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Author Topic: To those ladies who have had their ovaries removed...  (Read 8909 times)

kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #15 on: December 16, 2016, 05:02:44 PM »

Hi kiltgirl

I haven't had the surgery but did fight a neurologist who was pushing me to have it years ago. Long story, won't bore you with the detail! I did lots of research and eventually saw a number of docs with different specialisms. The gyneas/endos were suggesting I have a medical oophorectomy in order to see how my body reacted i.e. a gonadotrophin analogue with add back oestrogen which would close down my ovaries. It was eventually decided that this wouldn't be suitable for me but has this been considered for you? If you faired well and the results were good this could perhaps give you a better idea of how your body would react to the surgical menopause. Just a thought!

That's an interesting idea, will take that to my gynae...think I'm going to write myself a list!...part of me doesn't want to string it out too long but also scared of making the wrong decision.

I know a couple of women who have had theirs removed and they don't regret it. We need a MM time machine!
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kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #16 on: December 16, 2016, 05:10:45 PM »

I'm not sure if I have new hairs or they're broken ones, so hard to tell but my hair doesn't feel like there's more of it. It's very up and down as is everything with me

It's been a horrible journey since 2012 and I just cannot wait for it to be over.  As much as I thought peri would be flushes and no periods I thought post meno would be the light at the end of the tunnel but for me it's not. I think I'm 2 years post meno and still no further forward

Research, research and some more !

I like Elizebethroses suggestion

X

I hope there is a light at the end of the tunnel, and soon...makes me angry that we have to go through this [email protected] men had to go through this there would be a lot more help available, GPs wouldn't roll their eyes when they see us...etc etc.

Remember the days when your biggest decision was which top to buy to wear on a Friday night out...would we ever think then we would be making decisions like this  ::)
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kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #17 on: December 16, 2016, 05:24:30 PM »

Hi Kiltgirl, I had mine removed last year, but for different reasons, had lots of fertility treatment in the past that they now state can potentially lead to ovarian cancer and was having some pain from left ovary, so it was more a preventative action.

My problem was I was not given HRT immediately, as I was supposedly post meno.  So had really bad symptoms start off, indicative of no oestrogen, which blood test 2 weeks post confirmed.  I started on HRT after 2 weeks and then slowly got back to normal.  Found that the transdermal, constant dose oestrogen to be the best (started with femoston tablets, but got bad headaches). So please make sure that you start the HRT as soon as you have had the op, also it may be wise to get a blood test of oestrogen levels before (if you are post meno), if not it will fluctuate anyway.  I find I do not need testosterone, my energy levels etc eventually got back to normal (my adrenals must be producing it).

Hope this helps a little.
Rhiner

Thank you Rhiner, wow I didn't know this about fertility treatment! Am glad you've found your way back again...I don't want to take anything orally, would rather use a transdermal type too...something about telling a GP this when they give you that look makes me lose my bottle a bit...I think if I can get my gynae to put this on my notes then they might be less indignant!

I'm not post meno yet, actually my last blood test showed higher than normal estrogen, so my GP sent me to endocrinology...?!

Thank you for your reply, I should be able to compile a pretty good list of things to discuss with my gynae!
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kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #18 on: December 16, 2016, 05:26:59 PM »

Hi! I'm 19 months post oopherectomy  (previously had hysterectomy at 36) and I STILL can't get my HRT right! I'm very sensitive to even small fluctuations in estrogen, so uneven delivery methods are causing me huge problems with unstable mood etc. When this happens for me, its just like being back in perimenopause.  :(

I wish HRT was straightforward after removal of ovaries, but sadly in my case it hasn't been. I agree with Rhiner that its very important to start HRT as soon as possible after surgery, as figuring out your ideal dosage/delivery can take some time.

Thank you Tempest...I have a feeling I'm pretty sensitive to fluctuations...this is going on my list too...we need steady not up and down...had enough of that for a life time...no wonder men think they have the upper hand grrrr...

which method are you using for your HRT if you don't mind me asking? x
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Annie0710

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Re: To those ladies who have had their ovaries removed...
« Reply #19 on: December 16, 2016, 05:31:15 PM »




[/quote]



Remember the days when your biggest decision was which top to buy to wear on a Friday night out...would we ever think then we would be making decisions like this  ::)
[/quote]

Lol the days of deciding what mini dress to put on and the music blaring was only stopped because of peri in 2012 !

Sad times these days !

X
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kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #20 on: December 16, 2016, 05:41:01 PM »

My hysterectomy happened in my mid 30's after near constant bleeding & cramps. I'd turned into a nasty, grumpy person. So hysterectomy was a blessing. Ovaries were left at that time. However, needed HRT. Some 10 years later I was in a lot of pain again & ovaries were removed. Turns out I had bad adhesions especially on one side.

At time of my hysterectomy I was told they would leave ovaries in place. In hindsight, maybe should have been done all at once.

You really need to rely on consultant's advice. Ask, it's your body.

You're right...I actually trust my consultant, she's pretty cool, I googled her...very impressive too. She did emphasise that the ovaries are very easily damaged during the procedure and might be lost anyway.

I'm still leaning towards getting it all done at once...if I can get assurance that testosterone will be available...must have been hard for you to have the op at such a young age x
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kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #21 on: December 16, 2016, 05:48:09 PM »

I'm two months post radical hysterectomy for ovarian cancer and so far, so good. I have had hot flushes but no worse than prior to removal and by and large, the terrible mood swings and agitation I was experiencing in peri have abated. There's no chance I'll be offered any chemical support now so am trying to make sure I eat well, get enough sleep and practice mindfulness and relaxation more. I had always thought I'd get ovarian cancer as I'd endometriosis and lots of fertility drugs so just wish I'd been offered chance to be rid before it was a reality.

Oh not that must have been horrible to go through  :'(

I hope your recovery is going OK, yes I agree it would have been better to have had the choice and been in control rather than what you've been through. At least you do have the consolation of feeling better mood-wise...this is what I'm aspiring to...can't imagine anything making my mood worse...if I were worse I would probably be arrested or banned from Tesco...
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kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #22 on: December 16, 2016, 06:04:45 PM »

Lol the days of deciding what mini dress to put on and the music blaring was only stopped because of peri in 2012 !

Sad times these days !

X

Rock on!!! I have legs like a Tiny Tears doll so mini skirts were never my thing...I did get a massive tattoo on my hip and thigh earlier this year though...still makes me jump when I catch sight of it  :o


« Last Edit: December 16, 2016, 06:08:50 PM by kiltgirl »
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Annie0710

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Re: To those ladies who have had their ovaries removed...
« Reply #23 on: December 16, 2016, 06:23:19 PM »

Lol the days of deciding what mini dress to put on and the music blaring was only stopped because of peri in 2012 !

Sad times these days !

X

Rock on!!! I have legs like a Tiny Tears doll so mini skirts were never my thing...I did get a massive tattoo on my hip and thigh earlier this year though...still makes me jump when I catch sight of it  :o

I can just picture that !

When we were in holiday in sept I noticed my belly bar was missing , OH asked how long ago and I said not sure, looks like it's all healed up (story of my life!) pre peri I would've noticed straight away and gone straight to replace it

X
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kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #24 on: December 16, 2016, 06:29:25 PM »

Lol the days of deciding what mini dress to put on and the music blaring was only stopped because of peri in 2012 !

Sad times these days !

X

Rock on!!! I have legs like a Tiny Tears doll so mini skirts were never my thing...I did get a massive tattoo on my hip and thigh earlier this year though...still makes me jump when I catch sight of it  :o



I can just picture that !

When we were in holiday in sept I noticed my belly bar was missing , OH asked how long ago and I said not sure, looks like it's all healed up (story of my life!) pre peri I would've noticed straight away and gone straight to replace it

X

Story of my life...that made me laugh...sorry! Is just not glamorous this meno business is it...it's the reason I got my tattoo though, I wanted something pretty to look at rather than my ever expanding midline and grumpy face...

I thought I would feel ridiculous getting my first ever tat at my age but it was actually a really nice..but painful experience!

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Annie0710

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Re: To those ladies who have had their ovaries removed...
« Reply #25 on: December 16, 2016, 06:55:12 PM »

I've got 3 tats, 2 are cover ups so I guess I've been inked 5 times. But they're cover uppable for Work etc. I'd love one at the nape of my neck to symbolise my 3 kids and angel baby

They're only exposed really on holiday

X
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kiltgirl

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Re: To those ladies who have had their ovaries removed...
« Reply #26 on: December 16, 2016, 06:59:59 PM »

I've got 3 tats, 2 are cover ups so I guess I've been inked 5 times. But they're cover uppable for Work etc. I'd love one at the nape of my neck to symbolise my 3 kids and angel baby

They're only exposed really on holiday

X

I'm kinda glad I'm too skint for more right now I think it could be addictive! Angel baby...I'm so sorry  :'( A tattoo is a lovely idea, never forgotten x
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Annie0710

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Re: To those ladies who have had their ovaries removed...
« Reply #27 on: December 16, 2016, 07:45:25 PM »

I've got 3 tats, 2 are cover ups so I guess I've been inked 5 times. But they're cover uppable for Work etc. I'd love one at the nape of my neck to symbolise my 3 kids and angel baby

They're only exposed really on holiday

X

I'm kinda glad I'm too skint for more right now I think it could be addictive! Angel baby...I'm so sorry  :'( A tattoo is a lovely idea, never forgotten x

Aw that's ok. She would be 27 just after Christmas
I've often thought 3 open flowers and the 4th a flower bud  in 2 pinks for the girls and 2 blues for the boys

X
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Melbury

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Re: To those ladies who have had their ovaries removed...
« Reply #28 on: December 16, 2016, 07:54:05 PM »

I had a subtotal hysterectomy 13 years ago.  Initially the surgeon wanted to whip everything out - i.e. womb, cervix and ovaries - but after lengthy discussion agreed to do the subtotal, provided that they looked healthy.

I said to him how many men would have their testicles removed just because there was a chance they could become troublesome at some point down the line and he totally agreed :)

As far as I am aware, ovaries do still produce small amounts of oestrogen even in post menopausal women.
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Rhiner

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Re: To those ladies who have had their ovaries removed...
« Reply #29 on: December 16, 2016, 08:01:30 PM »

loving the chats about tats and mini skirts, think we all got to that age. I haven't got one (yet)!!  Annie - that is so sweet about the flowers and a bud, a lovely idea.

Now down to more serious matters......Kiltgirl - it sounds like you have a good gynae which helps enormously.  My surgeon was very anti HRT and then very reluctantly put me on tablets after it was obvious that I had had a hormone crash! But, he did not want to know when I then had problems with the tablets. It was thanks to this site, that I went privately to a consultant that I found about on here who was very knowledgeable about HRT and who recommended  transdermal, as its a constant dose (alongside Utrogestan as I still have my uterus).  It took a few weeks to settle after the switch in dosage forms, but now normality is resumed, including visits to the gym!

Coldethyl- really sorry to hear of your experience and so glad that all seems to be settling now. Ovarian cancer is not easily detected is it.
Rhiner
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