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[yriches65]

Hi There,

Does anyone have any other recommendations of GP's/Specialist that can sort out this madness.... looking for other options than Studd, Panay etc...

As the 'Studd' regime hasn't worked for me and seem to have suffered the last month unbearably after starting Estrogel

Big Hugs

Y x

[dazned]

What type of hrt would you like/think to try ? You can get most hrts from your gp without paying to see someone else. Which part of prof stud regime did not suit ?

[yriches65]

Hi Dazned,

So far i have been on 3 regimes

Regime 1

2.5 mg Bi-Est
100 mg Progesterone trouch
5 mg testosterone....

Sent my levels sky high and suffered..

Regime 2

Estriol Cream Transdermal
Progesterone cream transdermal

Regime 3

Estrogel 2 pumps
4 mg testosterone

It is the Estrogel that i struggled with, as soon as started it 3 days later started with burning, sore, swollen down below. Stuggling with anxiety, suidcidal thoughts , odd flush, feeling unwell...

I am 12 years hysterectomy and ovaries removed, had to come back onto HRT a year ago as stuggling with anxiety, insomnia

My local GP doesn't have a clue and don't have any faith in them

Looking for anyone who has a clue and success especially with hyster ladies

Big Hugs

Y x

[MIS71MUM]

Hi
Just a thought but how long have you tried each different HRT? I definitely get increased anxiety, surges, terrors and adrenaline rushes for the first 2/3 weeks of increasing my Oestrogen dose.
It has settled now but I know an increase in dose can take a while to settle.
I have started with patches and worked my way up to 75 mg from approx 40 mg over 6 months. I think you definitely need to increase slowly and carefully especially with patches.
Could you try another method of delivery maybe? X

[Hurdity]

Yes keep on with the oestrogel. I would have got my oestorgen levels sorted before starting the testosterone personally but I presume your specialist has prescribed this and some like to start the T straight away. I can't comment on the first regime - I don't know what BiEest is - doesn't sound like a licensed oestrogen treatment. I presume you're in UK since you mention Studd and Panay?

The one you are on should help eventually but as you've had your ovaries removed it may take a while to settle. How old are you and what HRT were you taking after your op and for how long?

There are lists of clinics and specialists on this website ( very top tabs - blue writing) but some of the info is a bit out of date in some areas.

Hurdity x

[Pollyanna]

Hi there

BiEst is 'bio-identical' oestrogen. 

As a lot of those of us who had uterus removed, the oestrogen that is supplied via NHS is 'bio-identical' and is either derived from soy as in Estradot, or wild yam as in Evorel.     

There are two laboratories in the UK who specialise in compounded bio identical troches or cream.   Professor Studd, Marion Gluck Clinic, Nick Panay, (and now other doctors in the UK who practice privately in Bio identical Hormone therapy), will consult patients and write a script for the formula.   You then (as the private patient) have to phone the lab direct and you pay them separately for the drugs.   I paid £90 for two months supply of compounded bio identical hormone therapy, last year.   After only a week I was very very majorly depressed. 

The problem is that when you see the private consultants, they may all be very expert at this, but as we are all different, we will all metabolise the hormones differently.   It therefore becomes financially, and physically very exhausting.   

There is another doctor i know of, who is a private 'Bio' doctor.  He is based in Sutton Coldfield.  His name is Dr David Ecclestone.  His background was as a GP for the NHS but like many others, he specialises in other areas of health now. 

Yriches65, I'm really sorry you are having a difficult time.   Like most of us on here, I can empathise.  I'm struggling too right now, and not wishing to waste any more money privately, I'm trying to get in to the menopause clinic at the John Radlcliffe in Oxford.  Most certainly this morning when I woke up, I felt ancient again.  Aches and pains, loss of weight, muscles tired.  And yet on Sunday I did a long bike ride with a friend and felt great.   

Up and down.   And, I know it's my hormones.   x

[Maryjane]

Are you sure Mr Panay prescribes compounded HRT ?

As I was at a conference he was at recently , and they said that compounded HRT is not advised / used by them ?

[yriches65]

Hi MIS71MUM

With regards to each HRT i was on

Regime 1 - 6 weeks

Regime 2 - 5 months

Regime 3 - 6 weeks

Don't seem to get it right .... have no come of Estrogel... feeling slightly better at the moment....issues 'down' below are easing ...still have to take the help from the sleeping tablets but have been able to sit and watch some tv at least

Tried patches years ago... and was on them for 3 years... had turns and eventually came off them and went cold turkey for 8 years...and managed to work and have a life... until recently

Big Hugs

Y x

[yriches65]

Hi Hurdity,

Issues have got worse since being on the Estrogel... so much so that i cannot continue with it to much pain, discomfort and who knows where i will end up and what i will do....

I am currently 51 , had the hysterectomy and ovaries removed at the age of 39 , was on Everol 25 -50 for 3 years.... but was then struggling.... GP's and endo couldn't shed any light so came of it all.

Big hugs

Y x

[yriches65]

Hi Pollyanna,

Many thanks for the info....likewise i emphasis with your struggle...

Keep us posted as to how you get on

Big Hugs

Y x

[Pollyanna]

You are welcome yriches65.

It's all about sharing info and supporting as best we can eh?

Maryjane. You're correct about Panay. Sorry. Slip up on my part.

Even the specialists though, have changed of heart on what they think is best.

Amd then of course we come back to that old chestnut of all being individuals, and our bodies all needing different things.

[Maryjane]

Prof studs doesn't do compounded either pretty certain ? Marion Gluck and many others however do and they are very expensive from these places , what Studd prescribes is on the NHS also.

[Pollyanna]

Think I mentioned that I was a patient of The Gluck Clinic last year.

I do find that a lot of women are confused about the terms 'bio-identical' and 'compounded'.

There are quite a few (private) doctors now specialising, outside of London.

I had originally booked to see Prof Studd, but I wasn't crazy about his prices.  Also heard that his patients are prescribed the same thing.  High dose of oestrogen gel and a bit of testosterone.

[Hurdity]

You are right that there is confusion - especially in the media! On here we do take great care to distinguish between the two because of this confusion.

You mentioned Studd and Panay along with Gluck in your paragraph about compounded bio-identical hormone therapy - hence members thought you were saying that they too prescribe it!

Usually the compounded hormone therapy is referred to as "BHRT" ie Bio-identical Hormone Replacement Therapy (especially in US I gather?) - and distinguished from HRT using bio-identical hormones (such as on NHS and the private consultants you mention). Some now prefer to use the term "body-identical" and I have seen the term "nature-identical" as well! No wonder everyone gets confused!!!!

Yes Studd's regime tends to be more or less the same for everyone - slightly varying amounts of gel, and progesterone if you have a uterus. Apart form the testosterone it is all available on NHS without having to pay sky-high prices. However testosterone remains hit and miss because it is not licensed for women in the formulation available.

Hurdity x

[dazned]

And even some GPs now prescribe testosterone ,depends on where you are it seems though !