This is my second visit to my local menopause clinic, the first visit being 3 months ago Where I felt she didn't accept some of my symptoms were due to low oestrogen when I'm sure (knowing my own body) they are. It's taken years and lots of tests to find this out -it's not something I just came up with. Any time I mentioned a related symptom like hair loss, ulcers, insomnia, aching bones - it felt like she said 'it could be your diet though anything can cause those things you need to speak to your GP'. It seems the only symptom accepted is hot flushes. I do have strong evidence that these are related to low oestrogen as they improve when I take enough oestrogen plus I eat a really healthy diet, plus Ive had endless batteries of tests as my GP bless him is always offering them!
On this second visit I was greeted by a different doctor who said she was taking the appointment and my usual specialist was sitting in and was that ok. I try to support training but it actually wasn't ok today as I feel my situation has got a bit complicated but I didn't feel able to say so -I know that's poor and I have been much more assertive lately, but I had got all ready to fess up to the specialist that I haven't been using the utrogestan as prescribed and wasn't expecting this.
The new doctor started taking my history again and asking when my last period was which I don't know (because is years) and didn't know on the last visit. She then asked me what I was taking - (did she read my notes!!) Anyway I kind of interrupted and cut to the chase because I didn't want my whole appointment being taken up with history/note-taking as it was last time, and said 'my life has been so much better on this regime, better than for years but 6 weeks in hair loss started up again and I don't know if i'm willing to go bald and is there another progesterone I can try?' I then has to sit through a lecture which I've heard 4 times already on male pattern hair loss. So then the observing specialist says 'I'd be very surprised if it's the utrogestan as that's rare'. The trainee then asks me again about dosage and I explain I've been taking it every other day and why and she says 'that's not ok'. I say 'but what about if I have scans - i'll pay for them myself' and she says 'they don't work because they don't detect endometriosis'. She asks me 'are hot flushes the only symptoms you had?' and I'm thinking again 'did you read my notes???' So I list them again and the observer specialist intervenes again with 'there are many things which can cause mouth ulcers you need to speak to your G.P.' (I've spoken to him many times and had several blood tests)
Sorry this is so long and ranty and angry (i'm so frustrated) the main problems are;
Not feeling treated like and adult and not being listed too.
Feeling a lack of continuity, like they hadn't read my notes.
Going over and over the same ground but not wanting to hear about my actual experience.
Treating menopause as if it's unconnected to anything else in the body - i.e. 'you need to see your GP about that'.
Having to have a 3-way conversation because the trainee was very inexperienced and kept having to ask which normally I wouldn't mind.