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Author Topic: Hi guys. Newbie here.  (Read 2368 times)

Rockgurl

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Hi guys. Newbie here.
« on: May 31, 2017, 12:22:28 PM »

Hello. I'm so glad to have found a really good menopause forum. I've been reading for a couple weeks. I live in the USA but I'm actually from London, England and so it's even nicer to be here talking to my fellow countrywomen. I'm 50 and I've been experiencing the myriad of peri-menopausal symptoms you all have over the past couple years and suffered terribly without fully understanding what was going on. After much reading I finally put two and two together and then sought help. Luckily I'm in the USA where it's easy to get treatment, but unfortunately only if you have the money. I have been going to a bioidentical hormones specialist but it's costing me $1000 every few months and I just can't afford to go there anymore. My insurance won't cover the labs or the treatment so it's all out of pocket.

When I saw the specialist I had a bioidentical testosterone pellet implanted in my hip/buttock and have been taking oral progesterone. I definitely felt better so I was incredibly sad that I could no longer afford my treatment, but I just started using testosterone cream which is a fraction of the price and boy did I have a fantastic couple of weeks. This is usually the time of the month where I can't even stand to be in my own skin, but although I'm having a few muted symptoms, I fell MUCH better than I usually do. I'm feeling hopeful. My doctor wouldn't give me any estrogen because I have endometriosis and adenomyosis but my estrogen was low and I was experiencing low estrogen symptoms so I bought an estriol cream on Amazon and that has been helping too somewhat. I don't care about the pain...I just don't want to feel like I had been feeling.

Anyway, thanks for being here!
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Daisycat

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Re: Hi guys. Newbie here.
« Reply #1 on: May 31, 2017, 12:51:17 PM »

Hello from me :)

New today as well :)

Lovely to meet you

xx
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CLKD

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  • changes can be scary, even when we want them
Re: Hi guys. Newbie here.
« Reply #2 on: May 31, 2017, 01:20:16 PM »

 :welcomemm:  great to have you on board!
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MicheleMaBelle

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Re: Hi guys. Newbie here.
« Reply #3 on: May 31, 2017, 02:10:35 PM »

Howday Rockgurl  :welcomemm:

Good to have you onboard. Sorry , but I'm not qualified to give you any advice here but hopefully some of the others will be able to help.
 I understand that there are a few ladies on the forum from across the pond so you might get some more answers on options available if you start a new thread that alerts people to the fact that you're US based. Might be worth a try?
Good luck and keep posting x
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Hurdity

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Re: Hi guys. Newbie here.
« Reply #4 on: May 31, 2017, 04:55:17 PM »

Hi Rockgurl

 :welcomemm: from me too.

It is a myth that women need to spend a fortune on "bioidentical hormone replacement therapy) since these same hormones - - well oestrogen and testosterone anyway - are available from NHS in UK and from your regular GP/gynae in US. Check out the youtube  videos by Dr Elisabeth Vliet where she explains all about this.

Sorry to hear about the endo etc - and I understand this can pose problems with oestrogen replacement and depending on where the deposits are situated, oestrogen can cause them to grow. Some women are able to take oestrogen but also need to have progestogens given continuously.

This is what it says on this forum about endometriosis:

Endometriosis
There is a small risk of reactivation of endometriosis with HRT use and any recurrence of symptoms should be reported. If a hysterectomy has been performed for endometriosis, the choice of HRT use thereafter should be influenced by the extent of endometriosis at the time of the operation. Since hysterectomy often causes a premature menopause, it is often advised to take HRT until the average age of the menopause; 51 years. HRT after hysterectomy usually consists of estrogen only. However, in the presence of endometriosis, estrogen may cause stimulation of residual deposits and consideration should be given to using continuous combined (estrogen plus daily progestogen) therapy, or tibolone, though little research has been done on the effect of different types and duration of therapy. Medical treatment of endometriosis often involves ovarian suppression which, along with ovarian removal, may increase the risk of osteoporosis


https://www.menopausematters.co.uk/atoz.php#GlossE

It is not normally advised (by gynaes) to replace testosterone without oestrogen because of the potential for androgenic effects - and especially as you get close to menopause and beyond, but I think testosterone cream may be absorbed less - depending on what you use and where it comes from.

In UK estriol cream is used for vaginal problems and inserted there via an applicator. However the dose is not sufficient to be absorbed systemically at a significant level, although I am unfamiliar with its use for hot flushes?

Anyway do keep posting and letting us know how you feel and how you get on!

Hurdity x
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Rockgurl

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Re: Hi guys. Newbie here.
« Reply #5 on: June 01, 2017, 12:08:02 PM »

Hello and thanks for the welcome. Interesting points Hurdity. Unfortunately as I'm an ex-pat living in the US, I have no access to the NHS and everything costs over here. I cannot take synthetic hormones as they make me very ill. I've tried quite a few but each time I was so sick and loopy it wasn't worth it. They certainly didn't make me feel any better. Testosterone does metabolize to estradiol so the understanding is that as long as I keep checking my hormone levels I can continue to take what I'm taking and get some estrogenic benefit. The estriol is a weak estrogen but its it an estrogen nonetheless, and as my levels were documented as low I wanted to try it. It has certainly helped with the all over body/muscle pain that I get during ovulation.

Regular GPs over here tend to not get involved in hormone therapy that isn't synthetic. You have to seek out a holistic naturopathic doctor to get anything like that. I have luckily found one quite close to my home that just opened a new office, so I am planning on making an appointment with them so I can continue to get my bioidenticals and keep having my hormone levels checked.

I have stage 4 endometriosis and also adenomyosis and from experience I know that synthetic estrogen affects the pain levels quite substantially. In fact, even using the weak estriol has increased my pain, so I am being cautious with it. However, without the testosterone I felt so bad that I couldn't function at all. I am in graduate school doing an advanced degree and had to take a semester off because I didn't think I could continue, so I'm taking these months to get myself sorted. I am willing to risk the androgenic effects just to feel better...and I do! Testosterone has been like a wonder drug for me. I've been on it for over a year now with no side effects so far which I am relieved about.

I am actually in my last year of a nurse practitioner program and when I graduate I want to work in a menopause clinic, or even open my own bioidentical practice. I am so appalled by the lack of available treatments for women like us that it would be my dream to be able to help others. I've been doing a lot of reading and this is such a difficult and tricky subject. So much depends on balance and hormones are so powerful. It's a challenge! Anyway, thank you for the welcome and I look forward to reading all the posts here.
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Hurdity

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Re: Hi guys. Newbie here.
« Reply #6 on: June 01, 2017, 04:28:57 PM »

Great news you want to work in a menopause clinic! Re bio-identical hormones and my previous comments - do look at this youtube video by Dr Elisabeth Vliet I mentioned:
https://www.youtube.com/watch?v=9XfpAATJkC8

I got the impression that oestrogen (not the synthetic one - estradiol = bio-identical oestrogen - available as tablets, patches or gel) and progesterone (Prometrium) are readily available in US from regular gynaes, although I understand obtaining testosterone may be a problem ( as it is in UK). Also as I said I am unfamiliar with estriol except in its use for VA, and I can appreciate your difficulties with endometriosis.

I am sure you will rise to the challenge - you sound very determined!

Hurdity x

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MicheleMaBelle

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Re: Hi guys. Newbie here.
« Reply #7 on: June 01, 2017, 04:44:13 PM »

Here here Rockgurl- good on you. We'll all be queuing up for your clinics if you open them here! X
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