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Author Topic: In agony and just cant stop crying  (Read 6430 times)

Hurdity

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Re: In agony and just cant stop crying
« Reply #15 on: September 19, 2017, 07:13:04 PM »

Hi maraki

 :welcomemm:

Sorry to hear about your symptoms. Sounds like you're having as rough time.

In your position I would press for a complete endocrine  testing and full blood count as these symptoms are not usual in someone so young.

What are your period cycles doing - are they regular or irregular? Do you skip them sometimes?

Are you in UK?

What were your actual thyroid function readings compared to the lab ref range?

It does sound like extreme pms but all mixed up - can you keep a diary so that you can note how any of these symptoms relate to your cycle?

Don't worry about the language - your post is very easy to follow and you sound fluent to me! I would resist taking an anti-depressant because you need to get to the bottom of what is causing these symptoms. If you are peri-menopausal and in UK there are certain recommendations re testing for this so it is important to follow this up. You are deemed peri-menopausal if your cycle is very irregular but if you are getting these symptoms it may be possilbe for blood tests to be carried out anyway. They would be testing for FSH but needs to be done on two occasions 4-6 weeks apart at your young age.

I started typing this a couple of hours ago and I see you have responded re your ovaries. If you have irregular periods there is a condition known as Polycystic Ovary Syndrome which causes irregular periods, cysts on the ovaries and high levels of androgens which can cause symptoms like hairiness.

There is some information here:
http://www.nhs.uk/conditions/polycystic-ovarian-syndrome/Pages/Introduction.aspx

Has your doc considered this possibility?

Do pursue some of these and do not be fobbed off with things like "there there take a vitamin" (or an AD), "there can't be anything wrong at your age"!

Do let us know what happens and what you decide to follow up.

Hurdity x


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KAH

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Re: In agony and just cant stop crying
« Reply #16 on: September 20, 2017, 07:17:30 AM »

As others have mentioned, when reading your list of symptoms, my first thought was ME (chronic fatigue syndrome). I've noticed since jumping on this awful peri journey, that a lot of the symptoms I've experienced before with my ME illness x
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maraki

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Re: In agony and just cant stop crying
« Reply #17 on: September 20, 2017, 02:17:26 PM »

Hello again and thank u a lot for your immediate answers. I signed my post  with my real name Maria and maraki is the nickname of Maria in my country, its the same so no problem..
I live in Greece but unfortunately I could not find a forum with a lot of information to share my experience and exchange any advice or help.
I have visited so many doctors and so many tests since last May that I have not visited all my life. So many tests and no help. I feel desperate because I am so young to have so many problems.

My thyroid hormones are within the normal range. I had also checked my female hormones twice and the results were the following
FSH 10,54 LH 11,7 Estradiol 55 last November
FSH 9,99 LH 10,45 Estradiol 48,42 last April
My gyneocologist told me that they are ok. I do know if he told me the truth but he was negative to prescribe me hormone pill. He said that he did not want to touch my hormones...

In the past, many years ago around 2009 I have been told that I have PCOS syndrome ( mild case) without cysts on my ovaries, only high prolactin level and androstendione.

I always had regular periods and now I have my menses every 28 days although I have noticed that I have some brown discharges 2 days earlier every month.....As I said earlier, my period lasts 4 days with normal flow for 2 days and then only spotting. It is weird...

My problem is very inexplicable and it is not neurological or psychological I think.

To cut the long story short, during my period I feel better, some kind of relief and around 5 or 6 day of my cycle until my ovulation the nightmare starts. After my ovulation a feel a little better for a week and then PMS starts and I feel awful again. Basically, I feel almost fine one week out of 4 every month.

I am writing down my symptoms every day and I report them to every doctor but they are looking me like I am "crazy" but I am not and I know it. The pain and my symptoms are real.

My endocrinologist suggested multivitamins and we will see ....
« Last Edit: September 20, 2017, 02:21:15 PM by maraki »
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Hurdity

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Re: In agony and just cant stop crying
« Reply #18 on: September 20, 2017, 07:43:06 PM »

Hi again maraki

OK so you have been told you have a mild case of PCOS then? I would have a look at the link I gave in my earlier post and specifically what it says about treatments and take it from there. If you are overweight then losing weight may help. The (combined) contraceptive pill is also sometimes  suggested to regulate the cycle and stabilise your hormones - and especially if you are suffering from extreme PMS.

It does sound as though you need to have more specialist advice though  :-\

Sorry I can't be of more help, and I hope you do find the help and treatment you need.

Hurdity x
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Emerald2017

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Re: In agony and just cant stop crying
« Reply #19 on: December 31, 2017, 11:47:27 AM »

Maraki hi! I'm from Greece too! Nice to find you! If you want please contact with me! I'm in the same boat!
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