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Author Topic: Menopause clinic referral  (Read 3983 times)

anais

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Menopause clinic referral
« on: July 31, 2015, 04:26:11 PM »

Hi ladies

I'm a new member to this site. I had my last period in January 2013, so I'm definitely in the post menopause now.

I had an urgent referral to Gynaecology for post menopausal bleeding (PMB). The ultrasound confirmed that I had endometrial thickness of 2.4mm and normal sized ovaries. I was due for a smear in 2013 but I had to abandon it because the pain of being opened by the speculum was unbearable. The nurse at the GP's who does the smears said it was due to the menopause but I thought it was due to the nurse being too rough! Anyway, I had to abandon it and I said I'd try another appointment but I let it drift, which I really regret now.

Anyway, I had a smear last week at my Gynae appointment, the same time as the scan. They had to use a very small speculum and the doctor advised me that the sample may have been inadequate due to me writhing and screaming with the pain. It really was awful. So the practice nurse that attempted my smear in 2013 was right after all. She said the cervix looked normal but I'm still feeling a bit stressed about what this bleeding actually is. By the time I got home I was red raw and I bled a bit as a result of the trauma of the examination.

The consultant said she would refer me to the menopause clinic. There was also another doctor observing her and both were in agreement that my problems are due to low oestrogen and that local HRT applications might help, but nothing was prescribed.

Whilst waiting for my referral, I decided I'd use Replens, but shock of shock, when I used it the other day I had a smear of bright red blood on the applicator and some bleeding afterwards. I phoned the GP, but there was no nurse or any of the female GPs on duty, but I did manage to speak to one of the male GPs, told him about my appointment at Gynae etc, and he says, wait for the result of the smear and take it from there.

Obviously I'm worried because everyone says PMB is abnormal (hence the urgent referral) so you think the worst, don't you?
The consultant says the menopause can make the vaginal walls very fragile and bleed easily, but on the other hand she also says PMB is not normal either, so it's very confusing when it happens to you.

I've always had normal smears and I always attended my appointments when I got the reminder but quite honestly, the pain was unbearable two years ago and I let it drift as a consequence. Over 50s are recalled every 5 years, so the consultant wasn't that bothered about being late for this smear because my last successful smear was in 2010, so I was on the cusp of going on to the 5 year recall anyway.

Now back to the menopause clinic! Obviously, this vaginal atrophy has to be addressed. Obviously penetrative sex is a no-no and that's not much fun for a married women. I've been plagued with repeated urine infections since late last year after having no cystitis at all for maybe 30 years - the consultant said the HRT applications should help with that too. I was also diagnosed as having 'major osteopenia' in 2013 at the age of 51, with T-scores of 2.3 and 2.4, so that's not good either. From what I've read about the menopause clinic on the hospital website, they also take referrals for osteoporosis and osteopenia, so I intend to get the most out of my attendance at the meno clinic.

My biggest worry right now is the PMB, but I'm also taken aback at how women of our age just don't get the right help and the right advice for VA and other menopause-related conditions. I'm thinking about something Tracey Emin said about women over-50 are supposed to become invisible, and that is so true!
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Kathleen

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Re: Menopause clinic referral
« Reply #1 on: July 31, 2015, 05:09:20 PM »

Hello janee and welcome to the forum.

I can understand your concerns about PMB and although it's not normal it's certainly not unusual, many women on this site can attest to that! I am post menopausal and I've had bleeding and spotting on several occasions. I had a full investigation recently and I was told that I was responding to the oestrogen in the HRT patch I am using so it seems possible that your Replens is having a similar effect. On the other hand very low oestrogen can also result in bleeding as thinning of the tissue was responsible for my friend's particular bleeding problems. Cystitis can also result from low oestrogen.

You are fortunate to have a referral to a meno clinic and I am sure they'll be able to put your mind at rest. In the meantime try not to worry ( I know, I know ).

Wishing you well and keep posting.

K.
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Dancinggirl

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Re: Menopause clinic referral
« Reply #2 on: July 31, 2015, 05:32:38 PM »

Hi and welcome to MM janet
Kathleen has responded well to you and it's good you are getting some specialist advice.  You may well need not just local oestrogen but full systemic HRT to help with bones, VA, bladder etc. - see what they advice. 
You are right about how women are treated for meno symptoms - unfortunately GPs are rarely up to speed with how to treat meno, especially VA and bladder issues.  Do browse this site - there is some great info and some of the threads may be informative and reassuring for you.  Do keep us posted.
DG x
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anais

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Re: Menopause clinic referral
« Reply #3 on: July 31, 2015, 09:48:28 PM »

Thanks very much for your kind welcome.

Yes, I have read some of the other posts on this site and it appears that PMB can be a problem for some. I've only used two applications of Replens so far, so it's early days. I bought it OTC just to tide me over until my meno clinic appointment. I can see from the posts here that VA, cystitis, etc, are widespread problems for many women. Who knew?!! (Not me, that's for sure.) The consultants said that my problem was most likely due to the thinning of the vaginal tissue due to low oestrogen. I was surprised to learn that it may also be responsible for my recurrent bladder infections, but as I've seen on this site, that's just part of the crazy deal that we women have to deal with at this time of life. Yes, I am lucky to be referred on to the meno clinic but it was the consultant that recommended it. I never even knew it existed and none of the GPs at my surgery ever mentioned it, so I assumed that because I wasn't too badly off with the hot flushes etc, that I was doing OK. Obviously there's more to the menopause than hot flushes!

Thank you.
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Mary G

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Re: Menopause clinic referral
« Reply #4 on: August 01, 2015, 05:41:29 PM »

Janee, hello and welcome!  Sorry to hear you are having a difficult time, it is so frustrating.  I get very annoyed about all the out of date information flying around the media and the medical profession and I don't feel that women are getting the help they need with the menopause.

I know it's easy to say but I doubt the bleeding is anything to worry about because you are up to date with your smear tests and the risk is much lower when you get older and that is why they only call you every 5 years.  Nonetheless, I would have one as soon as you can.

I hope the menopause clinic can come up with a satisfactory solution but if not, I suggest you find an alternative.  I don't know how you are placed financially or where you live but I would recommend a visit to Professor Studd in London.  He is a leading expert in this field with years of research behind him and I think he will be able to give you some really good advice, he certainly helped me.  I'm not sure exactly how much it costs but it is about £300 but they take credit cards.  He usually prescribes 3 pumps of oestrogel every day and 7 days of Utrogestan per month but obviously you would need to have a proper consultation with him because everyone is different and he may suggest something else for you.

I went through a phase of having itching, burning and cystisis when I was not getting enough oestrogen - I was taking Angeliq at the time and it was hopeless because it had too much (artificial) progesterone in it.  This all stopped when I started using the gel. 
 
I have just dug out my last (2014) bone density test results and I had a T score of 1.3 (no plus or minus) I am right in thinking that your score was minus 2.3/2.4?  If that is the case, oestrogel would certainly help with that.

By the way, I am 54 and my last natural period was at the beginning of 2006.

You are right, there is much more to the menopause than hot flushes although, funnily enough, I have never had them.  I had no idea of the far reaching problems the menopause can cause and it caught me by surprise - I had never thought about it until the doctor told me I was post menopause aged 44 (nearly 45).  Oestrogen is like a central control system and without it, you can get all kinds of problems but there is help out there! 

I hope that helps.
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anais

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Re: Menopause clinic referral
« Reply #5 on: August 03, 2015, 05:08:32 PM »

Hi Mary

Thanks for your reply. I've just had my smear test result, the letter says it was normal, so I suppose that's a good thing as well as the normal findings on the TV Ultrasound test. However, when I used the Replens this morning there was fresh blood at the end of the applicator which of course made me worry again.

Straight to Dr Google, and that's no good for anyone's peace of mind.  :o

I know that the GP will now say "wait for your menopause clinic appointment" if I was to go back with this problem, but I don't know when that will be, and the consultant didn't recommend anything immediately. I suppose it's because they had to have all the test results back before they can move on to the next stage anyway.

I've had excellent treatment from the local NHS hospital, so I'm fairly confident that I will receive good care at the menopause clinic too. The consultant says that some women can have just one appointment to work out how to address a particular issue, but I want to get as much out of it as I can, especially with the osteoporosis/osteopenia going on, not to mention the "intimacy issues" that VA can make nigh on impossible.

I think a T score of 1.3 is very good, I think 1.0 is "normal", so even if you have lost some bone density it's probably OK for a woman of your age, whereas 2.3/2.4 at the age of 51 is pretty rubbish, really. I know that I have some risk factors too. The GP thinks the answer is calcium and vitamin D but the Osteoporosis helpline nurse said there isn't any point if you are having enough calcium in your diet, and my diet is fairly high in calcium i.e. more than the RDA. I've wasn't deficient in Vitamin D at all when I have been tested, so it's all very confusing. I'm due another DEXA scan later this year, and I'll probably have been seen at the menopause clinic before then, so it's definitely something I'll bring up at my appointment.

Many thanks.
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Dancinggirl

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Re: Menopause clinic referral
« Reply #6 on: August 03, 2015, 09:21:49 PM »

janee - it is now well known that many of us are deficient in vitamin D - the best source is sunshine - we need around 20 mins exposure each day to get enough Vit D so supplements can be a very good idea - D3 is the one to take - there are very few other good sources of Vit D and it is so vital not just for the bones but for all sorts of things in the body including the immune system.
Do write out all the things you wish to discuss at the meno clinic and have a list of questions so you don't forget anything.
If all your tests have come back as normal then I wouldn't worry about the bit of spotting but discuss this at the appointment. HRT may well be recommended as even a few years of HRt in our 50s can benefit the bones and heart in the long term.  Perhaps ask for something like Femoston which is well tolerated by many women - do consider trying the sequential version first as this will result in a monthly withdrawal bleed which may be preferable to start with so you can gage whether the HRT suits you.
Keep us posted.  DG x
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CLKD

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Re: Menopause clinic referral
« Reply #7 on: August 03, 2015, 09:56:44 PM »

You may have something as simple as a polyp up there which bleeds on contact!  You may of course have thinning vaginal walls which will account for the bleeding.  Blood goes a long way and a small amount can look a lot!

Your GP can prescribe vaginal atrophy treatment.  Repeated urine-type symptoms are often the beginning of VA fortunately my GP recognised the symptoms when 2 urine samples were sent to the Lab. and failed to grow any bugs.  Treatment was commenced.  No more feelings of razor blades up there!

Let us know how you get on!
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Mary G

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Re: Menopause clinic referral
« Reply #8 on: August 04, 2015, 03:58:12 PM »

Janee, thanks for the update, it looks like things have progressed for you and it is good news about the smear test being OK.  Please let us know how it goes at the menopause clinic.
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