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Author Topic: No ovaries? Struggling to raise HRT? Please have your thyroid checked.  (Read 6723 times)

Joesmum

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I am still struggling with my HRT.

Switched from Estrogel to EVOREL patches and am now using a  50mcg patch which isn't quite strong enough but I'm struggling to raise it higher as my thyroid levels are too low at the moment to cope.

Earlier in the year my thyroid levels were too high and I became hyper but we lowered it  too much  at which point I couldn't tolerate my 75mcg EVOREL patch so that had to be lowered to.

I'm just aware that there are a few ladies here who like me are oopherectomised and are having terrible trouble tolerating estrogel or patches. And are very sensitive to dose increases.

In short. If the thyroid is too slow, the energy inside the cell is too low........resulting in an inability to tolerate  estrogen.

Estrogen is a stimulating hormone and needs cells with energy to utilise it.

If you do have your thyroids checked please ask for your results and reference ranges. ANY TSH reading above 2.5 is very suspect.

Xxx
« Last Edit: November 17, 2016, 08:40:03 PM by Joesmum »
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abbyH

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #1 on: November 18, 2016, 12:30:03 PM »

Thanks Jose mum
I'm in exact,y the same boat actually, have just been unable to get anywhere with oestrogen and been advised to switch to Everol 50... I'm also on 1 grain of naturethroid (but suspect need to raise as Ft4 is quite low at 11) ...

I'm hoping to get better results on patch so I can add testosterone, which I suspect I need.. but am also seeing specialist meno clinic Ina few weeks, who I know prefer to use the gel..
What to do!
And let us know how you get on, my main worries post BOS have been massive hair loss, which could be down to shock I guess as well as hormones .. and weight gain around the middle

I fear I'm also massively oestrogen sensitive as have barely been on two pumps of oestrogen on and off, but suffer huge breast changes, swollen and sore :-(

Abby x
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abbyH

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #2 on: November 18, 2016, 01:22:54 PM »

Im self medicating on the Naturethroid, despite having antibodies my GP refused so I took matters in my own hands :(
My FT3 last time I had it measured (as NHS won't) in 2015 was FT3 5.0 (3.1-6.8)

So the menopause clinic will take all this into consideration?

Maybe I should stop the thyroid meds too.. I'm so confused to be honest.. I feel like my body needs to rebalance itself somehow

I started taking thyroid meds because of massive hair loss - and tiredness and weight gain...
I'm still a stone over weight, have lost 80% of hair but feel less tired it has to be said
My oestrogen levels are very low, but have ok testosterone

What to do?
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abbyH

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #3 on: November 18, 2016, 01:25:14 PM »

Yes I must check back into Thyroid uk
since being on NDT my antibodies have come down from <73 to <46 which is good right?
Just the hair that's a problem.. fine, falling out, dry and brittle just awful :(
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abbyH

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #4 on: November 18, 2016, 04:43:42 PM »

Thanks Joesmum

My GP flatly refuses to have anything to do with prescribing any kind of thyroid meds for me - but I initally presented with all teh symptoms of a subclinical hypothyroid patient. Weight gain, high choelsterol (despite being a healthy vegetarian exerciser for years), epic hair loss and tiredness...

But, I have noticed hair decline massively since the op so wondering if oestrogen deficiency is in there..

I wiill up the thyroid meds try to get to 2 or 3 grains and see how I feel.. It would be amazing to lose the 13lbs I'm currently over my normal weight and feel more myself again

I have to buy naturethroid - unless you know anyone in UK that will prescribe it?

Abby
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Katejo

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #5 on: November 18, 2016, 05:12:52 PM »

Thanks Joesmum

My GP flatly refuses to have anything to do with prescribing any kind of thyroid meds for me - but I initally presented with all teh symptoms of a subclinical hypothyroid patient. Weight gain, high choelsterol (despite being a healthy vegetarian exerciser for years), epic hair loss and tiredness...

But, I have noticed hair decline massively since the op so wondering if oestrogen deficiency is in there..

I wiill up the thyroid meds try to get to 2 or 3 grains and see how I feel.. It would be amazing to lose the 13lbs I'm currently over my normal weight and feel more myself again

I have to buy naturethroid - unless you know anyone in UK that will prescribe it?

Abby
Why does the GP refuse flatly when you have the symptoms? I have underactive thyroid but haven't tried combining that with HRT.
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Tempest

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #6 on: November 18, 2016, 05:19:49 PM »

Hi, Joesmum!

I'm sorry you're struggling still - the whole thyroid caboodle is another 'wild card' thrown into the mix when us surgical ladies are trying to find  balance! :o

I wondered due to my difficulties with raising my HRT doses if this may be an issue for me, but seemingly not - I've just got my TSH and Free TH levels back, as follows:

TSH: 0.72 (range 0.35 - 5.00)
Free TH 10.8 (range 9.0 - 21.0)

So I don't think there is anything  going on there?

In my case, I just think my nerves are rattled to pieces after the carry on over the last almost 2 years trying to even get HRT, let alone achieve anything remotely resembling balance........(sorry, I've got my angry head on today. And no - I've not even been near the Testosterone! I wish)....... ;)
« Last Edit: November 18, 2016, 05:43:22 PM by Tempest »
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SueLW

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #7 on: November 18, 2016, 07:39:47 PM »


I have to buy naturethroid - unless you know anyone in UK that will prescribe it?

Abby

GP's can prescribe Armour Thyroid.  It's the only one.  And your GP may say they can't.  But they can.  So it might be worth asking.
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Tempest

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #8 on: November 18, 2016, 08:31:15 PM »

Thank you so much, Joesmum!

So - I popped over to Thyroid UK as you suggested and one of the mods. kindly replied. They basically said that I MAY have a secondary hypothyroid problem, but with my levels as they are the NHS would be unlikely to treat (grrrrrr - what the HELL is going on with all this)?! The mod. did suggest possibly supplementing with selenium as this might help, and that as my levels stand I'm probably feeling pretty rubbish (very true)!

I'm wondering if I should go ahead and get a full thyroid panel done privately at the Nuffield........ ???
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Maryjane

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #9 on: November 18, 2016, 08:56:44 PM »

I have had full thyroid tests done and I am showing Graves' disease I believe , however in range NHS just .

Antibodies of 130 , so will be joining thyroid UK on Monday.

My vit d was 36 very low , ferritin 9 very very low and B13 398 also far to low so lots to sort out .
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Maryjane

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #10 on: November 18, 2016, 08:57:48 PM »

B12
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abbyH

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #11 on: November 18, 2016, 09:47:55 PM »

Thanks Joesmum

My GP flatly refuses to have anything to do with prescribing any kind of thyroid meds for me - but I initally presented with all teh symptoms of a subclinical hypothyroid patient. Weight gain, high choelsterol (despite being a healthy vegetarian exerciser for years), epic hair loss and tiredness...

But, I have noticed hair decline massively since the op so wondering if oestrogen deficiency is in there..

I wiill up the thyroid meds try to get to 2 or 3 grains and see how I feel.. It would be amazing to lose the 13lbs I'm currently over my normal weight and feel more myself again

I have to buy naturethroid - unless you know anyone in UK that will prescribe it?

Abby
Why does the GP refuse flatly when you have the symptoms? I have underactive thyroid but haven't tried combining that with HRT.

She just said she didnt' think I needed thyroid meds :(

I will post on Thyroid uk and see what they say

Abby
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babyjane

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #12 on: November 18, 2016, 10:00:11 PM »

I don't understand this, what is going on with these doctors.  When I was diagnosed with hypothyroidism (Hashimoto's autoimmune)  it was very difficult to stabilise on Thyroxine and some time later after joining Thyroid UK and learning about T3, I asked my GP to refer me to an endocrinologist which he was quite happy to do.  I was started on T3 as well as Thyroxine and my levels soon stabilised.

The endocrinologist who looks after me now is a gem, I trust him with my life and he looks after me very well.  Although the reference range for TSH is 0.5 - 4.5 (I believe it can differ across the country) he does not like mine to be over 2.5 and I feel best around 1 - 1.5.  Any lower and I start to go thyrotoxic.  My FT4 is usually around 14 - 15 and my T3 stays around 4.5 - 5.

I am so lucky to be looked after by him as he is one of the top specialists in his field and is very knowledgeable.  Also my GP takes note of the report that is always sent to him.  I feel very fortunate.

There are good doctors out there and I am sorry to hear you are not experiencing this.
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abbyH

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #13 on: November 18, 2016, 10:07:53 PM »

Clutter is great!

x
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abbyH

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Re: No ovaries? Struggling to raise HRT? Please have your thyroid checked.
« Reply #14 on: November 18, 2016, 10:10:06 PM »

Josie, what is the name ? you can email me privately if you like,

I have antibodies (started at 78 and have slowly come down) but my GP said they were too low to be of any significance!

my TSh is now lower than it's ever been (due to NDT) but my FT4 is low, 11
last time FT3 was measured it was ok, 5 somthing...

I'm at a loss
Abby
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