Hi there
My Story is long and quite an adventure as far as medical story's go, I hope that some information I have learnt will help others, and I have already read many stories which are now helping me, so who ever created MM, thankyou, in the past 48 hours I have read so much advise and seen so much support, it has encouraged me, when I had begun to be in a very dark place,
My story starts 21 years ago, I brought my beautiful daughter home from hospital, and then I collapsed, a faint, this continued to happen so I saw my GP, she said I had sleep depravation, and to get more sleep, this continued and also brought on seizures, very scary when your holding a new born, lucky I never dropped her, I think
. for the past 18 years Doctors looked at every part of my body did every imaginable test and concluded I had Physdo Seizures, a name no longer used as its very sole destroying to patients. I had for years told doctors, I had common signs of when these would happen, and always around ovulation which has always been painful, and whilst I had my periods, which were always painful and heavy, but only since child birth.
so leading to a breakthrough they have now stopped that is up till December this year, here is my medical background and the point to my post.
at age 21 - tonsillectomy
at age 31 - Mekildiviticulium - a large growth (Benign) near my appendix, growing onto my bowel and pancreas, resulting in bowel resection and partial removal of pancreas - complications caused this to take 5.5 hours in surgery.
at age 40 - Complete Thyroidectomy, Large goiter had destroyed the entire Thyroid - x 2 surgeries due to complications both taking over 6 hours each
at age 41 - Hysterectomy - Due to a prolapsed Uterus - complications caused this to take 5 hours - both ovaries checked and both healthy and normal
at age 42 - Left Ovarian Mass Territoma Tumour 13 CM by 12CM, attached to Bowel and intestinal wall, speed of growth less then 6 months, another 6 hour surgery followed by multiple complications,
at age 43 - Right Ovarian Mass - Territoma Tumour 14CM by 12 cm, rate of growth, less then 4 months. surgery 5 hours,
With each surgery my lungs and heart have weakened and meant I have had to go to ICU for assisted breathing for some hours to recover, I have been given medication by mistake due to hospital staff being overworked, on medication caused me to have a heart attack while in A&E for complications following surgery, my bowel has been completed laid out and relaid back into my body, I am only just beginning to grieve for the loss of all of my women hood some 2 years later. I will be turning 44 this year, and with no overies or thyroid, you could say I feel like a total alien to myself and every day is a lottery as to how I wake and what level of competency I have to deal with life.
Because I was told that the medical system couldn't find anything wrong with me and my seizures where in my head, or that I had depression, I became almost like a victim of abuse.....sounds strange, but I lost all my confidence, so have for years doubted every time I walked into the doctors, and have not been able to express directly how I feel, something that is hard anyway when your not feeling well, but made worse, by the fact you are pretty sure they are going to say "Its all in your Head". so my post and its point, ALWAYS listen to your intuition, always act on it, there is no one in the world that knows the intimacy of your body better then you, we as women have the most amazing engineering under our hood, that hold a world of beauty and complications, In other words if it doesn't sound right keep checking get second opinions, my second point is don't take medications synthetic and natural until you understand what all the affects good and bad mean, you are putting something into your body on the advice most often then not of not knowing if it will work, so there will always be a trial period, keep a diary of how you are tracking on new meds,
I currently take a mixture of synthetic and natural, and I have a homeopath and a GP I now know that working with them both helps me far better to understand my needs....THIS IS WHAT WORKS FOR ME, so finding that recipe that is right for you is the key, if you are having side effects, it generally means the dosage is to strong or not the right medication, don't put up with long term trials, it generally takes around 6 - 10 weeks for the body to align to new drugs in your system I have been advised, but my point being, if your uncomfortable don't put up with it an example for me, is I was prescribed HRT with both hormones, and have been on these for 4 months, I have breast painfulness that has me in tears, I am now trying a more natural remedy and will give this some time to see if it fits my body better.
anyway, I think I have said enough for a newbie, thanks for listening, I also really needed to get a whole lot of my system so thank you for providing me a platform.
Warm regards xox
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Topic: No Thyroid No Overies, No more control and a Newbie (Read 5332 times)