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Author Topic: Optical migraine  (Read 4115 times)

DaisyB

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Optical migraine
« on: May 05, 2017, 08:18:43 AM »

welcome advice girls please? As you know I got Mirena fitted couple of weeks back - self medicating on estraderm patches (from previously unused prescription) until I get back to gynae for proper prescription- woke this morning one eye vision all blurry and zig-zag lines - is this common with HRT? I have no pain at moment but did have two migraines at start of Mirena until I put patches on. Reduced to one patch yesterday as supply low - I had actually thought I was on 3 patches until MaryG pointed out two were of no benefit as I'd put them on 5 days ago! So I thought well if putting just one on has helped again then all good - I'll save the other two for weekend until I get to GP on Tuesday - but now I can barely see outta this eye!!!




Thanks in advance


DaisyB x
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babyjane

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Re: Optical migraine
« Reply #1 on: May 05, 2017, 08:35:41 AM »

I don't know about migraine as I am fortunate enough not to have suffered but I would urge you to contact your optician who can assess your vision today.  You might be sent to eye casualty to be on the safe side.  I don't want to alarm you but this happened to me about 8 weeks ago and at eye casualty I was diagnosed with PVD (posterior Vitreous Detachment) and referred to the eye clinic.  It is a common age related eye condition but it can affect the retina so needs to be monitored.
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Salad

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Re: Optical migraine
« Reply #2 on: May 05, 2017, 08:42:23 AM »

I'm not very experienced in the HRT you are using but I have had headaches which caused vomitting and a need for a darkened room. I think my headaches were caused by fluctuating hormones as I've not had any since being on Oestrogen only HRT.

I also had one episode of a fairly spectacular light show - rainbow arc like flashing. I was seen straight away by my Optician who thought it was migraine related but I didn't get a headache- maybe worth giving your local Optician a call to get some reassurance.

 :foryou:
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Mary G

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Re: Optical migraine
« Reply #3 on: May 05, 2017, 12:33:27 PM »

DaisyB, that is exactly what happened to me in June 2004 when I had my first attack, I woke up and had shimmering, zig zaggy lines (scintillating scotoma) for about 25 minutes and they gradually disappeared to the upper, outer sight field - I do not get headaches either.  I had a Mirena coil when I had my first silent/optical migraine and I now know, many years and many specialists later, that is was caused by the synthetic progesterone in the coil combined with my own very low levels of oestrogen.  To be honest, I didn't ever do well on synthetic progesterone pre-menopause but it didn't cause migraines until my oestrogen levels dropped. 

I now have to be very careful to make sure that my oestrogen levels remain quite high and I also have to seriously limit my use of (vaginal) Utrogestan and can only take the very barest minimum.  I have also found that daily DHEA tablets have really helped and at least if I do have an attack, it is much less severe and I don't have the postdrome.  I have been told that I should have a hysterectomy so that I never have to use progesterone again but work makes that difficult at the moment. 

Progesterone changes the way your brain receptors work and that is why you get migraines - synthetic progesterone is the worst offender and I once had 5 attacks in one day while using norethisterone.

Salad, if you now take oestrogen only HRT and you no longer have migraines, it sounds like progesterone was the culprit in your case too.  Have you had a hysterectomy?

I hope that helps.

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Salad

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Re: Optical migraine
« Reply #4 on: May 05, 2017, 10:17:24 PM »

Hi Mary G

Yes I've had a hysterectomy (best thing I ever did  :D)
Interesting to hear about the progesterone - might be why I didn't get on with contraceptive pill when I was younger.

Thanks  :)
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DaisyB

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Re: Optical migraine
« Reply #5 on: May 06, 2017, 06:56:58 AM »

Girls- thank you for all replies! Apologies for delay. Eyes to be tested this coming week. It disappeared after about 30 minutes. But what I did was taken my eyes away from this phone  ;) and focus long distance. I do think MaryG you are onto something because I had let the oestrogen drop unwittingly by assuming the patches were still delivering the dose after 5 days. It's a learning curve ;) 
DaisyB x
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Mary G

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Re: Optical migraine
« Reply #6 on: May 06, 2017, 12:15:47 PM »

DaisyB, my eye sight deteriorated quickly when I started having silent/optical migraines.  I had extensive eye checks and sure enough, nothing was found that would indicate the migraines were linked to my eyes. 

Salad, lucky you, I'm glad you are doing so well.  I have yet to meet a woman who has regretted having a hysterectomy and once menopausal and on HRT, it makes a great deal of sense.  As being able to dump progesterone forever and be on oestrogen only HRT, what bliss!  I just wish the operation was not quite so major with such a long recovery time.
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Salad

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Re: Optical migraine
« Reply #7 on: May 06, 2017, 10:44:06 PM »

I agree Mary G- the hysterectomy was a challenge, especially as I ended up in ITU the first night following an anaphylactic reaction to the morphine I was using  ::)
But fast forward three weeks and I felt pretty much back to normal, just without the problems I had preop.

I do count myself lucky now as I have enough trouble trying to get the Oestrogen HRT balanced so goodness knows what it's like with Progesterone thrown in the mix!  :D

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Taz2

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Re: Optical migraine
« Reply #8 on: May 08, 2017, 08:27:38 PM »

Hi DaisyB - Do you have a headache with the visual disturbance? It sounds as if it could be optical (retinal) migraine. I had a couple of episodes of this in the past few months and they are really worrying. Visual symptoms affect one eye and gradually move across the eye (well they do in my case) before finally disappearing. They last up to thirty minutes - longer than this may mean it is not an ocular migraine) and you may be left with a mild headache and a tired feeling afterwards. Info here http://www.nhs.uk/conditions/retinal-migraine/Pages/Introduction.aspx

Taz x  :)
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DaisyB

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Re: Optical migraine
« Reply #9 on: May 08, 2017, 09:19:20 PM »

Tax thanks for this. I'm seeing private gp in morning I will mention it. Yes it didn't last long and it spread across eye - although there was no pain I did feel a bit sick.


DaisyB x
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