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[edelweiss]

Hey Tempest, I don't think it's estrogel alone, although I did report it to the FDA in the US. I believe Annie was on Elleste Solo, and Dazned on Elleste Due when it happened to them. xxx

[dangermouse]

I had the same wired symptoms when tried the gel and patch for only a few days so mine wasn't body having got used to and receptors dampening down. I just had too low progesterone to be able to cope with the excess oestrogen.

It could be for some that because progesterone falls at a steady pace that after the oestrogen was working it then starts imbalancing you as it becomes too strong without the natural progesterone to keep it in check.

[Tempest]

True!!! I'm just thinking viz. the rapid weight loss which is specific to both you and Alesia.

I'll share a bit of info. here which I've been keeping to myself. When I had anaphylaxis for the first time (near fatal) I had to rapidly withdraw from Morphine which I had been on for 5 years after failed back surgery. I developed Post Acute Withdrawal Syndrome, which I've posted about before and my symptoms were EXACTLY what we're seeing with you and Alesia particularly. I don't think I've ever fully recovered (but having said that, it has got a LOT better,  so try not worry that you'll  be like this forever if this is indeed the issue)!

I think what you're experiencing (and others) is a form of withdrawal syndrome as HRT has abruptly stopped working for you. In fact, I hold to my belief that menopause in itself is a withdrawal syndrome. It makes sense - we're withdrawing from our own hormones! xxxxx

[Tempest]

Yup - absolutely that too Dangermouse in my case! The small amount made by my adrenals can't 'balance' the estrogen.

It's interesting that the stats. for surgical menopause are that after 5 years, only 25% of women continue their ERT. It's impossible for most to replicate that balance which the ovaries once produced. xxxxx

[ALESIA]

Edelweiss same here I am eating well now but still losing weight 

Tempest I haven't got a clue how to start a new thread  I'm still finding my way round posting! Happy for you to start it if you'd like to? Your thoughts on withdrawal are interesting too.

Does anyone know what happens if we stop the Oestrogel? Do our bodies eventually adjust even without ovaries?

Have any of you had a problem with taking medication, supplements and eating certain foods after this happened to you? Since mine started I am unable to take anything without horrific side effects, I had used Diazepam on and off for years (only occasionally when needed) but now it affects me badly and in a totally different way! I'm wondering if the weight loss and intolerances are due to a metabolism shift?

Love & hugs to you all xxx

[Tempest]

Alesia, since my Post Acute Withdrawal experience, I became allergic to a LOT of things. Annie is the same (both of us anaphylaxis). There HAS to be something in this!

Sorry - I didn't realise that you're a fellow oopherectomy lady! xxxxx

P.S. Forgot to say, Annie's ovaries dissolved after her hysterectomy so she's in the same boat as us!

[Annie0710]

I had the same wired symptoms when tried the gel and patch for only a few days so mine wasn't body having got used to and receptors dampening down. I just had too low progesterone to be able to cope with the excess oestrogen.

It could be for some that because progesterone falls at a steady pace that after the oestrogen was working it then starts imbalancing you as it becomes too strong without the natural progesterone to keep it in check.

That's all I can think of in my case, no other logical reason or explanation from anyone

[Hurdity]

Tempest I haven't got a clue how to start a new thread  I'm still finding my way round posting! Happy for you to start it if you'd like to? Your thoughts on withdrawal are interesting too.

Does anyone know what happens if we stop the Oestrogel? Do our bodies eventually adjust even without ovaries?

Have any of you had a problem with taking medication, supplements and eating certain foods after this happened to you? Since mine started I am unable to take anything without horrific side effects, I had used Diazepam on and off for years (only occasionally when needed) but now it affects me badly and in a totally different way! I'm wondering if the weight loss and intolerances are due to a metabolism shift?

Love & hugs to you all xxx

re starting a new thread. Click on the board that you want - ie that best suits the subject of your post eg All Things Menopause. Then look in top right of all the threads where they are listed and there are some blue tabs. Click on "New topic" and hey presto - a box comes up - you just name the title of the trhead, write your post in the box, press post or whatever it says and away you go

Re adjusting to reduction in oestrogen - how long is a piece of string? Some women adjust to this whereas others will go through a period of hot flushes before adjusting. The unlucky few will continue with hot flushes for years. The oestrogen deficiency though - will last for ever so any health consequence of this will gradually become apparent over the years, so the longer you can take it for the better. If you've had a hysterectomy and ovary removal - there is no reason not to take a low dose oestrogen for years.

Any persistent unexplained weight loss ( ie not due to change of diet, exercise or medication, or stress) should be investigated by a doctor.

Hurdity x

[Tempest]

Hi, Annie! (((waves))). x xxx

My best guess is its a total imbalance in the Central Nervous System as the body tries hard to reach homeostasis. This knocks your metabolism off too.

The best remedy I was told if this is the case is rest, extreme stress reduction, avoid unnecessary medications and good, simple nutrition. And Tincture Of Time........xxxxx

[ALESIA]

Definitely something in this Tempest!

Thank you so much Hurdity I will have a look at starting a new thread

I'd be happy to take Oestrogen for the rest of my life, I have no concerns about any risks but it seems my Oestrogel either isn't working anymore, I need to go lower or higher, I need a different type or I need something else like testosterone? When I put it on now I just feel weird, when I tried upping the dose I felt an increase in burning GI symptoms, fatigue, weakness and tingling in my hands and feet. I had for 21 years always used it at night but if I do now I'm awake all night feeling wired ... I just can't seem to find a doctor who knows anything

The weight loss would have initially been because I couldn't eat but even after I started eating properly again it has continued, I've seen 2 Gastro's, Endo, Neuro, and 3 GP's none of them have an explaination for the weight loss.

Alesia x

[ALESIA]

It feels almost like the Oestrogel is poisoning me ... GP gave me Femseven 50 to try a couple of weeks ago but it made me feel so sick and dizzy so she said go back on Oestrogel.

It's all so confusing and meanwhile I feel like I'm dying everyday 

Love xxx

[edelweiss]

Same here Alesia, exactly the same xxx

[ALESIA]

Do any of you lovely ladies understand test results?

Serum Oestradoil 142 pmol/L
Serum progesterone 0.4 nmol/L
Serum testosterone 1 nmol/L

I have no idea what these mean or even if a serum blood test tells you anything?

Feeling desperately unwell this afternoon 

Love & hugs xxx

[ALESIA]

Oh Edelweiss you too!

It's just so awful my heart goes out to you truly it does xxx

[edelweiss]

My opinion is that your oestradiol is low at 142, I believe it should usually be over 200 for symptom relief, and preferably more than that. Some specialists aim for around 500-600, sometimes even more.

What dose are you taking Alesia? xxx