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Author Topic: Need for a bit more sensitivity....  (Read 17046 times)

CLKD

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Re: Need for a bit more sensitivity....
« Reply #30 on: August 25, 2016, 04:37:56 PM »

So Emma - why would a Member believe that they had been 'advised' not to mention specifics?

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babyjane

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Re: Need for a bit more sensitivity....
« Reply #31 on: August 25, 2016, 04:49:55 PM »

Maybe another forum member took it upon themselves to 'advise' Freckles to be more reticent with what she posts.

Unless a communication is endorsed by Emma I don't think it needs to be taken as gospel.
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Freckles

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Re: Need for a bit more sensitivity....
« Reply #32 on: August 26, 2016, 02:54:41 PM »

Hi All
Just to clarify I DID receive a PM from Emma advising me of the number of posts I had made, how often I had mentioned Studd,  and I was informed that "This constitutes a whole lot of advertising for a commercial interest. Advertising is against the forum rules.  As you will have seen, some members are becoming rather tired of your enthusiasm and I have received some complaints.  I would ask you to consider the content of your further posts". Seemed clear to me I was being asked not to mention him again.
I thought I was sharing my experiences which some others may (or may not) find helpful and I had no intention of advertising Studd- just praising his treatment regime, which works well for me.
Obviously I wouldn't want to distress or tire any further the members who complained by mentioning him again, so I won't (other than above!).
I consider myself duly reprimanded.  :)
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Elizabethrose

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Re: Need for a bit more sensitivity....
« Reply #33 on: August 26, 2016, 03:06:49 PM »

Hi Freckles

Are you sure it was from Emma, not as babyjane suggested, from somebody else? I just don't understand this at all.

Well given that Emma has said publicly that it didn't come from admin, you should continue with your informative, detailed posts as I feel sure you are helping a number of members. No one is suggesting anyone has to go privately, there are plenty of excellent gynaes out there, few work exclusively privately anyway.

Thank you for your posts Freckles, I've enjoyed reading about your journey.

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CLKD

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Re: Need for a bit more sensitivity....
« Reply #34 on: August 26, 2016, 03:21:26 PM »

Thanks for the clarification Freckles.

A moderator should be the person who advises Members on protocol, either on the Forum or via PMs.  If other Members are trying to butt in, then a moderator should step in ………… well, that's how it works on the other Forums I'm on  :-\

Keep updating how you are getting on!  Every experience can be considered by others and use appropriately or dis-regarded if not appropriate.
« Last Edit: August 26, 2016, 09:02:35 PM by CLKD »
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Freckles

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Re: Need for a bit more sensitivity....
« Reply #35 on: August 26, 2016, 03:33:17 PM »

Thanks CKLD and ElizabethRose.
Happy to clarify the PM came from Emma and that I was advised to consider the content of my posts.
Which I will do, or course, as I don't want to upset the members who complained about me or the Forum Moderator.
Anyway I am doing very well on the regime prescribed by "He Who Shall Not Be Named" and will continue posting.  :)
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Maryjane

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Re: Need for a bit more sensitivity....
« Reply #36 on: August 26, 2016, 03:34:41 PM »

Think as suggested by someone else a new sticky post " NHS/ private " , so those who get upset by the private posts don't need to read them / contribute ?

I personally found freckles posts great and enthusiastic , and when you have found the " ONE" who has helped you , then why wouldn't you shout it from the rooftops , even if others can't afford to see him , they can take the knowledge to there own GP and say Prof 🙊 Does this regime and helps many can I give it a go ?

From expert info without seeing the expert , because let's face it when some of us see our GPs and they get the MIMMS book out of the medication doesn't give a whole lot of faith when we are at our most vulnerable.

My own NHS gynae said I would only need to be on HRT for 4/5 months for me horrendous VA, at this point I smiled banged head on door and went private.
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Elizabethrose

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Re: Need for a bit more sensitivity....
« Reply #37 on: August 26, 2016, 03:49:45 PM »

I agree Maryjane, how very peculiar this all is though, something's not quite right!

I've mentioned some of the specialists I've seen over the years and would possibly have discussed them more if asked about them. This is an excellent medium for info exchange, something will need to be set up that will allow the conversations to be continued.

Perhaps you should have smiled and then banged his head on the door!
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Elizabethrose

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Re: Need for a bit more sensitivity....
« Reply #38 on: August 26, 2016, 03:52:08 PM »

Haha Freckles, that's how'll we'll do it - from now on he is 'he who should not be named'. I'm sure he'd give this a wry smile if and when he finds out about this!
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CLKD

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Re: Need for a bit more sensitivity....
« Reply #39 on: August 26, 2016, 03:52:49 PM »

I'll hold the door, you bang his head  :-\ - I wish that GPs/'experts' would listen to their patients  :bang: :bang: :bang:
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Emma

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Re: Need for a bit more sensitivity....
« Reply #40 on: August 26, 2016, 04:00:42 PM »

"Lynda57 has left us.  She was reprimanded for posting a link last night" - that's the bit I was referring to. OK? Clear now?
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CLKD

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Re: Need for a bit more sensitivity....
« Reply #41 on: August 26, 2016, 04:02:06 PM »

Nope  ::)

Is that in a PM to another Member?  :-\
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Freckles

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Re: Need for a bit more sensitivity....
« Reply #42 on: August 26, 2016, 04:04:09 PM »

Elizabethrose, you have a three monthly follow up after the initial consultation (then yearly after that) at "He Who Shall Not Be Named" clinic and I had my three monthly follow up this month. 
I did tell "He Who Should Not be Named" about MM and that many women on here spoke highly of him and also his treatment regime (whether obtained privately or on the NHS).  He looked up the forum in front of me on his lap top and read some of the posts about him and yes, he did give a wry smile!
I do rave about his treatment regime because I personally found it life changing and if women can get it on the NHS that's even better.  Unfortunately I didn't have any option but to see "He Who Shall Not Be Named" as my GP is clinically and emotionally challenged when it comes to prescribed HRT- she won't, and only wants to prescribed antidepressants.
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Evelyn63

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Re: Need for a bit more sensitivity....
« Reply #43 on: August 26, 2016, 04:06:44 PM »

Justjules, you raised a very valid point yesterday so don't feel badly today. I have seen a number of very sarcastic, patronising comments on this site. Some people ride roughshod over others beliefs and can do so in a bullying, domineering manner. We all of us have to make difficult choices about how to manage our health at this stage in our lives, some of the decisions are taken out of our hands.

Whether we take the HRT, other medicinal or indeed also 'natural' routes, is a right of the individual and they shouldn't be mocked or pilloried for doing so. Indeed, when discussions of a political nature have arisen on this site; patronising, sarcastic, bullying remarks can also abound.

I do understand, that in any collective situation, there will always be some who will take it upon themselves to manage everyone, to unofficially police what others say and do. However, this is a wonderful site enabling a very wide range of women to help, encourage and support each other and also to offer advice according to their own experiences. Of course we need to avoid unscrupulous advertising taking place which doesn't benefit any of us and can be detrimental.

There has also been criticism on another thread about some women seemingly advertising Professor Studd. Subsequently, it would seem some members have been advised by Emma to stop discussing Professor Studd and his recommended treatment methods, this is following complaints being made directly to her by some members. Might I suggest, that these women aren't advertising but just rejoicing in finding a solution to their extreme health conditions. It is very easy to become evangelical about something that has revolutionised our lives, we can easily become over enthusiastic. The other thing to consider here too, is that by those fortunate enough to be able to access private health care, sharing the detail of treatment plans, the information is then open to everyone. Especially, as so many have discovered, GPs can be uninformed about treatment possibilities. I do agree however, that private health care shouldn't be necessary but it's a cold fact of life that it sometimes is and I can speak from experience here. However, none of us should be insisting others have to see an expensive London based specialist otherwise no help is available to them. That is quite simply wrong.

The rather longwinded point I'm trying to make here, is that this site is an excellent vehicle for women to gain support and advice, enabling us to better our experiences at this very very difficult stage of our lives. Can we not offer this support in a kindly supportive manner?



Elizabeth Rose, what a thoughtful and insightful post.  I agree this is an excellent site.  Im a newcomer ( blown in) call what you will, but I have been reduced to tears, in a good way, and overwhelmed by the support I have personally received.  Some of my posts were dealing with issues I have a real problem with, and they were handled sensitively and with a lot of help and encouragement .  I personally think the problem is down to the literal written word.  When we are verbally speaking to someone we can use gestures, smiles, hugs, etc.  I know thats what the little symbols are for at the top, Im sure there is a proper name but I hope you know what I mean, but sometimes, its just not enough to get the true meaning across.

Im very sensitive myself but I genuinely didn't see anything harsh in Huridty's reply to Linda, I took from it she was gently guiding her in the rules of the forum, maybe again, thats not how it came across to Linda.   Freckle I love your post, and Dangermouse's, they are also so informative and helpful.

Im sending a group hug to everyone this evening,  God Bles you all and thanks for your invaluable support and help
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Elizabethrose

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Re: Need for a bit more sensitivity....
« Reply #44 on: August 26, 2016, 04:36:16 PM »

Very sweet of you to say so Evelyn and kind to put your thoughts down. I haven't directed my concerns at anyone specifically, my comments were made generally after wincing a few too many times over the past few months.

Life is difficult enough for many women, many of whom are seeking help here, without further pain and upset being caused. I agree totally about how wonderfully kind and generous our members are.

All good wishes to you x
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