately it is proving tough and I would appreciate any advice you can give.  I think it is also tough to make an informed decision when you aren't feeling particularly great and easy to be taken advantage of.  Do I buy the vitamins for £££ that I've seen online that promise miracles or am I being ripped off?

At the moment, having had a turbulent few months of very frequent periods, I now haven't had one for nearly two months, although I constantly feel like I'm going to have one physically and emotionally.  I keep hoping that it might all be over and instead of feeling angry I now feel pretty low, anxious to the point of panicky and have awful insomnia (the worst thing of all) and the horrible night sweats.  GP hasn't been terribly helpful but has prescribed Clonidine, which I haven't tried yet as I read it can cause insomnia!  There dont appear to be any menopause clinics near me or any doctors who specialise in the menopause.  The nearest is in London and if I'm going to ther then I suppose I may as well see the fabled Prof Studd, although this would be a great expense for me, but the way I'm feeling it may enable me to carry on working or even just functioning.  Thanking you all in advance.
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CLKD

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Re: Hello again!
« Reply #1 on: September 12, 2017, 04:41:36 PM »

HORMONES!

What's wrong with spending money on your health?  We shouldn't need to but with some specialities it is often worth while getting a private opinion rather than going from one idea to another with the GPs. 

Maybe keep a food/mood/symptom diary.  Charting what is happening daily so that whether you go NHS or to Prof. Studd you have an idea of your recent medical history.

Maybe eating every 3 hours might help? even in the night.  This advice was given to me by the National Association of Pre-menstrual Syndrome (NAPS) in the 1990s when I felt really ill B4 each period.  The idea is that the body uses energy that we don't often replace, eating every 3 hours, 24/7 can ease the lurch and associated anxiety. 

There is an alternative room - have you read the threads there?  Also, some find that herbals etc. help initially until the hormones take over.  Then any benefits may be lost.

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Tanuki67

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Re: Hello again!
« Reply #2 on: September 12, 2017, 05:03:40 PM »

Thank you for the info.  You're right about the money thing, I've probably spent more on the dog's health than my own!  Will keep a diary and try the eating more regularly thing.
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Hurdity

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Re: Hello again!
« Reply #3 on: September 12, 2017, 05:31:34 PM »

Hi Tanuki67

Sorry to hear you are struggling.

The most important thing to do - whatever else you decide re HRT, rather than spend £££ on the miracle cure supplements - is to do what you suggest yourself - re diet and vitamins (through diet). So have a good look at your diet and see if you can make any changes - the best thing is cooking food from fresh, avoiding processed foods, cutting down added sugar ( or eliminating it completely) as well as refined carbs, pastries, cakes, bsicuits and cutting down on things like pasta, rice spuds, and replacing all of this with lots of fruit and veg, lean protein, fish, nuts, beans and pulses, as well as complex carbs if you need them eg muesli, wholemeal bread etc - you might be doing this already. Cut down on caffeine, alcohol and smoking ( if you do this), try to maintain a healthy BMI and if possible take more exercise - both aerobic and body strengthening exercises. There was a thread Taz put up about a new Public Health initiative - Active 10 (in the General Health section)- 10 mins walking per day as a minimum.  Good night's sleep ( if you can) reduce stress, do something relaxing every day etc. Apologies if you know all of this and do it already!

Re periods and HRT and anti-depressants: your doctor should not be prescribing anti-depressants as the first line of treatment for menopausal symptoms any more - the NICE Guidelines recommended that women should be prescribed HRT in the first instance if their cycle, age and symptoms suggest menopause and there is no medical reason not to do so.

I understand your fear of taking hormones especially artificial ones. The good news is that most oestrogen nowadays is "natural" in the sense that it is estradiol - which is the same as out body makes - and you can take this as a patch or gel which gets it into the bloodstream in the most natural way ( unlike pills which have to go through the liver). The progesterone is available as micronised progesterone - Utrogestan - and again this can be taken vaginally to minimise side effects ( off licence in UK).

You should not need to go and see John Studd  as both these hormones are available on NHS so do your research (read up on the different types) and ask your doctor for them. The tricky thing is that you want to keep progesterone to a minimum if you are intolerant so your doc (sounds like it needs to be a different one at the same practice - find out which one has the relevant qualification and is sympathetic towards menopausal women as well as knowledgeable about HRT) will need to approve perhaps a shorter cycle eg 10 days rather than 12 in the first instance.

Now that your cycle is lengthening it may well be easier to find a regime that works for you - it is the time when periods are getting more frequent that is difficult to treat ie the last stage before peri-menopause proper, starts. I have only ever used patches and I would recommend Estradot although there have been supply problems with this. Oestrogene patches should deal with your night sweats and flushes. Many women use gel but some find it gives too much oestrogen in high bursts at this stage although I've never used it myself.

I hope this information is helpful and gives you something to think about - do come back if you have any more questions. Hope you feel better soon :)

Hurdity x
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Tanuki67

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Re: Hello again!
« Reply #4 on: October 29, 2017, 12:36:32 PM »

Dear Hurdity

Thanks so much for your reply and excellent advice.  Very rude of me not to have replied sooner, but I haven't logged in for a while.  Sometimes it helps to post just to get things off your chest and to know you aren't alone.

I'm really not any nearer to deciding the course I want to take.  I'm still very wary of any form of progesterone but a hysterectomy seems an overreaction at the present time.

I read somewhere that 80% of women are period free by the age of 51 but talking to friends and colleagues this doesn't appear to be the norm and so I may have a long time to go.

I've returned to the very frequent 14-17 day cycle and still concerned with my irritability/anger but today is a good day so onwards and upwards!
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Hurdity

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Re: Hello again!
« Reply #5 on: October 30, 2017, 05:22:43 PM »

Hi there Tanuki67

No probs - I get used to it (members sometimes not replying to my posts!) - as long as it was helpful at some point! Actually the info on this website is that 80 % of women have gone through menopause by age 54 not 51 so those 3 years are crucial! It is the average age of menopause which is 51/52 - a different statistic entirely. Also all the stats do not take into account those many women who take HRT before they reach menopause (like me) and who never know their menopausal age!

I don't think I mentioned that there is a CCP which will control the cycle but which contains the oestrogen type the same as in HRT (ie estradiol) - not the stronger synthetic ones, and also the newer generation progestogens (4th generation) - called QLAIRA  and ZOELY. These would regulate your cycle to 28 days and also have very few tablet free days so avoiding the oestrogen dip of the classic CCP types.

I hope you manage to decide what best to do to alleviate your symptoms....but yes it often does help just to write it all down!

Hurdity x
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