Hi Daisy
I have been reading this thread with interest. A bit off topic, but an example of how symptoms can occur and how their explanation can be so strange sometimes. I had been on Topamax for my menstrual migraine for 5 years. I was loving it because it had reduced my migraines and was also causing weight loss (which is a happy side effect of Topamax). Anyway I started to develop a tremor in my left hand and twitching in various parts of my body. These are not good symptoms to have, especially when you are in you late 40's. I had been on Topamax for 5 years at this stage, so nobody put the symtoms together with the medication. Luckily my GP looked up some of the rarer symptoms of Topamax and decided to try and wean me off it for a while. As soon as I had been weaned off completely, all the twitching and tremors stopped. When I resumed the Topamax, they started up again. I had to come off permanently after that and I am now on Relpax. I had convinced myself that I had a terrible neurological disorder like MS or maybe MND. The even scarier part for me was that we do have a very rare degenerative disorder in our family and I had completely convinced myself that I was in the grips of some terrible neurological disorder.