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[Suzanne1967]

Hi all
Well been turbulent few months 😩

Think I'm going loopy I'm So fed up 😒

As you know all was going great with tibilone  I'm on 2.5 but past couple months ...

Tearful
Moody
Bloody horrible
No energy
Depressed
Memory gone
Libido zilch ( but never really came back 😖)
Snappy
Can't think straight
Anxiety has gone through roof
Panic
Palpitations
Craving sweet stuff
Infact just s horrible cow 😖😩

Amy advice should I increase

[Annie0710]

Hi Suzanne

I too was doing good on it then got very jittery (just like I felt on 75mcg estradot) so halved my dose for about 2 months, night sweats crept back in and were increasing and the joint stiffness and aches were too much in the end along with low mood, so I gave up last week and started 1 pump of oestrogel, I'm now doing 1.5 pumps a day and not feeling too bad, night sweats went almost immediately along with the joint problems.  Time will tell I guess

Hope you find something to help you x

[Suzanne1967]

Awww Annie 🤔 Not good big hugs 😊

It's rubbish isn't it do you think I should halve it ? I was going to double it x

[Tempest]

Oh goodness, Suzanne! I'm so sorry. I have no idea what the rap is with Tibolone but it seems to act a bit weird or 'poop out' over time for some women.

My Consultant said it is a bit of a roll of the dice. I wouldn't do anything with your dose before checking with your prescriber first if you're thinking of increasing it.

Hugs. xxxxx

[Annie0710]

Awww Annie 🤔 Not good big hugs 😊

It's rubbish isn't it do you think I should halve it ? I was going to double it x

The only way you'll know is if you try Suzanne, 1/2 dose obviously left me with low oestrogen but maybe you could try for a short time 1+1/2 to see how it goes ?

Big hugs back to you xx

[Hurdity]

Sorry to hear this Suzanne. The instructions do not indicate that increasing the dose is possible with Tibolone so I agree with Tempest, that I would consult your doc before attempting this. After all it is not like oestrogen tabs or patches where this is possible and different doses are licensed. You may find that this does not suit you long term which is a drag isn't it? Have you tried any other HRT types before this one? Sorry can't remember where you are in menopause?

Hurdity x

[Suzanne1967]

Hi all

Spoke to gp

Bloods thyroid etc not hormones 🤔🤔

See how I go 😡

[warwick01]

Hi Suzanne

Sorry to hear your having a rough time.

As you know I was on Tibolone 4 months, had to stop due to increase in dizziness. My DH had to hold on to me when walking.

At the 4 month mark (still on Tibolone) my blood result shown no trace of Oestrodiol and .

thyroid too high. I think together with Gyne the Tibolone interfered with Thyroxine.

Week 5 on Angeliq/testogel not controlling symptoms but will carry on a few more weeks.

Hope your feeling better soon Wxx

[Bane]

Hi Suzanne, sorry to hear of your condition. Its not the oestrogen tabs or patches. Hope you find soon what suits you with HRT levels

[Lou44]

I too did a 3 month trial of Tibolone. At first I had more energy and it did stop my hair falling out but then gained a load of weight, felt snappy and just felt 'off. It's so frustrating when we think "this is it, finally" and then it crashes again 😐 Hooe your doctor can advise. I think you can take 5mg of it but not certain x

[Lou44]

Warwick, hope you don't mind me asking but notice that you're on oral hrt plus testosterone. Do you feel the effects of the testosterone? I was told that there's no point me trying testosterone whilst on oral hrt  as SHBG somehow mops it up and that testosterone only works with transdermal hrt? I don't fully understand it myself but am just curious as I'm not doing well on every type and dose of oestrogen a d don't really know what to try next x

[warwick01]

Lou44,

I've only been on it 2 weeks and noticed improvement in energy and Libido, I think mood is improving a little as when I tried Angeliq 2 years ago I was depressed from week 3. This is why Gyne added the Testogel to keep my mood stable. Still have morning anxiety jitters though

I know of other Women that are on oral HRT plus Testogel.

Wxx

[Lou44]

That's great and really interesting.  Something for me to keep in mind. Hope you continue to feel better and better x

[Jules53]

Hi Suzanne🙌. Sorry to hear Tibolone has stopped working for you.

It stopped working for me too so I am weaning off it. I'm on half a tablet at the moment and feel OK. I'm taking Rhodiola, a herbal supplement to help with the anxiety and feel so relaxed. No hot flushes coming through yet😀. I'm not going to try any other HRT and will just stick to the herbals for now I think.

Hope things get better soon for you.

Jules xx