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Author Topic: First mammogram finds calcification, biopsy failed to get it  (Read 17773 times)

Sarai

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First mammogram finds calcification, biopsy failed to get it
« on: November 29, 2014, 11:05:27 PM »

I am seriously distressed, I had my first mammogram a month ago, got recalled, terror. I have one calcification so the doc tells me all about DCIS, I am sat shaking and crying so shocked. I have a biopsy, 20 bits were removed but they did not catch the bit. They now want to do a vacuum procedure on the 17th December. I will be doing it but think shall I wait until January in case it's bad news. I thought the odds were good but reading this site  tonight people saying 80% are cancer when I thought 80% were not. I am wondering if I should have come on here at all now.
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Mrs January

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #1 on: November 30, 2014, 12:08:37 AM »

Hey there

I just saw your thread and can't pass by it.

I don't have the answers but I wish you love and luck......one step at a time until you know what the outcome is going to be........lean on family and friends, maybe call the doc and discuss it with them before the hosp appt

Love and hugs

Mrs January xxx
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Mrs January

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #2 on: November 30, 2014, 12:12:12 AM »

Hey

I just looked on the net too. Having the mammogram has found this yes, without the screening it wouldn't have so is that maybe a better position to be in ? to have found it albeit is shocking news , early so that treatment can happen?

Hugs Mrs J xx
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Limpy

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #3 on: November 30, 2014, 11:31:17 AM »


They now want to do a vacuum procedure on the 17th December. I will be doing it but think shall I wait until January in case it's bad news.


Sarai - You have had a horrid shock. But perhaps getting the procedure done, as early as possible, on the 17th Dec will be the best way of improving the odds and getting good news. If it were me I would be fretting all the way through to January.

Please try to relax, easier said than done I know but you won't be helping yourself.

Sending hugs

:hug:  :hug:  :hug:
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sweatybet

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #4 on: November 30, 2014, 03:59:17 PM »

Sarai hi

Please read the information on the McMillan website about breast calcification. http://www.macmillan.org.uk/Cancerinformation/Causesriskfactors/Pre-cancerous/Breastcalcifications.aspx.

You should have been given the name and number of the breast care nurse please ring her tomorrow and discuss your situation.

Sweaty bet.
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CLKD

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #5 on: November 30, 2014, 04:11:35 PM »

Calcification = what exactly?  You should have been offered a Nurse at the time of the appt. and certainly 17th December is too early - you are not in a psychological state to undergo surgery what ever the outcome.  Been there: done that  ::)

I had a needle biopsy on 4 Dec 1994 followed by a mammogram. Nothing was present on needle biopsy results, all was 'within normal limits'.  I was scheduled for surgery the following January but was unable to face the possible outcome until the June of that year.  My GP gave me AD medication so that my mental state was in a better place. 

I had lumpectomy followed by a bone scan followed by histology which showed 'changes'  on the outer edge of the lump: this could ONLY be found at histology! then removal of lymph glands which were 'clear' and pre-cautionary radiation therapy ……… my Surgeon was exact and to the point. He explained at each appt. what had happened, was what likely to be the outcome and here I am >wave<.  My treatment took longer because I put off the initial surgergical procedure but I was by then able to deal with any outcome.


Putting off the surgery should not make much difference in time scale.  I would ask for another appt with the Surgeon to clarify what he is looking for exactly and what each scenario is likely to be.

a] does he expect there to be cancer present and if so what treatment - why not lumpectomy rather than phaffing around with a 'vacuum' procedure what ever that might be?

b] if there isn't cancer present what is his follow up procedure?

Also as suggested contact the Link ……… and do take someone with you who will ask the questions! and write down the replies.  Problem is Surgeons often know what the likely outcome will be but are not good at telling patients!!!! [been a medical secretary too  ::) ].

It is a shock to have to be prodded and poked, plus any lack of information from the Consultant etc..  Your GP should also have received a letter so talking to him/her might be the way to go!
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Sarai

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #6 on: November 30, 2014, 08:05:11 PM »

I have not seen a surgeon. I was called back for repeat mamo, was passed to a doc who said "I'm on the fence, I just don't know" after seeing my one calcification of 4mm in a duct. Went on to scare me with talk of DCIS. They did a biopsy there and then, took 45 minutes and took 20 samples but histology said all normal tissue, she did not get the calcification. Their procedure now is to do a vacuum of a bigger area under mamo again, to hopefully get the calcium. Then it will be sent off to look again for changes. If there are changes then you get sent to a surgeon.
It seems the new digital machines find this all the time and they have people like me all day long getting biopsys.
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CLKD

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #7 on: November 30, 2014, 08:41:52 PM »

Seems a long winded way of treatment to me  ::) - I note that you say tissue samples 'are all normal'.  That's good!  I would ask for a referral to a Breast Consultant - you probably saw a radiographer but you should have been told who he/she was and the Speciality  ::)

Go to your GP this week or ask for a phone 'consult'.  Ask if he/she has received a letter following the mammogram and what you can expect - make a list of your worries and ask the questions, or go to see the Practice Nurse at your Surgery. 

Off to have a 'search'  ::) ……..
« Last Edit: November 30, 2014, 08:45:56 PM by CLKD »
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CLKD

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #8 on: November 30, 2014, 08:45:18 PM »

Right - have been delving  ::)

"Breast calcifications are small areas of calcium in the breast. They can't be felt and usually show up on a breast x ray (mammogram). Calcifications are very common, and in most cases they are harmless. There are two types:

Macrocalcifications
These are coarse calcium deposits in the breast. They look like large white dots or dashes on a mammogram. Macrocalcifications are a natural result of breast ageing and are harmless. They are not linked with cancer and don't need any treatment or checking.

They are found in about half of all women over the age of 50, and in about 1 in 10 (10%) of younger women. They may be caused by calcium deposits in a cyst or in milk ducts as women get older, or as a result of previous injuries or inflammation. Calcium in the diet does not cause calcifications to form.

Microcalcifications
These are tiny calcium deposits that show up as fine white specks on a mammogram. They are usually found in an area of the breast where cells are being replaced more quickly than normal.

Microcalcifications are not usually due to cancer. But sometimes a group of microcalcifications seen together in one area (a cluster) may be a sign of pre-cancerous changes or early breast cancer.

If calcifications are seen on a mammogram

If your mammogram shows that there are calcifications, a person who specialises in reading x-rays and scans (radiologist) will look at the size, shape and pattern of calcifications. They will then decide if any further tests are needed.

If only macrocalcifications are found, you won't need any treatment. If microcalcifications are found, you will usually be asked to have a close-up mammogram of the affected area.

If the results of this mammogram show the changes are clearly not cancer (benign), you won't need to have any more tests or investigations.

If the results are uncertain, you'll be advised to have a small sample of tissue taken (biopsy) for examination under a microscope. This gives your doctor more information to help them make an accurate diagnosis.

Breast biopsy

You'll have a breast biopsy done in the breast clinic or an x-ray department. Your doctor or nurse will explain more about the type of biopsy you will have.   

Before the biopsy is taken, the doctor will numb the area where the tissue is to be removed with local anaesthetic. You may feel some discomfort or pressure during the biopsy but only for a short time.

Your breast may be bruised and feel sore for a few days afterwards. You can take painkillers until this eases off and any bruising should go away within a couple of weeks.

Needle (core) biopsy
Your doctor will gently put a needle into the area of calcification to remove a small piece of tissue. They will do this using an ultrasound or a mammogram, which show pictures of the breast, to help guide the biopsy needle to the area of calcification.

Vacuum-assisted biopsy (VAB)
The doctor will place a needle into the area of calcification guided by an ultrasound or mammogram. When the needle is in position, a vacuum gently draws and removes some breast tissue into a small collecting chamber.

Wire guided biopsy
This may be done when a needle (core) biopsy hasn't removed enough of the calcification, or when the biopsy result is not clear. The doctor inserts a thin wire into the breast - using an ultrasound or a mammogram to guide it – to mark the position of the calcification. The wire is kept in place with a dressing. You will have a small operation and the surgeon will remove the area of calcification. You may have this done under a local or general anaesthetic.

Biopsy results

Most microcalcifications are shown by a biopsy to be non-cancerous (benign). If this is the case, you won't need any treatment.

If cancer cells are found, it is usually a non-invasive breast cancer called ductal carcinoma in situ (DCIS), or a very small, early breast cancer. Both these can be treated very successfully.

Your feelings

It's natural to feel worried if you're told you have breast calcifications and need further tests. But it's important to remember most breast calcifications are not a sign of cancer.

If the biopsy results show that there is an early breast cancer the surgeon or breast care nurse will explain more about this. They will talk to you about the treatment you need and give you support to help you to cope.

If you have any concerns it's important to discuss these with the doctor or breast nurse at the clinic, you can also talk to one of our cancer support specialists."
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CLKD

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #9 on: November 30, 2014, 08:48:51 PM »

I wouldn't have any further investigations without discussing this with my GP or a Surgeon particularly as the X-ray Dept doesn't seem to be giving you any support!  >:( ……… from what I have copied it seems that this isn't a 'rush' situation and if you feel better about getting 'this time of year' over first, then tell your GP and see what he/she suggests.  A patient should NEVER feel rushed into a procedure as it doesn't make for good recovery!  One needs to get our heads around what investigations 'might' show and what one needs in the way of support and treatment.

If the Dr you saw was un-certain he should have referred you to a breast clinic !!!!
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Limpy

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #10 on: November 30, 2014, 08:50:50 PM »

Sarai - Listen to CLKD - she knows what she is talking about, especially in this area.
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Sarai

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #11 on: November 30, 2014, 08:54:44 PM »

I think I was in a breast clinic got called to another city not the old place people went to. I was not told anything before second mamo and by the time I saw the doc, her first words were, I'm on the fence, I didn't have a clue what she was on about, I had never heard of calcifications up to that point. I was she'll shocked.
I still have severe bruising from the procedure due to being on warfarin at this rate I doubt it will be gone on the 17th. And it needs to be or they can't see what they are doing.
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Sarai

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #12 on: November 30, 2014, 08:56:31 PM »

I could go to a GP but mine has just retired so it would be one I don't know. I never thought of seeing the GP. I know my family are desperate fir me to get the test done before Christmas.
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tiger74

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #13 on: November 30, 2014, 09:05:57 PM »

New digital mammography is great and I feel reassured that screening techniques are improving all the time.  However, it can mean that nowadays more ladies are recalled after routine screening mammography for anomalies that prove to be benign.

Every case is different and procedures, protocols and best practice have probably changed markedly since I had treatment at a breast clinic in 2009/10 (and will have changed massively since 1994).  For this reason, and the fact that I am not medically qualified, I won't venture an opinion on the suitability of the medical procedure which has been proposed       

My diagnosis was different to CLKD and personally I wanted to get on with treatment  a.s.a.p. and cancelled a summer holiday in order to facilitate this.  Only you can decide whether you feel ready to go ahead with the suggested procedure on 17 December and it would be presumptuous of anyone who doesn't know you to suggest otherwise.  Maybe there are people who know you well and/or people who are medically qualified who know details of your case who you can speak to in order to make an informed decision?

I'm curious to know why receiving the results is any different in December from doing so in January?     

Wishing you all the best and here's hoping all is well.
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CLKD

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Re: First mammogram finds calcification, biopsy failed to get it
« Reply #14 on: November 30, 2014, 09:07:50 PM »

This isn't about your family, this is YOUR medical situation.  I can't remember which country you are in  ::) ……… doesn't matter if your GP has retired.  Your records should be there.

How about:  ring or visit the Surgery in the morning and speak with the receptionist.  Explain that you are quite upset following the investigation and don't understand what has been told to you, ask, is there a chance that a letter has been sent from the Mammogram Dept..  If you are in the UK and if it hasn't arrived, maybe the Surgery will chase it. 

Ask if you can have an appt either with a GP or Practice Nurse - our Surgery has very qualified Nurses who if necessary, will listen, take notes and then ask the GP for advice.  If you can't have an appt. ask for a phone call to your home?

You could also call the dept where you had the mammogram and ask if there is really any rush to have this done before New Year? That you would like more detailed discussion before going for more investigations. 

Not the best thing for a 'Dr' to say 'sitting on the fence' doesn't encourage confidence, that  ::).  One wants to know that: this is what has been found, this is the way it is investigated, whether there is a requirement for referral to a Breast Consultant ……

It's easy to sit here and say don't worry but I think you have time on your side  ;) if that's at the back of your mind.  Make a list to take to your GP/Practice Nurse.  I've been through similar and remember well the worry and concerns ……. my Consultant insisted on a list of questions at each appt.  ::) ……… Some Consulants aren't good at communication with people either ……..
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